ARNP = Nurse Practitioner first line family practice person.
From reading I've done, the typical person with Lyme sees 5 medical people before a diagnosis. In all fairness, first line practitioners are used to responding and treating the more common, specific things. The problem with Lyme, CFS and Fibro is that they are non-specific. It's hard to isolate the cause or causes of "I don't fell well". A lot of times the first line people get frustrated, run out of ideas, and chalk it up to depression. Often Lyme patients are referred psychiatrists.
I think it would be worthwhile to find a Dr. who works extensively with CFS and Fibro patients. Ask your family practice person for a referral, ask around at work, do an internet search for Fatigue and Fibro support groups in your area. In the Lyme field, the Drs are know as LLMD - Lyme Literate MDs. You can also ask on these boards - giving your area of the country or city. Dr's names aren't posted on the boards but people can pm you.
I think it's well worth your time to contact a Dr who has seen a lot of cases of CFS, Fibro, or Lyme. They know what to look for.
For the IgeneX test, there is a kit you can get from them. It's basically two tubes for blood samples with foam packing. The samples are shipped by FedEx and do not need to be refrigerated. However, they are supposed to get to the lab (Palo Alto) withing two days - so no sitting around over a weekend. IgeneX recommends having the blood drawn on Mon, Tues or Wed for that reason. I go to a CFS/ Fibro Dr - it's no coincidence that she keeps kits in her office. In the course of doing CFS/ Fibro work, she has seen about 20 cases of Lyme I think.
The problem with these conditions is that they affect multiple body systems and therefore can present a whole variety of symptoms. Lyme is called the "great imitator" cause it can look like CFS, Fibro, ALS, MS, Lupus, visual problems - all sorts of things. That's why so many symptoms are listed. The bacteria are spirochetes and could basically show up anywhere in the body. Thankfully most of us don't have all the symptoms.
My Lyme syptoms are similar to yours. Exercise intolerance, fatigue, brain fog. I don't have the muscle and joint pain (thankfully) but I do have memory and concentration problems, anxiety and depression. I think these are not uncommon.
I can relate to your situation. I hope you can link up with the right medical person. This will probably take some patience and persistence on your part. Hang in there, Tracy.
Lyme, anxitey, depression, chronic C. Pnuemoniae
"... expect the unexpected ..." (O. Wilde)
"I am an old man and have known a great many troubles, but most of them never happened." (Mark Twain)