I think snohare was just joking about "pensioner". (old people sleep all day???) And yes, btw is 'by the way'. It's so easy to use all kinds of those...acronyms?...abbreviations, but I know a lot of people don't know them. I don't know very many myself, although I do seem to pick them up along the way.
I'm glad to hear you have such a good grasp on your own illness and treatment. It's unfortunate we are at a place in society, in history, which previous societies have not had to explore. Only those of us who have the courage, and intelligence and raging desire to be well, do well with their treatment. You know, I don't mean to sound judgemental, but there are plenty of people who can't understand science and medicine, who MUST depend on their Drs to take care of them. And I KNOW, I K-N-O-W how the great majority of them are treated by their Drs, and I KNOW that should be malpractice, if not criminal. I'm just waiting to connect with an attorney who has the guts to stand up to the system and who has what it takes to get a Dr either indicted or found guilty of malpractice, for not treating their patient's pain or other symptoms. But, forgive me, I rant!
Anyway, I know you'll do fine with the psychiatrist. You clearly are in control of your treatment!
When you first mentioned your legs hurt at night, the first thing I thought was RLS. But I was so unsure if your other issues might be more important...for you. But as I said, I realize now you are in control! The only med I've ever heard mentioned for RLS is Klonopin! And I didn't realize you were already taking it for the RLS. I thought you were taking it for the anxiety! Well, it could be a simple as taking a little higher dose.
Or...have you ever had a sleep study done? Your Dr would have to order it, and basically, you go to sleep in the sleep lab for 3 to 5 nights in a row. You get hooked up to all kinds of monitors, especially brain wave monitors--I think you like wear a cap full of electrodes. Like, have you ever had a...what's it called...EEG? Electroencephalogram? I think that's it. Anyway, sometimes if you've had a head injury with lingering symptoms, they do that. Well, plus I'm sure they have lots of reasons, but that was why I had one! Anyway, they collect all this info while you sleep, and later use it to analyze your brain waves and other things to determine if you have any patterns that fit with known sleep disorders. There are treatments for some of them, although I don't know what they are. So it's just an idea.
Oh, I so agree that writing on message boards is helpful. It's been just SO valuable to me in my--I call it my illness journey. I don't know exactly why, but I seem to be attracted to Drs who later treat me badly. Well, attracted isn't quite the right word. I guess maybe it's bad luck, or maybe I just expect too much, I don't know. Anyway, the ability to vent myself into some semblance of peace, helps me regain my center and decide which step to take next. Plus I like to think sharing my experiences is helpful for others in my situation.
Ok, well hang in there and good luck at Dr appt. Take care.
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