Parenting with CFS and special needs children?!

Busymumof5

Regular Member

Joined : Dec 2010

Posts : 22

Posted 1/16/2011 11:01 AM (GMT -7)

I'm at my wits end here.. How on earth do you cope when you have children to raise?
One of my children has a serious life-long threatening condition so I am always on edge and feel guilty for sleeping all the time if I miss her last few moments.
Also another of my children has Autism and is very difficult to control.

I feel at breaking point, I have a husband but I don't think he realises just how disabled I feel!!

Just needed to moan, Had no energy now since well before Christmas, it's ruining my life and when he goes back to work (He's been suspended) I have absolutely no idea how the heck I'm going to cope!! :(

irishmama

New Member

Joined : Jan 2011

Posts : 9

Posted 1/16/2011 12:13 PM (GMT -7)

Dear Busymumof5, I cannot imagine how you have been coping thus far. I have chronic fatigue and fibromyalgia and only have 2 children and have lately found it nearly impossible to parent. My husband is very hands on and helpful. I have had to be very blunt and honest with him about what I need. This can be so uncomfortable because sometimes we feel they should see what we are going through and automatically jump in or because we feel we do not have a right to ask for help as our husbands work, too.

In your case, you need some help bigtime. Can you afford to hire someone to come to your house a few times a week and watch the kids for maybe 3-4 hours so you can rest/sleep? Do you have a therapist who could help you manage your anxiety?

I am so sorry you are going through this and with 2 disabled children, as well, it must add an even more overwhelming factor that I cannot even imagine.

My church has helped us over the years when I get really bad by bringing us home cooked meals. Even something that seems so small, helped us sooo much.

My heart goes out to you.

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