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CFS Or something else........help please

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Chronic Fatigue Syndrome
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Posted 5/17/2009 6:14 AM (GMT -8)
Hi i am new here so bear with me please. For the past year i have been feeling really really tired all day and its getting worse. For the last six months i wake up tired spend all day yawning and for the last few months it seems my whole body aches. I awake with  achey knees and joints , some days my arms ache other days i have constant neck ache or something aches.  Its not just a tired feeling either its like i have no energy at all, at first wife thought i was being lazy lol.If i try anything like kicking a football or walking fast i get so out of breath really really easy, i also get a lot of indigestion. Seen Dr 3 times now not getting very far at moment. Any ideas.
Posted 5/17/2009 3:46 PM (GMT -8)
First, get tested for sleep apnea.  Yes, all those symptoms can be attributed to sleep apnea.  Not getting the proper sleep wreaks havoc with your entire system.  That's the best start for now.
Posted 5/25/2009 1:39 PM (GMT -8)

pezinuk said...
Hi i am new here so bear with me please. For the past year i have been feeling really really tired all day and its getting worse. For the last six months i wake up tired spend all day yawning and for the last few months it seems my whole body aches. I awake with achey knees and joints , some days my arms ache other days i have constant neck ache or something aches. Its not just a tired feeling either its like i have no energy at all, at first wife thought i was being lazy lol.If i try anything like kicking a football or walking fast i get so out of breath really really easy, i also get a lot of indigestion. Seen Dr 3 times now not getting very far at moment. Any ideas.

I had the same symptoms that began in 2004. I had a multitude of tests and nothing showed up. finally in 2007 I changed Dr.'s and on the first visit when I told him my symptoms he checked me for Hepatitis C and he hit it right on the head. I hurt all over, different places different times of the day. No energy at all. just getting a bath and getting dressed wears me out. Don't give up, have your Dr. check you for HepC . Also it may be Fibromyalgia which there are really no diagnostic tests to confirm. I am now in treatment and I take vitamins and I am on pain medication to help with the pain. good luck and may God bless.
Posted 6/17/2009 9:39 AM (GMT -8)
Hello,
Celiac disease can show its ugly head with some of those symptoms also.
Posted 7/27/2009 9:33 PM (GMT -8)
I am sure many things can cause this but those were my 1st symptoms of Lyme disease. You may want to look into that? There is a forum on here for that if you want to check it out.
Posted 7/28/2009 9:20 AM (GMT -8)
I agree with Amy C that Lyme should definitely be suspected. Hep C can be ruled out/in with standard blood tests. Lyme is a lot trickier as the standard tests done through LapCorp and Quest are generally agreed to be basically worthless. Too many false negatives. I would insist your doctor send your blood to Igenex for Lyme testing. Their tests aren't perfect, either, but are much more accurate. Lyme will absolutely cause those symptoms.

Amy C is also right that there is an excellent support group for Lyme on this site. It can be a bit overwhelming to read everyone's symptoms. Just remember that you WILL get better. You just have to figure out what you're up against first.

If you do have Lyme, there are several very good treatment options of late. Standard oral antibiotics are the MDs first choice, assuming you can find an MD who believes that Lyme actually exists and can cause chronic problems (believe it or not most highly educated MDs do NOT believe in a chronic form of the condition). Others have had excellent success using only natural treatments, like Cumanda and cat's claw. Again, this is all covered in the Lyme forum.

I'm glad that you reached out for help. My advice is to stay plugged into forums like this as you wrestle with your condition. For most patients, dealing with patronizing, condescending MDs makes life even harder. It's good to have support from people in the same boat as you.
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