How are you?Further to what I wrote a few weeks ago, I now have an appointment to go to the hospital...in 17weeks!!! Its a long time to wait but i'm just pleased that I have been refered to someone who hopefully will be able to help.
i have now written all my symptoms down so when I go to the doctors I can tell them exactly what is wrong.I am worried that I will have to have lots of blood tests again,because I have a phobia of this.I suppose that the hospital doctors will want to start everything all over again, so if anyone has advice on the best way to deal with this phobia then I would love to hear it I dont mind injections,just blood tests I have also just gone back to work(last thurs) so i'm now trying to pace myself and not get so worn out.If needs be, I shall cut the hours I work.
I am really into finding out about cfs from books etc and feel more positive about the illness.I would like to say to people that if you are buying books about cfs,just be careful what you buy.I just got a book that told me that cfs sufferers lose their fingerprints??!! plus a variety of other wierd stuff that could really worry you if you have only just been diagnosed. Also I have learned that if you are lucky enough to have people around to talk to about your worries,then don't be afraid to,you will feel much better.
I feel that once you understand what the symptoms can be,then its not as scarey when you have a relapse.At the moment I'm trying to accept the illness,not fight against it,something I have been doing for the last 3 years.
ANYWAY..I think thats quite enough from me,got a bit carried away!!