Hi Tracy, as Rich has said so well, you do need a Dr who will listen to your symptoms & knows about CFS, Fibro & Lyme. I have found Dr's who who just want to hand you a pill & get you out of the room because they haven't a clue. When you make an appointment don't feel shy about asking if this Doctor has patients with these illnesses & is proactive in getting them the help they need. A diagnosis can take awhile but it will come eventually. Of course you will feel like a human pin cushion but that's the road we have to take. LOL I was dx'd with Fibro in 2004 after years of symptoms. Then in 2008 I also was dx'd with CFS. Looking back, it is the CFS symptoms I remember having for years. When I got the dx for Fibro I was told that fatigue was one of the symptoms, so I didn't question it, but after reading posts on forums & Fibro sites I realized my fatigue was more, especially since I also feel flulike with it, swollen glands, sore throat & more. I was able to go to my Doctor & tell her I thought there was something else wrong. So she sent me to a Rhuemy who dx'd me again with Fibro but also with CFS. Now, I feel there is something else going on. I have a few symptoms that don't fit with either of these dx's. So, once again I will go on the search. It's like the layers of an onion, peal away the Fibro, then the CFS & see what is left.
I wanted to let you know your symptoms could be one, two or more illnesses. I was told by a researcher in Auto Immune Diseases that even though CFS & Fibro are not AI diseases they are in the same catagory. As a researcher, he has found neither one of them ever stands alone. I have Fibro & CFS, my daughter has Fibro & 4 Auto Immune diseases. Don't be afraid but be pro-active in finding out what you have. Lyme Disease, I am finding, is so close in symptoms to what I have. So, you need a good Dr, just because someone has been to school & graduated & was given the right to treat patients, this doesn't make them good. Check around.
Yes, I found I am clumsier then normal & have to take things slower. As soon as I start rushing I drop & bang things around. It drives me crazy sometimes. I just have to slow down, I tell myself. Maybe some day I'll listen. I hope you find your answers. Hugs, Denise
I have: Fibromyalgia, ME/CFS, Holt-Oram Syndrome, nasal allergies, depression, TMJ,
Married to a wonderful supportive husband & between us we have 4 children & 7 grandchildren
As apples of gold in silver carvings is a word spoken at the right time for it. Prov. 25:11