Posted 9/3/2009 2:11 AM (GMT -6)
Hi Kelli, I posted to you in my post. So, hi again. I have had Fibromyalgia for some time and have only been dx'd with ME/CFS since 2007. I knew I had something else going on beside the Fibro because of some symptoms that didn't fit with Fibro. For example, vertigo. Oh yes! I have vertigo quite often. Sometimes, it lasts for days & sometimes for months & right along with that comes it's constant companion, dizziness. Such a fun couple but I do like it when they leave. LOL I don't have any spots on my brain but I have scarring in my lungs & get that same answer you get: "you can have those with anything or nothing".
Yes, ME/CFS can cause pain & tingling in the muscles. Also, a lot of muscle fatigue & muscle exhaustion.
I have been through a bunch of tests too & most come up normal. When you are looking for a dx it is hard to have everything come back ok. I have such a mixed reaction to the news. happy it's ok but sad it is ok because I want to have a dx & get on with taking care of it. These illnesses can be a roller coaster.
The foot-drop, is that where your foot drops down when you are taking a step & kind of trips you? I can see where neurologist is concerned about that. It can go along with some auto-immune diseases so it is good your tests are coming back normal. It can also be attributed to other things that are not anything at all.
I hope you find a dx soon. It is no fun living in limbo. Take care, hugs, Denise
I have: Fibromyalgia-dx: 2004, ME/CFS-dx: 2006, Holt-Oram Syndrome dx'd 1975, nasal allergies, food allergies, depression, TMJ, anxiety
Married to a wonderful supportive husband & between us we have 4 children & 7 grandchildren
As apples of gold in silver carvings is a word spoken at the right time for it. Prov. 25:11