Ideas for living with CF?

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Veteran Member

Date Joined Jul 2008
Total Posts : 2317
   Posted 8/16/2008 10:08 AM (GMT -6)   
Hi all!
I'm new here. I have had Chronic Pain for a number of years, but was only recently diagnosed with Chronic Fatigue. It's so severe that I have to get dressed in stages because I get so exhausted by even the slightest activity. I need to take a lot of breaks, otherwise my legs just keep feeling heavier & heavier until finally they give out. I'm trying to adjust to the slower pace, but am having a pretty difficult time so far.

I've been trying to read through the posts to look for ideas, but am really struggling. Maybe could someone suggest some to look at or share some ideas with me about how to start getting my strength back & getting my life back on track? Also, if you all have any "tricks" for getting basic personal care & household chores done, I would really appreciate it. :)

I know there aren't any quick fixes; I just want to be headed in the right direction.

do not reply with any magical cures. I don't care who approved them, who's about to approve them or what their website claims about how half the world's population was helped. I'm not ready to go that route. If I change my mind, I know how to find all the posts about those ideas, so I don't need to be reminded. Thank you for respecting this request.

For the rest of you who are following a more traditional treatment/management route, anything you can suggest would be much appreciated. I'm trying to figure out all these foods & activity ratios & stuff, but I'm so drained I can hardly focus.

Thanks a million for any advice!

Regular Member

Date Joined Jun 2008
Total Posts : 30
   Posted 8/20/2008 7:56 PM (GMT -6)   
hello frances, this sounds all too familiar to me. i too have great difficulty in all basic personal care and household chores. If i did them all i would have no energy at all left. I would also be a quivering wreck on the floor.
I have employed my mum to do the housework (i wouldn't like a stranger knowing too much about me and my illness) not to mention it is nice to spend time with her.
As for my personal care - it would be a full time job to do it all each day so i have been forced to make sacrifices. If i bath or shower i am unable to shave and wash hair and if i do the others i have to make do with a 'cats lick' (as my nan would call it) with baby wipes. (while seated) Even teeth brushing is exhausting.
This is really embarrasing to admit to but this illness has reduced to to it.
I also found that i could wash if i sat in a chair covered in a towel, with my feet in a bowl (soap and flannel to hand)
It also ttakes me around 45 minutes to dress - so youre not alone friend.
If you need to talk - im here
You take good care
Tree cool
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