This is my first response....bear with me. I think I know what you are describing. It is very hard to put into words accurately. I feel disconnected - and uncomfortable in my body - which isn't about
pain as much as a feeling of being "altered" physically and mentally. It can be alarming and rather taxing when you are in a social situation. For me, I think it is often a precursor to flare symptoms coming on. I think it rather "feels" like what an alarm system "sounds" like when it's loud, and persistant and you can't get it shut off. I tend to think it has to do with stress and CNS problems. I'm glad you asked the question.....I have wondered many times if others experience anything similar that is connected to the CFS. I feel less weird already!