Going on 10 months of mono with severe shortness of breath - would love some advice!

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diopick
New Member


Date Joined Oct 2010
Total Posts : 2
   Posted 10/24/2010 6:09 PM (GMT -7)   

I am new to the group and so glad I found it. Last year I was just finishing up with my 4th surgery after thyroid cancer surgery and treatment (also have paralyzed vocal cords as a complication from the surgery which does limit my breathing from the vocal cords paralyzed closed). Had the final surgery June 09 and after physical and speech therapy returned to work in November - felt wonderful. I was working out, working my 10-12 hour days. In January 2010 I started to feel so tired I could hardly get out of bed, but I did. Then I started having chest pains on left side. So I drove myself to ER. Heart was fine. Kept having pains, shortness of breath, exhaustion, sickest I had ever been. Finally went to doc and asked to be tested for valley fever (I live in southwest) and also mono. She said a bit surprised oh you have mono and as I was in her office with my head laying on the side of her counter because I was so weak she asked what was on my neck, well I had sores - blisters all over my neck and chest. Shingles was her diagnosis. Anyhow after 10 months I still can't breath - feel like I am in a sauna - but only feels like the left lung. I have had every scope, CT, MRI, test there is to have. I asked doc if shingles/mono could damage a nerve that controls the left diaphragm (actually asked two docs). They said Hmmmm... good question. Has anyone ever heard of such a thing? By the way, I just had another surgery last month because one specialist thought my paralyzed cords had moved over to far midline and was closing to much of my airway so had surgery to move over a bit. It helped a bit in the throat area but the lung still has the pressure and sensation of fullness. Any input or ideas would be greatly appreciated. Thanks so much and I am so sorry there are so many of you out there going through this but I do find comfort knowing that I am not crazy (I was starting to feel I might be but hearing your stories I now know I am not alone). Thank you all!


merrygirl
Veteran Member


Date Joined Jun 2007
Total Posts : 702
   Posted 10/25/2010 7:39 PM (GMT -7)   
I would investigate Lyme disease and other tick borne illnesses. The disease Babesia comes to mind. It causes night sweats and "air huunger".

I have this illness and it causes a lot of palpatations, fatigue, chest pain and chest pressure. check it out. It is related to malaria and can be transmitted by a tick bite
Chronic Lyme Disease,Fibromyalgia, CFS, PCOS, sleep apnea, hypothyroidism, type 2 diabetes, bulging discs to name a few

diopick
New Member


Date Joined Oct 2010
Total Posts : 2
   Posted 10/26/2010 11:18 PM (GMT -7)   
Thank you so much for taking the time to respond and information.

tbc6374
New Member


Date Joined Sep 2011
Total Posts : 1
   Posted 9/25/2011 3:47 PM (GMT -7)   
I am so glad I found someone with the same problem as me. I had Thyroid Cancer 12 yrs ago, they removed one of my nerves to my vocal cords. I contracted Mono early this year. The Mono has wrecked my whole body. My Thyroid levels can't be regulated, I recently developed shortness of breath with no exertion. My TSH is high right now. I don't know if it's the Mono or the Thyroid.

Precab
New Member


Date Joined Jul 2012
Total Posts : 1
   Posted 7/25/2012 6:36 PM (GMT -7)   
I have had espstein barr, swollen spleen and shortness of breath for 8 months. Docs share my 5cm spleen swell should not be a large enough to affect shortness of breath. Shortness of breath is chronic and lomg term. Does not get worse with light work out but cant diagnose the breath issue.
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