meniere's disease

Hi I am new on here so I probably shouldn't be posting links but I just read you post. I help run a Meniere's Disease support group so I am in contact with people who have Meniere's every day. I have also lived through Meniere's. It nothing to do with crappy luck, there are reasons why you are experiencing these symptoms, but do remember that Meniere's isn't a "disease" as such - it is an idiopathic condition, meaning they don't know the cause or origin. I know this all sounds confusing but there is much you can do to help yourself, connected to your diet, lifestyle and immediate environment. Go here:www.menieres-help.com - you will find lots of info on how to take care of your body and keep the symptoms at bay.

Hi, and welcome to HW.

My dad has a long and difficult history with Menieres disease. As far as I know this is in no way a sexual disease, but rather its triggered by fluids in the middle ear- osmosis between tissue. When my dad had his first attack about 20 years ago they spent a month treating him as a stroke patient as he had no equilibrium, was unable to stand or walk and would vomit violently for hours. After many years of seeing various specialists he was diagnosed- and the first instruction he was given was to cut salt out of his diet, as sodium buildup in the inner ear fluids affects balance.

Although he eats virtually, totally salt free, and it HAS made a difference, he still gets attacks, but not nearly as often. Maybe once a year at the very most? However they can last from 10 days to 3 weeks in duration. During this time he cant eat as he vomits, cant walk (so pees in a bottle) and keeps his eyes shut, cos when they are open everything spins. He lies flat on his back and does not move a muscle, as any movement sets off more giddiness.

He has been put on various medications over the years but the most effective thing has been the depletion of salt intake.

I hope this is of some help to you- this is my personal experience, it doesnt mean thats the way it is for everyone. My dad's case is quite severe and he has really suffered- but he has also learned to manage the parts he can control.

All the best

Maz XX

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 Co-Moderator Anxiety & Panic- Depression

 

'He heals the broken hearted and binds up their wounds.' (Psalm 147:3)

-DX:Panic Disorder, Agoraphobia, CFS, Fibromyalgia, Chronic Sinusitis, TMJ, Endometriosis,PCOS, Reactive Arthritis, Anemia, Chemical/Noise/Light sensitivity, Trichotilomania, OCD, Seasonal Mood Disorder.

-Meds: Zoloft 150mg. Xanax 4mg. Prescription pain meds/anti inflammatories.

-Multiple surgeries- I bear the scars of my poor physical health.

-Age:29. AP first DX @ 10. Fibro etc DX @14.

 

 

His hearing isnt great, but he doesnt get non stop tinnitus, which is a blessing.

Maz XX

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 Co-Moderator Anxiety & Panic- Depression

 

'He heals the broken hearted and binds up their wounds.' (Psalm 147:3)

-DX:Panic Disorder, Agoraphobia, CFS, Fibromyalgia, Chronic Sinusitis, TMJ, Endometriosis,PCOS, Reactive Arthritis, Anemia, Chemical/Noise/Light sensitivity, Trichotilomania, OCD, Seasonal Mood Disorder.

-Meds: Zoloft 150mg. Xanax 4mg. Prescription pain meds/anti inflammatories.

-Multiple surgeries- I bear the scars of my poor physical health.

-Age:29. AP first DX @ 10. Fibro etc DX @14.

 

 

i feel your pain i was messed up like that couldnt drive either for like a month was the worst my girlfriend thought i was messing with her good luck

i think i do have tinnitus (silence for me is not silent) but unfortunatley, the one symptom i dont have is dizzyness, except the odd time you get up too quickly.

how could fatigue be related to inner ear?? hmm

I also have both tinnitus and vertigo and vomiting although they haven't been linked together, by diagnosis, yet. I had all the hearing and balance tests, which showed no inner ear problems, I just had a endoscopy that showed ulcers and possibly Celiac and I am going to rehabilitation for the vertigo which my neuro-doc. is still researching. The right Dr. is sooo important with these oddball diseases that we get, if the Dr. that diagnosed you with Meniere's didn't or wouldn't explain it to you, get another Dr. I had that with the EBV, the doc. who diagnosed wouldn't even See me, let alone explain what it was, I had to look it up on the web and that is not acceptable. Keep in touch.

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Crainiotomy Lg. Meningioma Dec.02, Bi-Polar 2004, SMI 06, Gluten/Wheat/Dairy Intolerance, IBS 06, Migraines w/pseudo-seizures 07, Dev. Septum Sur. Sept.07, 2nd Men./Tumor Gamma Knife Rad. Dec.08, Radical Hysterectomy Sept.09 w/instant Menopause, Fibromyalgia 09, Disability since 09, EBV/CFS 11,Vomiting/Multiple Ulcers, Vertigo 12, Chronic Fatigue Moderator 2013.No meds list I ran out of space.