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Help!!! Sleeping for days in a row!!

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Chronic Fatigue Syndrome
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Posted 4/13/2009 12:54 PM (GMT -8)
Just wondering if anyone can give some input on sleeping for days in a row... is there a certain doctor to see.. meds to possibly take.. any input would be great!
Here is what is going on: I will be doing ok.. pacing myself with doing things around my house and with the kids.. then WHAMO.. sleep.. I have to sleep and sleep NOW! It doesn't matter what time it is.. it can be 10am.. or 4pm.. but I have to lay down to take a nap. My naps use to be 3 hours then I could get up and do more things. Now it is go and take a nap.. and wake up 8 hours later!! This could be right after I have slept for 10 hours the night before! Then I am up for 2-3 hours.. but I am not even with it enough to take a shower...I sit in a chair and I am exhausted for the 2-3 hours until I have to go back to bed.. for another 10-12 hours! This will go on for 2-3 days in a row. Then I will be ok for about 5 days.. then it starts all over again.

I just want to sleep some kind of normal hours and have some kind of energy.. I am really starting to get down.. with no answers from my doctors (except the I have CFS & Fibro)..and my poor dear hubby.. I feel horrible for him.. with him working and then coming home and taking care of our 3 kids too. I just don't know what to do anymore and if anyone has some input that could help that would be great!
Thanks Everyone :)
Posted 4/14/2009 3:52 PM (GMT -8)
I have heard Provigil is a drug that helps you stay awake. I would ask your doctor about that to see if that may be a good drug for you. I have heard it doesn't help to much for energy though. I am waiting for that drug!
Posted 4/14/2009 11:09 PM (GMT -8)
Stacy, It sounds like you are in a CFS Flare. They can last days or weeks or months (sorry). I can't say for sure since I am not a Doctor. One thing I use is B 12 Sublingual. From all I have read this is the next best thing to B12 shots for energy. Since it is dissolved under the tongue it is in your blood stream within 15 minutes. Also, according to a study I read, it will stay in your system for 24 hours. It helps me to have that added boost of energy that I need everyday. Check with your Doctor & see if your Zoloft is in the category of antidepressant that has a sedating effect, my Dr took me off Paxil for that reason & put me on Celexa because it doesn't have this. Also, have you had your Vit D checked? There is a growing epidemic of Vit D deficiency & it can cause a myriad of symptoms including fatigue & sleepiness. I take a Vit D3 daily. Do any of your meds cause drowsiness? That would be a good place to start looking because we are very susceptible to these. If it says, may cause drowsiness, I can expect it to knock me out. LOL!!

I hope you can figure this out, it is so hard when no one wants to take you seriously & it is a serious thing. I can imagine how hard it is to have children to take care of. Fortunately for me, my kids were grown before I got sick. Very gentle hugs, Denise
Posted 5/9/2009 10:29 PM (GMT -8)
Hi Stacy

I have to take dextroamphetamine otherwise I would be in that situation always. When I get up I take 20mg sr, sit in my recliner for a couple of hours and then can do something. If I dont take it, I sit in the recliner for an hour or so and then back to bed for 4 hours. I have recently started taking ribose which I think is also helping. Wellbutrin is supposed to help.

love glen
Posted 5/25/2012 3:56 AM (GMT -8)
Hi, I have something...I call it the Demeter Syndrome.  Im fine then I will start to get sleepy over a few days then I will have 3-4 days when I sleep (which is about 72 hours ish) then I have a convalencance day when I am awake but feel like ****.  I can get up for toilet and I can eat (but not really prepare a meal).  This happens every other week and has been like this for over 20 years.  I have brought up 2 children on my own but in a sense they have been my carers.  Yes I sleep through birthdays, xmas, holidays too.  The closest I can see on the web is sleeping beauty syndrome but Im 49 years old and they say Im too regular to have K.L syndrome.  Its not always when I start to menstuate either it can happen at any point.  I think Ive been tested for CFS and have had loads of testing but nothing found.  Im off any meds at the moment.  Last one was Lithium.  Gonna book into a sleep clinic hopefully.  Im fed up with this and as my oldest is getting near leaving home I wonder who will help me to get a drink of water and stay on top of things when Im incapable?
Posted 6/12/2012 5:10 PM (GMT -8)
Have you been tested for narcolepsy also?
I read recently that in the early stages of CFIDS the tendency is to sleep a lot and feel exhausted but in later stage it is impossible to stay asleep.
I moved rapidly into the second stage and have not been able to sleep but perhaps 5 nights total in the past 15 years.
Without meds I would wake constantly and sleep lightly.
Posted 6/12/2012 5:15 PM (GMT -8)
Shiffs, what you describe does not sound typical of CFIDS so I wonder what else is going on?
I had a friend who had your symptoms and she also had really bad rash on her arms. I think she had severe food allergies and I believe in hindsight that she had celiac.
Celiac --even silent celiac--can cause severe vitamin and mineral deficiencies, which could lead to severe fatigue conditions.
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