Fibro and CFS centers

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Veteran Member

Date Joined Sep 2008
Total Posts : 1120
   Posted 4/4/2009 5:39 PM (GMT -6)   
Hello everyone: I am in Dallas and they have centers here they call Fibro & Fatigue Centers. Apparently they have several located across the USA. I was wondering if anyone here has been to one of these centers that could give me their opinion. I guess from what I have read they check hormone levels, etc. looking for the reason for the fatigue. I am new here so if this has been discussed, I apologize.  Thanks so much  Dowa

Post Edited (Dowa) : 4/4/2009 4:43:52 PM (GMT-6)

Regular Member

Date Joined Jan 2009
Total Posts : 376
   Posted 4/5/2009 3:01 AM (GMT -6)   
Maybe I can provide some feedback about the approach.  The Dr. I go to for my Lyme Disease was a med. director of one of those centers - if it's the group I'm thinking of.  She has a small practice of her own now- just started a family and so maintains her own reduced schedule.   She works with CFS and Fibro patients.  Not surprisingly, in the course of doing that she has found a number of cases of Lyme Disease.
Her approach has been very comprehensive.  I was in bad shape with fatigue, exercise intolerance, and deteriorating psych condition when I found her.  It had been going on for several years.  She ran a whole battery of tests.  By looking at the "big picture" we found all kinds of things - extremely low DHEA, low cortisol, low iron, low folate etc.  It also turned up a marker band for Lyme.  Follow up testing confirmed Lyme Disease and also found a chronic C. Pneumoniae infection.
Before i went to her - well, I thought I had CFS that would just never be diagnosed.  Part of what she does is hormone balancing - which should improve sleep, help with depression and anxiety, boost the immune system, etc.
I haven't actually been to one of the centers so I really can't comment on that.  As far as the approach - without the comprehensive testing I'd still be in an endless loop and not be making any progress. 
Treating Lyme doesn't make you feel better in the short term.  The bacteria release toxins when they are killed.  So I don't feel "better" all the time yet.  I do like the approach and think I'm getting excellent care.  And a whole lot of support too.  My wife goes with me to my appts. and we both feel like this has been a Godsend.  I really think we're making progress on fighting the infections.
I know this doesn't directly answer your question, but I hope it helps.
Lyme, anxitey, depression, chronic C. Pnuemoniae
"... expect the unexpected ..."  (O. Wilde)
"I am an old man and have known a great many troubles, but most of them never happened." (Mark Twain)

Veteran Member

Date Joined Sep 2008
Total Posts : 1120
   Posted 4/5/2009 7:40 AM (GMT -6)   
Thank you Rich for your reply. Intersting as Lyme is one of my diagnosis. Good health to you. D

New Member

Date Joined Nov 2009
Total Posts : 1
   Posted 11/1/2009 8:14 AM (GMT -6)   
Dear Dowa:
I just returned from the Atlanta location, I am wondering if you went thru with the treatment and has it worked.  Have suffered with chronic fatigue for 8 years....goes away then comes back...since August of this year, haven't had but 4 good days.

Regular Member

Date Joined Feb 2007
Total Posts : 323
   Posted 11/14/2009 8:34 AM (GMT -6)   
Treatment there didn't work for me just made me sicker. They misdiagnosed me with cfs and fibro when I really had lyme disease.

I now see a doctor who treats my lyme and I'm so much better. I went to the Detroit clinic and they do not have a clue about lyme disease even tho they advertise that they treat lyme.

I spent so much money there for nothing! If you have cfs or fibro I suggest ruling out lyme disease by a doctor who is familiar with the chronic form of the illness. For info see the lyme disease section of this site.
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