Does this sound like CFS?

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Regular Member

Date Joined Oct 2008
Total Posts : 46
   Posted 1/9/2009 9:06 PM (GMT -6)   
My main problem is my Legs. Very sore and stiff. Latley I realy have a very hard time to walk. Because of the stiffness and muscle pain.  Always worse in the morning getting out of bed. I have to hold on to things to get around.  I have a constant headache and sore throat. I'm always being teased at work on how poor my memory is. And I can't seem to consintrate very well. My lower back and arms have begun to hurt as well latley also. Very wore out and tired all the time, run down. I am going to see a rheumy on Thursday. Hopefully we can find some answers.

Post Edited (soxx) : 1/10/2009 8:14:10 AM (GMT-7)

Veteran Member

Date Joined Jun 2008
Total Posts : 730
   Posted 1/22/2009 2:44 AM (GMT -6)   
How did you Rheumy appointment go?  Did you figure anything out?  Hugs, denise

 I have:  Fibromyalgia, CFS, Holt-Oram Syndrome, nasal allergies, depression, TMJ

Meds: Ibuprofen 600mg every 4-6 hours, Cyclobenzaprine 10 mg, Simvastatin 20mg, Citaloram 20mg Melatonin 5mg Sublingual, B12 sublingual, B Complex, Folic Acid, Omega 3

Married to a wonderful supportive husband & between us we have 4 children & 7 grandchildren

As apples of gold in silver carvings is a word spoken at the right time for it.    Prov. 25:11

Regular Member

Date Joined Jul 2007
Total Posts : 296
   Posted 1/25/2009 6:54 AM (GMT -6)   
Sound like possible Lyme disease. They thought my daughter had CFS and it turned out to be Lyme and Bartonella. Turns out she had undiagnosed Lyme for 7 years. Go on the Lyme forum here and ask for a dr rec that is an LLMD (Lyme Literate Med Dr) in your area.

New Member

Date Joined Jan 2009
Total Posts : 2
   Posted 1/30/2009 11:40 AM (GMT -6)   
You may also want to check out your adrenal gland for adrenal fatigue. Your symptoms are similar to that. God bless.

New Member

Date Joined Feb 2009
Total Posts : 16
   Posted 2/2/2009 11:49 PM (GMT -6)   
I've just found this forum and I noticed your blog. Have you had success in finding what's wrong? Did you consider fibromyalgia? I too have bouts of leg pain that worsens with exercise - in fact I end up in bed... so I'd like to know what you found out. Thanks!

Regular Member

Date Joined Oct 2008
Total Posts : 46
   Posted 2/4/2009 6:26 PM (GMT -6)   
My legs and feet had swelled up which was putting a lot of presure on them and causing them to hurt. My Doctor gave me some water pills to releive the swelling which is working the swelling is going down a quite a bit but not gone yet. The pain has gone down a quite a bit also. Now we are trying to find out what caused the swelling.

New Member

Date Joined Feb 2009
Total Posts : 16
   Posted 2/9/2009 8:13 PM (GMT -6)   
Sounds like you've been miserable. Did you consider fibromyalgia? I'm just learning myself, but go into the Fibromyalgia forum and learn there. There's so much informaiton about both CFS / Fibro on this site and so much on the internet.

What did the Rheum. Dr. Say?


Regular Member

Date Joined Jul 2008
Total Posts : 78
   Posted 3/11/2009 8:36 PM (GMT -6)   

Sounds like Lyme disease. Please try to see an lyme literate doctor.  Let me know if you need the name of a great lyme doctor in your area. If you have been tested for lyme please know that the tests are unsophisticated and only pick up a handful of strains when there are hundreds.

You should not have to live like this. Please let me know if I can help.

good luck.

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