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New Member

Date Joined May 2011
Total Posts : 3
   Posted 5/3/2011 10:15 AM (GMT -6)   
Hello everyone ,

I have had M.E (Chronic Fatigue Syndrome) for nearing 2 years now, but was diagnosed finally last summer. I am not on any medication for it, the specialist dismissed me after the second time he saw me, told me that there is no more they can do. I need to live with it and get on with my life in the best way in which I can. I have had to drop out of edcuation, due to this and IBS also. I get days where I am so depressed, like the whole world is not worth a light anymore, I can see no light at the end of the tunnel. Then I get days where I really wanna do something with my life, but when I try this always gets in the way. I have become a hermit in my own home, afraid to go out as I have lost loads of weight I feel so small against people and I dont feel an "adult" even though I am, I feel everyone is better than me, which is a confidence issue, which I do need to get over. But how can I when I am always down due to this illness I have? It's so hard being out for an hour or two then needing to go home and people saying "Why do you need to go so soon?" .. or "whats up you aint been here for long". I am just finding it very hard right now. I have put in for a beauty course in September, weather I will be able to do it or not is another thing....
Hope someone can get back to me,
Love to all... tongue

Veteran Member

Date Joined Jun 2008
Total Posts : 732
   Posted 5/3/2011 6:26 PM (GMT -6)   
Hi UKgirl,  my  heart goes out to you.  I am so sorry you feel so bad.  I know exactly how you feel, I wish I had the energy to be out with friends or go shopping or go hiking like I used to but I just don't have it in me.  I, too, live like a hermit in my home, in my bathrobe & pajamas, lol!
Do you take an anti-depressant?  If you don't, it may be something to talk to your Dr about.  You may need something to help you through this.  It is like a mourning, moving through these feelings & coming to terms with having an illness can be painful & hard.  I have finally made peace with my illness & quit fighting it.  It is what it is!! 
CFS is not understood by Dr's, probably because there is nothing they can do about it.  My Dr treats my symptoms to make my life more comfortable but beyond that I am on my own.  I know there is research being done so we have hope.
Let us know how you are doing.  Talking, venting, ranting, crying all help so feel free because we will listen.
Many soft hugs, Denise 
Fibromyalgia-dx'd: 2006, ME/CFS-dx'd: 2006, Holt-Oram Syndrome dx'd 1975, reduced lung capacity dx'd 2009, nasal allergies, food allergies, depression (lifetime problem) IBS, neuropathy in hips

I have 4 children & 7 grandchildren.

As apples of gold in silver carvings is a word spoken at the right time for it. Prov. 25:11

New Member

Date Joined May 2011
Total Posts : 2
   Posted 5/4/2011 8:48 PM (GMT -6)   
On my way to work I was hit with a horrible feeling of fatigue, my heart was racing. By the time I got to my floor I was short of breath and temp 102. My unit manager took me to the ER. I kept telling them there was something wrong. No believed me. Sent me home. The next morning I could not talk. Ended up with severe tonsillitis. This was my welcome party of Chronic Fatigue. All the had to do was a CT scan. I would have IV antibiotics, maybe would not have been so severe. I have pain in my throat constantly. Two biopsies and two my robotic surgery, all tonsils. Some doctors say I keep getting viruses others are saying inflammation, but don't know why. It will be two years in October. I have not been able to work.
When there is something I truly want to do CFS does not stop me. I face the consquences for a few days in bed, but it is worth it.
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