Plz share the experience

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Regular Member

Date Joined Jun 2008
Total Posts : 63
   Posted 7/25/2008 9:19 AM (GMT -6)   
Can somebody from their own experience answer the following questions (with respect to CFS/Fibro)
1. What is fatigue? Is it all about feeling sleepy during the day (constant yawning)..can somebody give an example of how debilitating the fatigu could be
2. Does the muscle/joint pain move around..i.e., sometimes here and sometimes there
3. What tests need to be taken before being diagnosed as CFS/fibro
4. Is there any medicine to treat fatigue??
Thanx.....plz reply....

Veteran Member

Date Joined Jul 2005
Total Posts : 5403
   Posted 7/25/2008 10:28 AM (GMT -6)   
Raiden, I'll try to answer some of your questions.

1. Fatigue: The fatigue that goes along with CFS is not the normal tired that healthy people feel. The CFS tired goes beyond the sleepy, yawning feeling to an overwhelming whole body fatigue where your body feels like it just does not even have the energy to function and no amount of sleep can make it better. THe fatigue is so bad some days that just getting out of bed is a huge accomplishment for the day. Some days I lie in bed after waking up and wonder how I am going to have the energy to sit up in bed, let alone, put me feet down and stand up.

2. muscle/joint pain: Yes, the muscle and joint pain can move around with CFS and fibro. I don't know as much about fibro since I don't have it, but I've heard from othe people with fibro that the pain does move around. I also have lupus and with that, I always have joint pain in the same places.

3. Tests: Doctors should check for all kind so things before giving a cfs or fibro diagnosis. Some things that come to mind are thyroid, lyme disease, all autoimmune diseases such as lupus and other connective tissue diseases. I'm sure there are other things to be tested for, but these are some of the main ones that come to mind.

4. Meds: sadly there aren't a lot of meds used to treat cfs - there are some that I have read about for fibro. I read that this year a med called lyrica was approved for fibro - I think it helps with getting good quality of sleep and also helps some with the pain. I have also read that a lot of people with cfs have low levels of cortisol and if those are replaced with meds then some of the energy returns. I have also read that some people with cfs are trying anti viral meds like Valtrex and it is helping some people.

I hope this helps some. Let me know if you have any other questions.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; UC 2008; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears



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Regular Member

Date Joined Jun 2008
Total Posts : 63
   Posted 7/25/2008 12:30 PM (GMT -6)   
many many thanx for such a very good reply....looks like I am on my way to CFS...:).... I can't sleep in a row for a long time (2-3) hours....and I keep on yawning the whole day until its the evening I go out for a walk+run (10 KM)..I have also got mild muscle and joint pain moving all around the body...
I am in such a country that doctors dont even know the name of CFS....I have got the following questions...would be grateful to receive any early reply:
1. Does CFS people feel fatigued all the time or a certain time of the day
2. How worse is the muscle and joint pain? because in my case sometimes it in the thighs sometimes it is in the arms and sometimes in the bones, sometimes in the joints:(....
3. As I heard, you gotta have at least 4 other symptoms along with fatigue to diagnose as CFS..what are yours?
4. Does the fatigue condition worsen over time? I mean does it ever leave and come back later with even worse look?

Regular Member

Date Joined Jun 2008
Total Posts : 63
   Posted 7/25/2008 12:36 PM (GMT -6)   
I have heard of Marshall Protcol....have you tried it?
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