Hi Denim. What are some of his other symptoms? You are absolutely right, we do have to figure it out for ourselves. Especially, it seems, if it is a long process in figuring it out. Doctors just don't seem to have the time & some just really don't care. I had already dx'd myself with Fibro & took the info to my Doctor but she had already figured it out. Then I was dx'd with CFS & now I am on the search because of some new symptoms that are unrelated to either of these dx's. I am so glad he has had so many tests done. CFS is a diagnosis of elimination. There are no tests that will say he has it, so the fact that everything comes back as normal is an indicator of CFS. Fibromyalgia also is a dx of elimination. One thing to keep in mind though, is that Auto Immune diseases can show as normal. More testing needs to be done if one of those is suspected. The road to a diagnosis can be a long & winding one, I hope you come here often, this is a good place to come & find answers & friendship & understanding. You might check out the Fibromyalgia forum as well because alot of people, about
half, with CFS also have Fibro. Hugs, Denise
I have: Fibromyalgia, ME/CFS, Holt-Oram Syndrome, nasal allergies, food allergies, depression, TMJ, anxiety
Married to a wonderful supportive husband & between us we have 4 children & 7 grandchildren
As apples of gold in silver carvings is a word spoken at the right time for it. Prov. 25:11