Open main menu ☰
HealingWell
Search Close Search
Health Conditions
Allergies Alzheimer's Disease Anxiety & Panic Disorders Arthritis Breast Cancer Chronic Illness Crohn's Disease Depression Diabetes
Fibromyalgia GERD & Acid Reflux Irritable Bowel Syndrome Lupus Lyme Disease Migraine Headache Multiple Sclerosis Prostate Cancer Ulcerative Colitis

View Conditions A to Z »
Support Forums
Anxiety & Panic Disorders Bipolar Disorder Breast Cancer Chronic Pain Crohn's Disease Depression Diabetes Fibromyalgia GERD & Acid Reflux
Hepatitis Irritable Bowel Syndrome Lupus Lyme Disease Multiple Sclerosis Ostomies Prostate Cancer Rheumatoid Arthritis Ulcerative Colitis

View Forums A to Z »
Log In
Join Us
Close main menu ×
  • Home
  • Health Conditions
    • All Conditions
    • Allergies
    • Alzheimer's Disease
    • Anxiety & Panic Disorders
    • Arthritis
    • Breast Cancer
    • Chronic Illness
    • Crohn's Disease
    • Depression
    • Diabetes
    • Fibromyalgia
    • GERD & Acid Reflux
    • Irritable Bowel Syndrome
    • Lupus
    • Lyme Disease
    • Migraine Headache
    • Multiple Sclerosis
    • Prostate Cancer
    • Ulcerative Colitis
  • Support Forums
    • All Forums
    • Anxiety & Panic Disorders
    • Bipolar Disorder
    • Breast Cancer
    • Chronic Pain
    • Crohn's Disease
    • Depression
    • Diabetes
    • Fibromyalgia
    • GERD & Acid Reflux
    • Hepatitis
    • Irritable Bowel Syndrome
    • Lupus
    • Lyme Disease
    • Multiple Sclerosis
    • Ostomies
    • Prostate Cancer
    • Rheumatoid Arthritis
    • Ulcerative Colitis
  • Log In
  • Join Us
Join Us
☰
Forum Home| Forum Rules| Moderators| Active Topics| Help| Log In

DR. LERNER patients

Support Forums
>
Chronic Fatigue Syndrome
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
profile picture
ladybugmandy
New Member
Joined : Mar 2008
Posts : 1
Posted 3/2/2008 1:15 PM (GMT -8)
hi everyone. i have had CFS for 15 years and usually post on the immunesupport messageboards. my illness began after mono.

i am currently seeing dr. martin lerner in michigan and taking antivirals.

i am looking for anyone else here who has taken antivirals or is under dr. lerner's care for their CFS or FM. i would very much like to share experiences.

thank you

sue

profile picture
Lurking Guest
New Member
Joined : Nov 2007
Posts : 6
Posted 3/2/2008 2:46 PM (GMT -8)

Hi Ladybug,

I just posted on immune support.  I just found this website.  I have been taking Valcyte for three weeks under Dr. Lerner's care.  Day three was bad.  Around day 8-12 was bad again then the next two days I felt awesome (really human- like the OLD me), then back to cruddy.  Some bad headaches through out the three weeks.  But I want you to know I haven't felt any worse than my usual really bad days, but my two awesome days were better than any I have had in years.  So I remain quietly hopeful.  I have been sick for 11 years.  I eat healthy. I don't drink alcohol, coffee or pop.  Before all this started, I worked out 5-7 days a week.....but now I am pretty much worthless if you want anything done.  Dr Lerner took me off of work- which was the #1 thing that I think helped since my body can rest frequently as it needs.  I seem to require at least 10-12 hours of sleep per day, sometimes naps, sometimes just laying down to rest mid day.  My active day is a load or two of laundry or cooking dinner.  If you want to privately email me, I am at aepalisades@aol.com.  Put something like Dr Lerner in the subject so I don't inadvertently delete it.  Otherwise I will check back here in a day or two.

Best wishes with treatment

aepalisades

profile picture
supadupagirl
New Member
Joined : May 2008
Posts : 14
Posted 5/12/2008 10:30 AM (GMT -8)
If you google on this medication, there are people that has been doing a Valcyte trial with some good results. The same thing as aepalisades says happened to them I think. It took some time before they noticed any difference.

Maria
✚ New Topic ✚ Reply


More On Chronic Illness

How To Manage Stress During The Holiday Season

How To Manage Stress During The Holiday Season

Becoming More Resilient In The Face Of Chronic Illness

Becoming More Resilient In The Face Of Chronic Illness


HealingWell

About Us  |   Advertise  |   Subscribe  |   Privacy & Disclaimer
Connect With Us
Facebook Twitter Instagram Pinterest LinkedIn
© 1997-2023 HealingWell.com LLC All Rights Reserved. Our website is for informational purposes only. HealingWell.com LLC does not provide medical advice, diagnosis, or treatment.