Open main menu ☰
HealingWell
Search Close Search
Health Conditions
Allergies Alzheimer's Disease Anxiety & Panic Disorders Arthritis Breast Cancer Chronic Illness Crohn's Disease Depression Diabetes
Fibromyalgia GERD & Acid Reflux Irritable Bowel Syndrome Lupus Lyme Disease Migraine Headache Multiple Sclerosis Prostate Cancer Ulcerative Colitis

View Conditions A to Z »
Support Forums
Anxiety & Panic Disorders Bipolar Disorder Breast Cancer Chronic Pain Crohn's Disease Depression Diabetes Fibromyalgia GERD & Acid Reflux
Hepatitis Irritable Bowel Syndrome Lupus Lyme Disease Multiple Sclerosis Ostomies Prostate Cancer Rheumatoid Arthritis Ulcerative Colitis

View Forums A to Z »
Log In
Join Us
Close main menu ×
  • Home
  • Health Conditions
    • All Conditions
    • Allergies
    • Alzheimer's Disease
    • Anxiety & Panic Disorders
    • Arthritis
    • Breast Cancer
    • Chronic Illness
    • Crohn's Disease
    • Depression
    • Diabetes
    • Fibromyalgia
    • GERD & Acid Reflux
    • Irritable Bowel Syndrome
    • Lupus
    • Lyme Disease
    • Migraine Headache
    • Multiple Sclerosis
    • Prostate Cancer
    • Ulcerative Colitis
  • Support Forums
    • All Forums
    • Anxiety & Panic Disorders
    • Bipolar Disorder
    • Breast Cancer
    • Chronic Pain
    • Crohn's Disease
    • Depression
    • Diabetes
    • Fibromyalgia
    • GERD & Acid Reflux
    • Hepatitis
    • Irritable Bowel Syndrome
    • Lupus
    • Lyme Disease
    • Multiple Sclerosis
    • Ostomies
    • Prostate Cancer
    • Rheumatoid Arthritis
    • Ulcerative Colitis
  • Log In
  • Join Us
Join Us
☰
Forum Home| Forum Rules| Moderators| Active Topics| Help| Log In

Parenting with CFS and special needs children?!

Support Forums
>
Chronic Fatigue Syndrome
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
profile picture
Busymumof5
Regular Member
Joined : Dec 2010
Posts : 22
Posted 1/16/2011 12:01 PM (GMT -6)
I'm at my wits end here.. How on earth do you cope when you have children to raise?
One of my children has a serious life-long threatening condition so I am always on edge and feel guilty for sleeping all the time if I miss her last few moments.
Also another of my children has Autism and is very difficult to control.

I feel at breaking point, I have a husband but I don't think he realises just how disabled I feel!!

Just needed to moan, Had no energy now since well before Christmas, it's ruining my life and when he goes back to work (He's been suspended) I have absolutely no idea how the heck I'm going to cope!! :(
profile picture
irishmama
New Member
Joined : Jan 2011
Posts : 9
Posted 1/16/2011 1:13 PM (GMT -6)
Dear Busymumof5, I cannot imagine how you have been coping thus far.  I have chronic fatigue and fibromyalgia and only have 2 children and have lately found it nearly impossible to parent.  My husband is very hands on and helpful.  I have had to be very blunt and honest with him about what I need.  This can be so uncomfortable because sometimes we feel they should see what we are going through and automatically jump in or because we feel we do not have a right to ask for help as our husbands work, too. 

In your case, you need some help bigtime.  Can you afford to hire someone to come to your house a few times a week and watch the kids for maybe 3-4 hours so you can rest/sleep?  Do you have a therapist who could help you manage your anxiety? 

I am so sorry you are going through this and with 2 disabled children, as well, it must add an even more overwhelming factor that I cannot even imagine.

My church has helped us over the years when I get really bad by bringing us home cooked meals.  Even something that seems so small, helped us sooo much.

My heart goes out to you. 

 

✚ New Topic ✚ Reply


More On Chronic Illness

Don't Let Stress Ruin Your Holidays: Some Stress Reduction Strategies

Don't Let Stress Ruin Your Holidays: Some Stress Reduction Strategies

5 Ways To Cope With Anxiety That Accompanies Chronic Illness

5 Ways To Cope With Anxiety That Accompanies Chronic Illness


HealingWell

About Us  |   Advertise  |   Subscribe  |   Privacy & Disclaimer
Connect With Us
Facebook Twitter Instagram Pinterest LinkedIn
© 1997-2022 HealingWell.com LLC All Rights Reserved. Our website is for informational purposes only. HealingWell.com LLC does not provide medical advice, diagnosis, or treatment.