SEEKING HELP, ADVISE OR SUGGESTIONS

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FOGGED OUT
New Member


Date Joined Jul 2011
Total Posts : 6
   Posted 7/7/2011 8:36 AM (GMT -7)   
PLEASE HELP!!!  I had very severe MONO as a child at age 12 (hospitalized for 5 days).  Presently at 37 I don't feel sick but EXTREMELY FOGGED OUT and have had crazy symptoms for the past 5 months but just visited my doctor in June and Tested positive for MONO and EBV everything else is negative and I mean everything (Infectious Titers, Western Blot, Lyme, Lupus, HIV, Hepatitis) 6 blood tests, 3 urinalysis, chest xray, neck xray, ER visit, Heart Halter, Stress Echo and nobody can find anything else wrong with me.  Here is the mystery, I am not TIRED, FATIGUED or sleeping more frequently I have normal energy levels.  I have always been extremely active and I continue to force myself to walk, swim, play soccer and do yoga but I have stopped Basketball, Weights, Cardio, Biking, Kayaking and high stress exercises like Plyometrics, Sprinting etc*** I DONT KNOW IF I'M HELPING OR HURTING WITH THESE ACTIVITIES????  I have a very healthy lifstyle, eat very well and drink at least a 2 liters of water per day.
 
Here are my symptoms: Starting back in February severe body aches, 101 fever and chills  for 4 days straight then disappeared, CONSTANTLY FEELING OFF (FOGGED OUT) BUT NOT SICK, Early March constant feeling that I had to clear my throat and my vocal chords would spasm (very scary feeling closeing of throat) gargled salt water gone in 2 days,*** Mid-March The Hiccups for 3 days straight CRAZIEST SYMPTOM, just disappeared***, Late March NIGHT SWEAT my first one ever another would follow in May waking me with Palpatations, April what I can only describe as a Panic/Anxiety Attack, I would just relax myself and ignore it, had about 6 of these last one 6/18 could not control and ended up in ER BP 190/110, Pulse 120, Severe Stabbing Back Pain (10+ I have a very high pain tolerance and ignore every ache and pain) radiating to my left Shoulder and Elbow with Tightness in Chest (These have happened while driving sleeping and following exercise),  May Very Sensitive to touch Swollen Lymph Node behind Left Ear gone in 4 days, June pins and needles inside my right knee (very strange radiating outward from my joint), Sporatic High BP, STIFF NECK for past 3 months and Pain between my Shoulder blades, weakness in my arms elbows, lately very light short headaches.........AGAIN I'M NOT TIRED but I have had good and bad days for the past 3 months.
 
Any suggestions, remedies or coping mechanisms are greatly appreciated.  I will not be a slave to pain medication or prescription drugs to treat my symptoms, I have considered acupuncture and I'm currently taking sublingual B-12, Astralagus, St Johns Wort and eat tons of Vitamin C rich fruits and veggies.
 
HELP!

Lyme14
Regular Member


Date Joined Jun 2011
Total Posts : 381
   Posted 7/7/2011 6:34 PM (GMT -7)   
 
Hi Fogged Out,
 
I would guess that your mono and EBV were latent in your body and somehow got re-wakened by some sort of trigger.  Have you been tested by IgeneX for Lyme?  Their tests are more in-depth than the standard labs.  Were you in any sort of accident that may have done some tissue damage somewhere in the body?  Did you travel anywhere that you wouldn't necessarily even think would be a problem?  There are some parts of the US that have neurotoxic things like pfiesteria and ciguatera.  There are also toxic molds that can do this sort of damage.
 
I hope you find answers! 
I'm a music teacher, and not a doctor. Anything I post is based on my own experience and lay opinion.
Lyme, Babesiosis, Mycoplasma (Asthma), Fibromyalgia (Soft Tissue Injury), Costochondritis,
CFS (Mitochondrial Dysfunction), IBS (Candida & Leaky Gut), Hashimoto's Thyroiditis, Adrenal Fatigue,
ITP (Low Platelets), TMJ, Plantar Fasciitis, Schamberg Purpura, Tinnitis, Allergies, MCS

FOGGED OUT
New Member


Date Joined Jul 2011
Total Posts : 6
   Posted 7/8/2011 6:54 PM (GMT -7)   
Thanks for the advise, actually I went to Hawaii in November 2010 and got very sick on the plane ride home *(fever, chills, aches).  I had chest congestion that lasted until the end of December when I gave in and had to take a z-pak and steroid shot which cleared it in about a week.  These Mono/EBV/Lyme symptoms did not start until March 2011 but I agree it could have turned the EBV active.  I have been using a sauna (10-15 min) for the past two days and what ever it is does not like the steam or heat.  This is a weird desciption but I can only describe the feeling of a tug of war between my body and something else while I'm in the heat.  Much appreciated!

Lyme14
Regular Member


Date Joined Jun 2011
Total Posts : 381
   Posted 7/8/2011 10:22 PM (GMT -7)   
 
Hi Fogged Out,
 
Hmm...I don't know much about what's in Hawaii.  Ciguatera is in FL--not sure about Hawaii.  There would be monster bugs there, since it's tropical.  Saunas can help quite a bit with detoxification.  The far infrared ones were highly recommended at a health conference I attended.  Glad to hear you're finding some relief with them!
 
 
 
 
I'm a music teacher, and not a doctor. Anything I post is based on my own experience and lay opinion.
Lyme, Babesiosis, Mycoplasma (Asthma), Fibromyalgia (Soft Tissue Injury), Costochondritis,
CFS (Mitochondrial Dysfunction), IBS (Candida & Leaky Gut), Hashimoto's Thyroiditis, Adrenal Fatigue,
ITP (Low Platelets), TMJ, Plantar Fasciitis, Schamberg Purpura, Tinnitis, Allergies, MCS
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