Morning low grade fevers. I have CFS...On prednisone for UC flair for 6 weeks now.

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jazzlyric
Regular Member


Date Joined Mar 2011
Total Posts : 114
   Posted 5/22/2011 1:07 PM (GMT -7)   
I have CFS...I have tapered from 60 mgs to 20 mgs of prednisone in 6 weeks for a severe Ulcerative Colitis Flair, and at 25 I started walking again for the first time in 3 months. I have been laid up with no exercise at all for 3 months. Im getting low grade fevers in the morning anywhere from 98 to 100.1, (my norm is 97.6.)

It seems when I leave my house and go for a walk the fever goes right down, get back into a room with a little heat and it goes right back up again...Also I think when the fog hits my area and the barametric pressure goes down my body temp and exhaustion levels get worse.

I just got out of the hospital for the UC flair and almost dident make it. The prednisone saved my life, Im just worried its now going to cause complications. Im just wore out with all this. Doctors here know nothing about CFS or how to deal with it. im sure Im having a CFS flair, I was in the hospital yeaterday and they couldent fing any infection. Im having labored breathing from yearly allergies, low grade fevers, and I totally exausted. ...Any thoughts?
I treated my UC holisticly for 12 years whith good results.
4-14-11 all hell broke out and I ended up with a full on sever flair for the first time. 15 to 25 BM's with blood a day, coupled with sever malnutrision.
Went from 165lbs to 127 in 6 weeks.
Preg 60mgs a week with a taper.
Asacol 4800 mgs a day.
Diazapam 3 Mgs for sleep.
Calcium for severe hand cramps.

Libra1979
Regular Member


Date Joined Dec 2010
Total Posts : 46
   Posted 6/4/2011 11:17 PM (GMT -7)   
Hello,
 
I can semi relate to what you have been going through with the crazy fatigue. I am sorry to hear about the fevers you are dealing with at the moment. Prednisone really helped me get rid of the fevers I was having and got me out of my flare. I just got off of 40mg of Prednisone and am just on the 3200mg of Asacol. You are lucky you lost weight with the Prednisone because when I jumped up to 40mg I balooned. My gastro thinks that I have some other disease as well as Crohn's disease that is causing the chronic fatigue that I have been having since Decemeber of 2010. Maybe someone on here can give us more insight on what could be causing the fatigue for us crazy Crohn's people? This chronic fatigue is dibilitating all I want to do is sleep and it takes over a persons life.
Have you had any problems with arthritis? After I stopped taking the Prednisone I have been having really bad pain in my heels after standing for short periods of time. Or maybe it is a new symptom from all this fatigue? Have you had painful joint problems like this? My regular doctor suggested the Makers Diet but I have not tried it or even looked into it.
Anyways, good lucky finding what is causing your fatigue and I hope you are feeling better from your UC flare soon!
 
Libra79

CollegeStudent
Regular Member


Date Joined May 2011
Total Posts : 331
   Posted 6/8/2011 9:05 PM (GMT -7)   
Hi Godslyric, I haven't suffered long enough to maybe understand your situation but I haven't been in full remission for UC for two years now and I want to share something similar.

I got discharged from the hospital a little bit more than two weeks ago and I was put on heavy dose of Solomedrol then started 60mg of prednisone. My GIs even discussed the possibility of surgery b/c I'm not responding to prednisone/steroids.
I lost more than 30lb on this flare. I'm still not in full remission but as for the CFS, I think exercising is the key.

I was sleeping due to CFS so much and kept saying, "I can't exercise because I have no energy or I have UC symptoms", but I knew I had to do something. I had low grade fever at night and night sweats everyday. I couldn't even go up the stairs because I would get cramp from muscle weakness due to steroids.

I started doing standing still walking exercise and gradually moved up from getting exhausted in 3 minutes to 30 minutes at a time. I was breathing really hard and sweating so much.
It's really hard if you actually try it at first. Arms swinging back and forth and walking in one position. Thighs up parallel to the ground.
In a few weeks, I'm speculating that I will be ready for real walking then running.

It sounds absurd but seriously, I stopped having night sweats and low grade fever after a week doing this.
I don't think any medications can fix this up for us.
It's REALLY tedious to do it for more than an hour a day but I do this with this mentality. "If I don't do this, I could die"
I'm less tired after starting to exercise. I can digest better. More appetite. Less pain.

Just a suggestion. Staying still and taking meds for this won't help IMO. Hope you find your answer for your CFS.

And watch your diet for UC if it bothers you. In the end, we are really what we eat.
21 male, NY
-Dx Pancolitis in 2008 Jan
Recent hos. discharge on 5/23/11
-LDN 2.25mg
-90min cardio exercise everyday
- On Pentasa, 40mg Prednisone(tapering from 60), Canasa(every two days)
-No HFSC, sugar/preservatives/additives, red meat, chicken(bloating), shrimps(antibiotics), non cooked veges
-On white rice+meat/mackerel+avocado+blueberries+homemade yogurt
-stopped all supplement/vitamin
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