There are lots of us suffering from strange conditions that get lumped under misnomers like "CFS, CFIDS, ME/CFS, ME, etc." Here in the US, the CDC still uses the frustrating moniker "CFS" while a push has been made by advocacy groups to start referring to it as "ME/CFS" to make the label more comparable to what's used overseas.
Regardless of the name, it SUCKS!! I've become increasingly convinced over the years that most cases have an immune basis. Many ME/CFS patients test positive for active infections with herpes viruses, particularly Epstein-Barr and HHV-6, but probably others. What's unknown is whether these infections come first or are acquired/reactivated with ease because the immune system is weak with other infections.
The best case scenario is to have a doctor willing to work with you to assess whether you have any ongoing, detectable infections like Epstein-Barr, Lyme, and so on. Unfortunately, at least here in the States, the vast majority of our MDs are entirely clueless, dismissive, condescending, rude and generally make patients feel even crazier than they already do!
If you don't have a good doctor over there, there are now at least half a dozen very impressive options for improving your immune system health, which will help your body fight any infections you might have. You have been sick for decades. It would only take about 6 months to figure out if you benefit from getting your immune system stronger. I would look into the following products in order:
-- Lauricidin - Developed by a researcher at Michigan State University. This is a concentrated form of lauric acid, the antimicrobial agent found in coconut milk. A quick Google search will reveal all of the things lauric acid is known to kill. The important thing is that it is good against a wide range of viruses, bacteria and even yeast, all of which can cause symptoms like yours.
-- Samento or other products made from the herb cat's claw. Broad spectrum antimicrobial that just works. Would go with Lauricidin first, myself.
-- Transfer factors - Immune messengers extracted from cow colostrum (first milk after giving birth) and chicken eggs. Lots of published research on the benefits of transfer factors for strengthening the immune system and fighting infections. I actually published a book on transfer factors a few years ago, with the second edition coming out a few months ago. I would add this only after several months on something like Lauricidin. Turning up immune activity can lead to some serious discomfort for a few weeks if you really do have active infections. Once your immune system is healthier, transfer factors are brilliant for keeping it healthy.
Not to ramble on too much, but I really do think it's worth trying six months of something like Lauricidin and seeing if your symptoms improve. If not, then that lessons the chances that you're are dealing with infections of some kind and/or a weakened immune system.
Hope this helps! Please keep writing so that we can keep giving you support!
Post Edited (isuckatcheckers) : 7/28/2009 12:00:06 PM (GMT-6)