Welcome to HealingWell and the CFS Forum!
I moved your other message, and you can find it under
"lainey -- your message". I was afraid it wouldn't be noticed where it was, at the end of the long discussion.
Oh absolutely you are not alone! But I can tell you that things will definitely change. You don't say how long you've had CFS, but that is the one thing that always remains the same for me--that things will always change!! LOL! At least that gets me through the most difficult times, that soon things will change. And the worse things are at the moment, the more chance they will change for the better!! Perhaps naive, but it gets me through!!
Do you have any particular symptoms that you're most frustrated with not changing? Maybe you can find a treatment for it or them? Just an idea.
Moderator for Chronic Pain forums and
Chronic Fatigue Syndrome forums