Posted 7/7/2011 8:36 AM (GMT -7)
PLEASE HELP!!! I had very severe MONO as a child at age 12 (hospitalized for 5 days). Presently at 37 I don't feel sick but EXTREMELY FOGGED OUT and have had crazy symptoms for the past 5 months but just visited my doctor in June and Tested positive for MONO and EBV everything else is negative and I mean everything (Infectious Titers, Western Blot, Lyme, Lupus, HIV, Hepatitis) 6 blood tests, 3 urinalysis, chest xray, neck xray, ER visit, Heart Halter, Stress Echo and nobody can find anything else wrong with me. Here is the mystery, I am not TIRED, FATIGUED or sleeping more frequently I have normal energy levels. I have always been extremely active and I continue to force myself to walk, swim, play soccer and do yoga but I have stopped Basketball, Weights, Cardio, Biking, Kayaking and high stress exercises like Plyometrics, Sprinting etc*** I DONT KNOW IF I'M HELPING OR HURTING WITH THESE ACTIVITIES???? I have a very healthy lifstyle, eat very well and drink at least a 2 liters of water per day.
Here are my symptoms: Starting back in February severe body aches, 101 fever and chills for 4 days straight then disappeared, CONSTANTLY FEELING OFF (FOGGED OUT) BUT NOT SICK, Early March constant feeling that I had to clear my throat and my vocal chords would spasm (very scary feeling closeing of throat) gargled salt water gone in 2 days,*** Mid-March The Hiccups for 3 days straight CRAZIEST SYMPTOM, just disappeared***, Late March NIGHT SWEAT my first one ever another would follow in May waking me with Palpatations, April what I can only describe as a Panic/Anxiety Attack, I would just relax myself and ignore it, had about 6 of these last one 6/18 could not control and ended up in ER BP 190/110, Pulse 120, Severe Stabbing Back Pain (10+ I have a very high pain tolerance and ignore every ache and pain) radiating to my left Shoulder and Elbow with Tightness in Chest (These have happened while driving sleeping and following exercise), May Very Sensitive to touch Swollen Lymph Node behind Left Ear gone in 4 days, June pins and needles inside my right knee (very strange radiating outward from my joint), Sporatic High BP, STIFF NECK for past 3 months and Pain between my Shoulder blades, weakness in my arms elbows, lately very light short headaches.........AGAIN I'M NOT TIRED but I have had good and bad days for the past 3 months.
Any suggestions, remedies or coping mechanisms are greatly appreciated. I will not be a slave to pain medication or prescription drugs to treat my symptoms, I have considered acupuncture and I'm currently taking sublingual B-12, Astralagus, St Johns Wort and eat tons of Vitamin C rich fruits and veggies.