do these symptoms sound familiar ? Help

sounds like Lyme and coinfections to me. the coinfections sound like bartonella and Babesia. I am not a doctor, but have a lot of expereience with lyme and coinfections. have you ever been tested for lyme? testing is unreliable, so even if you tested negative you could still have it. I have fibro and cfs from my lyme disease, so it is possible to have all 3.
Lyme would explain- pains, sore throat, fog, fatigue, loss of appetite
bartonella would explain th epain in your feet, sore throats and swollen painful glands
BAbesia would explain the shortness of breath

So my suggestion is to see if your primary would test you using a lab called Igenex for all 3 things. If not you need to find a Lyme specialist to see if you have these things. post in Lyme forum and they will direct you to a place to get info on a doctor.

there is much controversey regarding Lyme so it will not be cut and dry.

you may be wondering what the treatment is for these things?

High doses of doxycycline 300-600mg a day is a typical choice until you are symptom free for 2 months

a bartonella med would be something called rifampin

and finally for the babesia a med called mepron. the thing to remember about babesia is it is a blood parasite simillar to malaria. abx dont work on it.

so thats my 2 cents worth. remember I am not a doctor just a patient!

good luck

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Chronic Lyme Disease
Fibromyalgia

Chronic fatigue syndrome

Polycystic Ovarian Syndrome

Sleep Apnea

Hypothyroidism

Adrenal Fatigue

Type 2 Diabetes

you want to ask for IgM and IgG western blot tests. write it down and bring it with you.

DO you have exposure to ticks? have you ever had a tick on you?

if you have exposure and/or a history of a bite and a lot of symptoms, a lyme specialist may treat you based on the clinical picture vs. a test result, so dont be discouraged.


best of luck,
melissa

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Chronic Lyme Disease
Fibromyalgia

Chronic fatigue syndrome

Polycystic Ovarian Syndrome

Sleep Apnea

Hypothyroidism

Adrenal Fatigue

Type 2 Diabetes

Thanks for chatting with me...
I did see my family doc Friday . I asked about the Doc. in there office. " Endocrinologist " if he is any good and knows anything about CFS. and co-infection , Lyme. etc.. you should have seen the look he gave me LOL.. I just love my family doc.. so anyway this other Doc the Endocrinologist is not worth seeing .
he is running some more Blood work as soon as I go in to the lab. that is. he concerned that I may be developing a under active thyroid .. asked him to Dig deeper for me. and talked to him about a lot of this . He gave me copy's of my last blood work so I could go over what he is testing for . and then said we may end up having me see a " Infectious Disease " Doc.. ? he is testing me for Lupus again. and I do believe RA. and he said hold tight about the fatigue for a minute ... he shows concern . and always can tell if I am bad off. . Lord he should, I have known him for 7 yrs now. and there have been times I have been in his office 3 times in one week last time I went on short term Disability . that's when I got the Dx of Fibro . ... and then was told by my Rheumatologist that CFS and Fibro go hand in hand ..but she knows nothing about CFS to help me. so a waist of my time over there.

What kind Of Doctor do you guys see ? ..

I also called a SSD lawyer to try and get a plan if I can not handle working any more , they said SSD will want me to have seen a PM Doc. . Shrink. ( sorry spelling the correct word today wont come ) and of course a specialist Doc. ,.,... I will have to find a new one as my Rheumatologist .. sorry they really don't do anything for me. so I have not seen then in about 7 months. . wow..
but I am checking into this as I need a plan ahead of time.
this is all so over whelming at times..

oh do any of you know the real name of the new test for CFS. the XMRV .. the lad could not find it in there data base by this. my Doctor asked me to get back on line and find the whole name for him.. I got his interest up on this new info

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Spirit ~

i dont know if you have already done this since this was posted a while ago, but you should get the treatment for lyme disease even if the tests show up negative if your symptoms persist. I had many of the symptoms you had/have and I talked to a lyme disease specialist and was told that I had a classic case, and he told me some of the tests that I should do to know for sure. He also told me that the tests come up with many false negatives and that it's quite rare to actually test positive for lyme even with a patient with lyme.I am currently taking 200-300 mg/day of doxycycline and I have been feeling much better than I have for a long time. If your doctor won't give it to you, which he really should just in case, you should make up something wrong with you that doxycycline would cure, and make sure it's something that takes a fairly long period of time to cure as lyme can take about a month to two months before you even notice a difference. Also be sure that you don't get any adverse reactions to it, if you do, research some of the other antibiotics you can use to successfully rid yourself of lyme. I hope this helped or even more so I hope you are already on the path to good health again.