Hi tree, I think I experience something similar. I don't necessarily feel like I'm not in control of what I'm doing, but I do have times where I feel like I'm "removed" from myself, if that makes any sense. It's this weird feeling I get and it's like I'm on the outside, removed from myself. This seems different than the brain fog that I have with CFS and lupus.
I can't really help shed any light on this, but I just wanted to let you know that I experience something kind of similar.
I'm just curious how long you have had CFS and if you have found anything that is helping. I'm asking, because there just doesn't seem to be much in the way of treatment for CFS and a lot of us are just left floundering and having to just deal with all the symptoms.
Diagnosis: UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds: Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears
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