Virus linked to CF

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Regular Member

Date Joined Apr 2009
Total Posts : 179
   Posted 10/11/2009 2:08 PM (GMT -6)

Link between Chronic Fatigue and virus found.
V10.46 Dx Feb-09
RRP 5-5-09
No adverse SE
PSA 6-19-09 -0-
PSA 9-21-09 -0-
Thriving, not just surviving!

Regular Member

Date Joined Nov 2006
Total Posts : 51
   Posted 10/12/2009 11:10 PM (GMT -6)   
I think this is huge news. Not to get anyone's hopes up, but it's very promising, it seems to me. Thanks for posting (and to ruggedtoast for posting in the other thread). There are about 300 articles on this listed on Google news.

Regular Member

Date Joined Nov 2006
Total Posts : 51
   Posted 10/24/2009 2:20 AM (GMT -6)   
I am absolutely amazed that there has been no response at all on this forum regarding this stunning news.

It has generated dozens and dozens of comments from CFS sufferers in the NY Times, where two specialists have answered questions from readers. And it has been in dozens of newspapers.

New Member

Date Joined May 2009
Total Posts : 2
   Posted 12/13/2009 7:31 AM (GMT -6)   
Now I know why the psychiatric lobby say we maintain false illness beliefs and don’t want to get well.

The people in this group are not remotely interested in the possible cause XMRV nor I must presume a possible cure.

Veteran Member

Date Joined Mar 2009
Total Posts : 599
   Posted 12/15/2009 6:29 AM (GMT -6)   
Hi there, I usually post on the Fibromyalgia forum, but wanted to say thanks for the article; I just saw this tonight and it's completely fascinating. I have really severe fatigue in a fibromyalgia flare right now, and have been looking for ways to manage so drop by this forum now and again.

Regular Member

Date Joined Jul 2007
Total Posts : 43
   Posted 12/25/2009 1:11 AM (GMT -6)   
Wow Valia.. that is judging A LOT of people!
The people on this forum have heard of a lot of reasons over the years of why we have CFS. Do you not think we might be holding off cheering until more comes out about it? There could be tons of different reasons. Please do not judge others.

Myself, I have not posted on it for tons of reasons.. I do not want to give myself false hope. Am I watching everything I can about it, OF COURSE!!! Am I hoping like crazy that they can find a cure, OF COURSE! Do I have to chat about it, NO, I don't.

So please, If you have something negative to say, keep it to yourself!

Have a great day everyone!
Love & Soft Hugs,

Dx with: CFS '09...Fibro '02... Chronic Myofascial Pain '02... Gerd '03...Migraine Headaches...
Restless Leg Syndrome '08...IBS '99...Depression '99...
Early Menopause from Hysterectomy '00..removal of gallbladder '00 and appendix '08

Meds: Fentanyl Patch 75mg, Lidocaine Patch 5mg, Wellbutrin, Zoloft 50mg, Aciphix 40mg, Syntest, Darvoct as needed to help with RLS, Aleve & Tylenol as needed, B-12/5000mg &
Folic Acid/400mg

New Member

Date Joined Dec 2009
Total Posts : 1
   Posted 12/29/2009 3:04 PM (GMT -6)   
I agree shiffs... I have been suffering from this disorder since I've been fifteen years old. I've been hospitalized more than 8 times for my immune system being compromised because of this disease. It is real and it affects millions of people... Including me, on a daily basis. You should read and understand the causes and effects of this illness before you start talking about it.

Veteran Member

Date Joined Jun 2007
Total Posts : 702
   Posted 1/4/2010 12:45 PM (GMT -6)   
I will be getting tested for this virus as soon as the kit arrives. my doc says this is going to be huge for us!

the lab said medicare should cover the cost.

i will keep you posted.

by the way I usually post in chronic pain and lyme forums, but have CFS/FM as well.

hope you all have a good day.
Chronic Lyme Disease

Chronic fatigue syndrome

Polycystic Ovarian Syndrome

Sleep Apnea


Adrenal Fatigue

Type 2 Diabetes

Regular Member

Date Joined Jul 2009
Total Posts : 236
   Posted 1/5/2010 3:00 PM (GMT -6)   
Hi all.. I normally post on the CP or Fibro board and come here every so often to see whats up and look for answers to my questions...

I to have been following this and am waiting for more info to come out before I get excited. .. its a big start for CFS finaly ..

now if we can just keep moving forward.

I read some Doc's are talking about using HIV meds... this I am not ecited about. they where made specially for HIV not CFS.. so I wait to see what happens next.. and pray .

Take care all..
Spirit ~
Fibro, Chronic Fatigue ,Anxiety ,( arthritis,, hands, feet, knees, back , neck )  , disk disease in neck with bulging disk , adhesions , Migraines, High blood pressure ,Gerd, IBS , Sever sleep apnea
Med's ,,,  fentanyl patch, Perc, Soma, anxiety meds, Ect.

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