Posted 7/17/2008 9:41 AM (GMT -7)
Hi Shelter- Thanks for your response. I can relate a lot to what you are saying....forcing yourself to go to work, even though you feel horrible. I'm sorry you are feeling so poor.....but I sure can relate!

I've been seeing a Naturopath since December. I'm not sure she was much help though. She put me on a bunch of different supplements, but I don't feel any better.
I've heard a lot about candida and leaky gut too...I've tried to address both with taking a round of caprylic acid, I took something called Saccharomycin DF, which was prescribed by the Naturopath to establish good bacteria back to the gut, and I also drink grapefruit seed extract which is supposed to be a natural ant-fungal. I'm still not feeling any better. In fact, sometimes I feel like I've gotten worse!

I try my best to eat a good diet too...nothing seems to help!
What kinds of detoxing have you tried?

I feel totally run-down too. I haven't gone into work for 3 days now. It's a combination of overwhelming fatigue, nausea (I forgot to mention that, I get really nauseous for no reason too,) feeling groggy, brain fogged, just plain yuck!

Have you looked into hormones at all? I think that might be the next thing I look into...getting all my hormones checked. My hair has been falling out more then normal and I heard that could be from hormone imbalance.

Thanks for you response and support. My husband really doesn't get it...he looks at me and doesn't see anything wrong, so he doesn't understand what I feel like on the inside. It is so extremely frustrating!
Posted 7/18/2008 5:04 AM (GMT -7)
GOOD Morning
just thought I'd see how you are doing,

Detoxing- Something called first cleanse -0 works for people, but I tried it & my own body VIOLENTLY opposed.... I could not put up with that kind of pain sweats,.. screaming pain... thought I was dying type pain

sooo that didn't work for me

My dietician/ who is also my reflexologist
that I take 3 weeks
eat only fresh fruit & vegetables, Dietary supplement " ******* powder" ( added to water/ soy beverage)

protein, bread, starches, sugars, coffee, and all dairy

she said around day 5-6 the toxins begin to leave your body & you might really really cranky ofr 2-3 days... but BUT then
you will fell this energy come to you

after 3 weeks there are some foods you will re introduces

So I have put off doing this- the idea of no coffee. freaked me out
no yogurt ahhh i'm not sure I can give that up
thats my breakfast

and now I hardly eat veggies & fruit - I mean i do eat them through the week, but like the amount i should ; we are strapped for money
and energy so I know we need to be more vigelent about eating healthy
so i buy fruit & let hubby & kids eat it

and i have... neglected myself for years

now Im sick with a lot of things
was called last night by my doctors nurse, from HOME!!!!!

saying my dr had Friday off, but wanted to see me because of the test results of my last pap
i have had 3 this month... something si going on
and i feel swelled...
I feel bogged
and im sure something is up

and now im concerned, worried, yep even scared
They that wait upon the Lord shall renew their Strength, they shall mount up on wings as eagles, they shall run & not grow weary, they shall walk & not faint..."  Ish   40 v. 31 
Sjrogrens Syndrome, Asthema, Chronic Fatigue, Chronic Pain, Head aches, Migraines, Gastro Intestinal Problems , Esophegial Spasms;   Fibro Myalgia , Kidney Stones,  & CP (SI joint,   low mechanical back pain..L4 & L5 Vertebrae Misaligned,  Spinal Stenosis and Degenerative Disc Disease, Bulging Disc, anterolisthesis L4 L5L4 -- S1 pain  caused by osteoarthristis ,bone spurs, causing pinching or pressure on spinal chord)

Posted 7/21/2008 6:32 PM (GMT -7)
Hi Krista -
All your symptoms sound like my first round of CFS.  I was diagnosed at 16 and have been living with CFS for 16 years. 
Brace yourself for bad news first - according to the CDC only 5-10% of people with CFS ever totally recover and have no relapses.  One survey showed only about 20% work full time.  It is very debilitating and very real.
I understand what you mean about your husband.  I am currently having a minor relapse and he just doesn't seem to get it.  He wasn't around the first time when I was really sick - I sleep 20 hours per He's only known me for the last 6 years during which I've done pretty well.  I had one other minor relapse in that time, but corrected my life pretty quickly.
What helped me the first time round was a medication called Florinef.  That was for low Blood pressure though and if you have high blood pressure, probably not an option for you.  Another thing that helped was that my doctore (who I didn't like at the time) told me to stop sleeping so much.  She told me not to sleep more than 10 hours per day.  I also SLOWLY started being more active.  At first I would walk down the block and have to stop and literally hug a tree until the dizziness passed.  The key is to take it easy and not push yourself to hard.  This is something the CDC website also recommends for CFS patients.
My biggest advice would be to make sure you have a doctor you like and can talk to and who know something or is willing to learn something about CFS.  I had a second doc who was super and when my mom brought him an article about the latest treatment for CFS at the time he was willing to give it a go and that was what helped me in addition to increasing my stamina through slow, easy activity.
I also recommend looking at your life and REDUCING STRESS.  Stress, physical or emotional has been linked to CFS.  Whenever I try to push myself too far physically for too long or emtionally, that's when I start to relapse.  Take a look at your life and work on fixing anything that causes you stress.  If you feel there is a lot of stress, it might not hurt to talk to a counselor, just to have someone you can talk to who is unbiased and who will listen to you and maybe help you find ways to reduce stress.
I don't know about all the alternative treatments.  I recommend stress reduction and slow exercise before you put anything else in your body.  Also, be aware that you may never be back to "normal" and that you may always have to take it a little easier than other people do or they think you need to.  Focus on how you feel.  Listen to your body - you're the only one inside it that can know what you're really feeling.
Good luck. 
Posted 8/4/2008 12:12 PM (GMT -7)
Every symptom I read in this string, including Sjorgen's and CFS, can be caused by a poorly functioning thyroid gland, called hypothyroidism. I know because I have the fatigue, shortness of breath, tightness in the lungs, obstruction in the throat, digestive problems, etc.

I was diagnosed with hypothyroidism recently and all of my symptoms appear to be slowly improving with treatment.

Have bloodwork done to check your thyroid levels. It's SOOOO important to do so that you can either rule it out as a factor or get the appropriate treatment. But the bloodwork must include checking for thyroid antibodies (some doctors don't check for this).

You can even try a simple home test first. Just get a regular (not digital) thermometer, keep it by your bedside, then when you wake up in the AM put it under your armpit for 10 minutes. If your temperature is below 97.8 for 2 or more mornings, it's a strong sign of hypothyroidism.

Hope this helps.

Posted 8/5/2008 2:22 PM (GMT -7)
Hi Krista! Please see me reply to Judilyn's copied post "Help - trouble getting diagnosis". I sincerely hope that there is something in there that may be of help to you. I can and do "relate"! Also, see my "Rheumy test results" post over in the fibrmyalgia forum for more info.

Gentlest of hugs,

John (53)
Dx'd June 2008 with Fibromyalgia & CFS  possibly caused by chronic Epstein-Barr virus (many years of ongoing symptoms.....recently worsening)......also, previously dx'd sleep apnea, high blood pressure, hypothyroid, low testosterone, high cholesterol, heart arrythmia & headaches (all types)
Several meds too numerous to list or remember!

Post Edited (jev) : 8/5/2008 3:27:12 PM (GMT-6)

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