Posted 6/16/2008 8:39 AM (GMT -6)
Thanks.Will pass along your reply to my Sister Friend.She is having a rough go right now,and it seems much worse during periods of high Stress.


Posted 7/1/2008 5:04 PM (GMT -6)
I'm surprised that after all this time--at least three decades, according to my fatigue problem--there is so little information. Aren't there any specialists in the field?
Posted 7/2/2008 5:45 PM (GMT -6)
am sorry to say that all ive been prescribed is amitriptiline and it is useless - if i find anything good will let you know
Posted 7/3/2008 8:03 AM (GMT -6)
Amitryptiline (25 MG's) is a Medication my Sister Friend was first Prescribed,but it made her feel paralyzed.Perhaps due to she taking Xanax and Pain Medication also.I took 50 MG's and never felt paralyzed..she is now taking Cymbalta for couple of Month's and says it's working,but I don't think it is..


Posted 7/14/2008 6:17 AM (GMT -6)

Hi all!!

I'm the new kid on the block and wanted to share what has helped me with CFS.  I live in UK and they are still further behind with understanding and treatment of CFS from my experience, so I've researched and tried things out myself! NADH is a supplement which helps the brain fog. It is best taken sublingually and half an hour before eating anything. I started taking 10mg a day and now I take only 5mg and I do find it helps with alertness. Malic acid combined with Magnesium is something I've started to take to deal with fatigue and muscle pains and aches. It can be purchased in tablet form and is called Magnesium Malate. Apple cider vinegar contains malic acid but isn't just as pleasant to take! The magnesium helps with sleep but also helps with muscle contractions. Malic acid is also meant to be good at treating heavy metal toxicity in the system. I take B vitamin complex to help the nervous system. I take Vitamin C as it is good at helping the immune system. There is a helpful article on-line which gives guidelines to recovery. It can be found on and can be downloaded for you to read at your own leisure. I have also experienced what seems to be similar to brain zaps and while that can occur when coming off medication, such is not the case with me. Again from research, I've discovered that Omega 3 can help reduce them.(Magnesium malate is supposed to aswell). All in all, I've noticed a great improvement in my condition....I still have a way to go though! :-) I'm just glad that I can function semi-normally now!


Posted 7/15/2008 9:56 AM (GMT -6)
Hi Syndee! Please check the glutathione/atp thread here for a little different approach to treatment. I've finished my six-week regimen of once a week self-injections and will see the rheumy this Thursday for an update/progress report and for a repeat of all the blood tests to see how all the numbers look compared to before the injections. I must say I feel much better than I've felt in years.....not totally pain or fatigue free but so much more manageable and livable with them. I've even had a few scattered days where I've not needed to take ANY pain medication at all.....virtually unheard of before the dx and injection regimen. The only fly in the ointment for full support of the injections is that I've also been drinking that acai berry concoction, Monavie, so I honestly can't say if my improvement is from the injections, the Monavie or a combination of both. I had started the Monavie regimen two weeks before my dx and the injections started and had not seen or felt any noticeable improvements up to that point. My wife bought that Monavie for me because she had been told of it's strong antioxidant properties and it's supposed track record of improving fibro and cfs conditions in sufferers. I will mention that to the rheumy Thursday and see what her response is.

Gentlest of hugs,
John (53)
Dx'd June 2008 with Fibromyalgia & CFS  possibly caused by chronic Epstein-Barr virus (many years of ongoing symptoms.....recently worsening)......also, previously dx'd sleep apnea, high blood pressure, hypothyroid, low testosterone, high cholesterol, heart arrythmia & headaches (all types)
Several meds too numerous to list or remember!

Posted 7/15/2008 1:42 PM (GMT -6)
Glutathione is definately a treatment I would recommend looking into as was mentioned by jev.

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