This is something I wrote up on the Fibro forum. There's so much in common - Lyme, CFS, Fibro.
"Oh wow Guess .... if it might by Lyme or Fibro, you are in the Land of Uncertainty. I'll let the fibro people talk about
what I think is a process of elimination for the fibro diagnosis. But diagnosis of Lyme could take a while and has its own problems. Many people with Lyme never test positive on a blood test. It is primarily a clinical diagnosis. The lab tests are just additional information. Has your Dr. seen tick borne diseases before? It sounds like he has since he is considering Lyme. There are also coinfections that many people get along with Lyme.
We are used to tests where it's like .... it came back blue so it's 99% likely I have it. Lyme testing is not like that. And there is controversy over what it takes for a Lyme diagnosis if something shows up on the tests. Rather than overinformation you all at once, let me post this link:
A lot of information from a leading lab for Lyme testing. If it is Lyme - there is a bacteria involved and you'll want to get it treated to keep it from getting worse. And there is hope that we'll improve some with treatment. And if you even think you might have Lyme, please consider having testing done at IgeneX
Probably it's best to start adjusting your thinking from days to months. The lab work from Igenex takes a while to get the antibdody response and takes like 4 weeks. I understand about
the life not working well. As you get into this, please post if you have questions about
Lyme and we can try to help. It's overwhelming. There is also a really good Lyme forum too that you might check out.
And please be careful with the driving. At least for the time being I've given it up completely. Please ask for help from your Dr. or a therapist if you need it. Anxiety and depression are common visitors to people with Lyme or fibro."
Just my opinion, but with a history of tick bites and the CFS/ Fibro symptoms you show, I feel you should consult a Dr. who has seen tick borne diseases before. I suggest not letting a well meaning Family Practice person tell you, "Can't be" or "we don't have Lyme here" or "we'll do a lab test to rule it out."
I'm not presenting the link above as "proof" of what's happening with your exercise intolerance. It's just a possible explanation and the only thing I've ever found that attempts to explain it. If you've had Lyme for a while, you may have a coinfection from the tick bite. With a weakened immune system you could also have an opportunistic infection such as CPn.
It's hard to say when i got Lyme, but the only tick bites I'm aware of were in TX in mid 1970's. The fatigue, fog and exercise intolerance really became a problem 3 yrs ago. I was diagnosed in Dec.
Hope some of this helps. The exersice intolerance seems so mysterious.
Lyme, anxitey, depression, chronic C. Pnuemoniae
"... expect the unexpected ..." (O. Wilde)
"I am an old man and have known a great many troubles, but most of them never happened." (Mark Twain)