I have joined this board due to overwhelming problems that I have been having for a good few years now.
I have been going backwards and forwards from my doctors surgery now for about
three years to try and cure a "mystery illness" that has been severely affecting my life now for an unacceptable amount of time, and shows no signs of improving, maybe even the opposite. The main symptoms I have all of the time are, extreme chronic fatigue, severe muscle/joint aches, inability to think/concentate even speak sometimes and constant nausea feeling.
When I have been speaking to doctors I have always worked on the basis(stupidly, which I will come to later)that this started around the age of 20(i'm 24 now)when I had an abcess in my tooth, had to wait two weeks to get it seen to, had no sleep, was relying on painkillers to keep going to work and eventually collapsed in exhaustion on the bus on the way to work and was admitted to hospital. Things had never been quite the same since then so I blindly used that as a starting point for my troubles and was diagnosed with anxiety. At this point I was nearly 100% trusting in my doctors diagnosis and began his reccomended course of treatment, Effexor tablets. What a massive mistake, for 6 months I powered through in a zombie like state feeling totally isolated, unable to think, just sleep and this was the first time that I can remember that sickly/dishevelled feeling that stays with me to this day. I hastily stopped them cold turkey(bad mistake with hindsight) and regained some sort of normality in a few months but there was always an underlying feeling of extreme exhaustion and the worst one for me the aches and pains, constantly trying to move my limbs(especially shoulders/neck and chest) to "click" them into place, which never happened along with taking ages to shake colds and intolerance to things like alcohol and junk food.
A few muddled years on in 2006 and under the thinly vieiled impression that I was making progress, amongst the underlying aches, feelings of exhaustion and unrefreshing sleep, I had the misfortune of breaking my ankle and was in hospital for 12 days full of drugs, had an operation to put 7 screws plus a metal plate in my ankle and was incapacitated for 5-6 months being almost totally dependant on other people for the early stages. This made thing much worse as the only breath of fresh air I could 100% rely on at that stage in my life was the gym and football, which even though they worsened the exhaustion and had me sore for days made me feel normal.
The killer blow was just as I was getting back on my feet I was scheduled to go on a party holiday with my girlfriend to Benidorm which, because I was still stubbornly hiding these mass of problems from everyone put a smile and boarded the plane. Big mistake number two and after a nearly a week of trying to drink cheap vodka to feel normal I had no option but to come clean and told her I thought I needed some help.
I was straight off the plane and into the doctors, where they prescibed me Prozac because it was an "energising SSRI" and I would get multiple benefits. I had a complete aversion to taking these sort of tablets from the first episode but by now was to exhausted to reason against it along with the convincing sales pitch put forward by the doctor and along came mistake number 3. During my year on Prozac I went back to the doctor many times explaining how sick and isolated I felt but was told it was normal and that I should continue. In fact sick and isolated did not even touch the surface but I was still in stubborn, male pride denial stage and due to this all social life and other activities stopped as I was just scraping through work(construction)then sleeping. By now I had wised up and started doing my homework on the internet to see what exactly I was taking and what side effects it had, as I was still blaming myself for the way I felt at this stage and had felt suicidal at one point. I was horrified to read about
what I was on and set myself a very slow weaning off program about
a year after starting and 8 terrible weeks later I was free from them, but not all of the side effects.
That was August 2007 nearly a year on I have quit a night class I was doing training to be a gas engineer, I barely manage work with alot of time on the sick, am a pretty bad insomniac(I blame the aches/pains), my social life is pretty much non existant, my relationship is strained sometimes even though I am fortunate to have a partner who loves me unconditionally and cannot tolerate many forms of excersise which was my only way out. I had immediatley changed to a much healthier diet during the latter stages of the Prozac and continue that to this day, supplementing with multi vitamins and minerals to no real avail and feel extremely trapped, especially after many more trips to the doctors after changing surgerys and being told I just need sleep and being offered Diazepam countless times.
I have pushed countless times, after being to see holistic/behavior/homeopathic therapists to have my adrenals tested but have been fobbed off although I have had most bloodwork tests done and all come back apparently normal.
Coming back to a point I mentioned earlier which dawned on me when reminded by my mother was that I was a pretty sickly as a child and had quite severe asthma and exczema which they thought was going to be a life long ailment. At the point of about
8 years old my mother took me to see a homeopath after years of ill health, she prescibed mega doses of sulphur and amazingly both asthma and exczema both dissapeared within a year or so. This was great but during my highschool years I suffered from crippling migrains which sometimes lasted for days and discontinued my homeopathic treatment as I became more interested in girls and partys. I have always been extremely active socially and sportingly just seem to get struck down with these things, I just think it is important to take my earlier years into consideration so as not to think I have never been ill so to speak.
This brings us to the present day and I am sitting here writing this after going into work and coming home after an hour because I feel so bad. I have done extremely well to get this far in my quest for help in such a short space of time and have only just started to give myself credit for that, but have tried everything from accupunctue, herbal medicine, massage, blood tests, x rays, cognitive therapy, homeopathy and still feel nothing has touched my "mystery illness", which is why I have turned to Bio-Vitality(24hr cortisol and full hormone profile)as my last resort.
I am extremely sorry for the long sob story but I have no option but to ask you what you think I should do to progress from here, as I am 24 years old and feel like I am in some sort of coccoon on groundhog day and refuse to give up hope of feeling better, which is quite easy from one point of view because I can't feel much worse.
I do feel and have felt all the way through even the worst times that it is something simple that will be the answer, and feel hormones especially adrenally centered hormones and maybe thyroid could be to blame, but I am not putting all my eggs in one basket yet as I have thought "this is it!" before.
I am in a bad way now, feel like there is no help available and my family do not understand at all really. I am on the sick from work for the fifth time this(rolling) year now and know time off is not going to make me better. My insomnia is pretty bad now which isn't helping and to top it all off I have developed an abcess in my tooth which is draining me even more. I have to laugh as i'm writing this, what a mess but really its no joke I cant do anything and most minutes of most days are tortue as I hate the dissasociation or detatchment from reality feeling which is almost constant and the tension in my body is like a nuclear power station waiting to explode. I in fact recently had a session with my oesteopath who tries to tune into peoples energies, he put his hands on my head and passed out!!
I am a very driven person, very ambitious, pretty intense(which I dont doubt has not helped) and will fight this untill the end, but as this illness has progressed I have cut most stressors out of my life, drinking, I dont smoke, dont take drugs and am pretty healthy, have a lovely understanding girlfriend and a lovely house, yet I am getting steadily worse. I do not regenerate or refresh with rest and I feel I am missing out on the best years of my life for no tangible reason!!
If you've taken the time to read to here I salute you, thanks for your time, I just hope these test results from Bio-Vitality(that I had to pay £300 myself as the NHS refused to help) show something or I dont know what to do. By the way i'm male and in the UK, any ideas suggestions greatly appreciated.