Parenting with CFS and special needs children?!

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Busymumof5
Regular Member


Date Joined Dec 2010
Total Posts : 22
   Posted 1/16/2011 11:01 AM (GMT -7)   
I'm at my wits end here.. How on earth do you cope when you have children to raise?
One of my children has a serious life-long threatening condition so I am always on edge and feel guilty for sleeping all the time if I miss her last few moments.
Also another of my children has Autism and is very difficult to control.

I feel at breaking point, I have a husband but I don't think he realises just how disabled I feel!!

Just needed to moan, Had no energy now since well before Christmas, it's ruining my life and when he goes back to work (He's been suspended) I have absolutely no idea how the heck I'm going to cope!! :(

irishmama
New Member


Date Joined Jan 2011
Total Posts : 9
   Posted 1/16/2011 12:13 PM (GMT -7)   
Dear Busymumof5, I cannot imagine how you have been coping thus far.  I have chronic fatigue and fibromyalgia and only have 2 children and have lately found it nearly impossible to parent.  My husband is very hands on and helpful.  I have had to be very blunt and honest with him about what I need.  This can be so uncomfortable because sometimes we feel they should see what we are going through and automatically jump in or because we feel we do not have a right to ask for help as our husbands work, too. 
 
In your case, you need some help bigtime.  Can you afford to hire someone to come to your house a few times a week and watch the kids for maybe 3-4 hours so you can rest/sleep?  Do you have a therapist who could help you manage your anxiety? 
 
I am so sorry you are going through this and with 2 disabled children, as well, it must add an even more overwhelming factor that I cannot even imagine.
 
My church has helped us over the years when I get really bad by bringing us home cooked meals.  Even something that seems so small, helped us sooo much.
 
My heart goes out to you. 
 
 
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