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Multiple symptoms with no answers

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Chronic Fatigue Syndrome
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dizzytoooften
New Member
Joined : Jul 2008
Posts : 3
Posted 7/23/2008 7:33 PM (GMT -6)
I have chronic "episodes".  They come and go none for days even weeks then several in a day for days in a row.  Started 8 years ago after last child but are getting more intense and frequent.  An episode consists of:  a warming feeling starting in the chest, moves up the throat to the mouth.  Mouth gets a metallic taste and vision begins to blurr.  I get a feeling of either needing to vomit or have a bowel movement.  Episodes lasts anywhere from 10-60 seconds.  Seen multiple doctors in multiple states. Have had an EKG, head CT, EchoCardio, Stress test, all blood tests including allergy.  Tracked my food and blood sugar for 30 days and didn't uncover anything.  All tests were a pass.  Don't drink too much caffine (1-2 diet cokes per day) but mostly water.  Exercise regularly for the past 6 months and changed my eating habits over the past 3 months.  Much healthier habits but symptoms haven't changed.

 

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LuckyStar01
Regular Member
Joined : Mar 2008
Posts : 54
Posted 7/23/2008 10:43 PM (GMT -6)
I understand your frustration. It took me 12 years to get a diagnosis. I ended up taking out a
loan and going to the Mayo Clinic in Rochester MN - I came home with 4 diagnosis. I know what I
have now but it seems that I still have mystery symptoms from time to time.

Hang in there maybe you can e-mail the physicians at the Mayo Clinic with your symptoms and they can give
can point you in a direction.

Good Luck and hang in there.
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TAS75
New Member
Joined : Jul 2008
Posts : 3
Posted 7/24/2008 8:06 AM (GMT -6)
Got the same feeling for the past three months . Driving me nuts. Hope we get some answers . I also get pain in my neck, shoulders, arms, upper back and under arms sometimes now its stabbing pains in my chest. Anyone else feel this way
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LF1980
Regular Member
Joined : Jul 2008
Posts : 78
Posted 7/25/2008 1:50 PM (GMT -6)

If you want to really find out what's wrong you should see Dr. Fein in West Caldwell, NJ. After seeing 10 other doctors she figured out what was wrong with me. Good luck.

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dizzytoooften
New Member
Joined : Jul 2008
Posts : 3
Posted 7/25/2008 3:46 PM (GMT -6)
Thanks LF1980 - what type of physician is Dr. Fein?
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LF1980
Regular Member
Joined : Jul 2008
Posts : 78
Posted 7/25/2008 3:59 PM (GMT -6)
She is an internist, reumotologist, and lyme disease EXPERT. She has written books, been on tv, etc. Even if its not lyme - she will find out what it is.
My symptoms were extreme dizziness, overwhelming fatigue, migrating pains, severe headache, chest pain, shortness of breath, it goes on and on.
Are you near NJ - if so you should go see her. She is one of the most amazing people I have ever met.

Please check out this documentry if you can - www.underourskin.com - see the you tube version.

Also, if I can help you in anyway, please email me at lauradghrs@hotmail.com.

There is no reason any of us should have to suffer. Fein will figure it out. I was on my death bed and she turned me around where I am starting to enjoy life again.
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dizzytoooften
New Member
Joined : Jul 2008
Posts : 3
Posted 7/25/2008 7:33 PM (GMT -6)
Thank you, thank you very much. I will contact you directly. I actually live in Orlando but have the means to go whereever I need to resolve this issue - it is worth it to me.
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LF1980
Regular Member
Joined : Jul 2008
Posts : 78
Posted 7/25/2008 7:51 PM (GMT -6)
Please do, I know the feeling, you will do ANYTHING to get better. and you might just have to. If you get to NJ, I will take you to the doctor. or I will give the email of my doctor so you can email her and ask for a doctor she can recommend in your area. Let me know. Happy to help.
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