Success stories and Sharing Experiences of taking Samento for CFS, anyone??

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clarew
New Member


Date Joined Jul 2011
Total Posts : 2
   Posted 7/10/2011 8:33 AM (GMT -7)   
Hi All.

I have had CFS for 18 years now. I had never considered the link between CFS and Lyme Disease until very recently. Since then I have been doing a lot of reading on the subject and decided to start on Samento. From what I have read, testing for Lyme is hit-or-miss and a neg test does not necessarily mean you don't have it!! It is difficult to cultivate this bacteria in the lab, let alone test accurately for it. What I read was that Doxycycline only treats the spirochete form of the bacteria effectively, but it is able to change to a round form also, which Abx don't effectively kill!! This is why so many people improve a bit on Abx and then relapse. Along side this, the life cycle of the bacteria is quite long and so it can take 8 months or longer to rid the body of the Lyme....maybe longer as the bacteria is systemic and evasive due to being able to exist in a cystic form. the longer you have it the worse it is to treat. This is what I understand from what I have read.

Anyway, I started on Samento three days ago. I was feeling pretty crappy when I started on it, but think the muscle aches and pains and tinnitus seem worse. I am only up to 2 drops a day, which seems like a low dose to herx?? I have been taking parsley tea and had a sauna yesterday to help with the detox too. I would love to hear from anyone with CFS/Lyme who has recovered or greatly improved taking Samento and any information on how you know if you are herxing and ways to manage this, etc.

Thanks :-)

amesltl
New Member


Date Joined Jul 2011
Total Posts : 2
   Posted 7/27/2011 12:28 PM (GMT -7)   
Hey there! I have not tried Samento but I do have Lyme Disease and I have heard a lot of great things about Samento. It's broad spectrum too so that's good because you may even have co-infections. I an thinking about going all natural soon.

Just wanted to let you know that if you do have Lyme or some other Bacteria that has caused the CFS, 18 years is a long time (however it can still be reversed :) ) and yes, it is definitely possible to herx on only 2 drops a day.

I would really encourage you to order a test kit from igenex lab in CA and still try to get tested, and see if you can find a Lyme Literate MD to read your test. Even if it doesn't show up in a test an LLMD may be able to get you clinically diagnosed and help optomize your treatment even if you wish to go the natural route. If you need help I can get you some resources! I could get you my email address.

My doc had Lyme for years before she found it...she even goes far as to say that she believes everyone with fibro and cfs actually has undiagnosed Lyme. I am not sure if that's true, but I definitely believe that a lot of people could be walking around with it!

It was suggested I had CFS before mine was found. There are also co-infections with Lyme and Babesia pretty much has the same symptoms as CFS...

detoxing ideas for herxing:
epsom salt baths
drink lots and lots of water
coffee enemas (I have not tried this but just heard a lot about them...even for cancer patients...)
milk thistle for liver
Far infrared saunas

www.turnthecorner.org is a great Lyme wesbite.

Hope this was helpful!!

Post Edited (amesltl) : 7/27/2011 1:36:22 PM (GMT-6)


amesltl
New Member


Date Joined Jul 2011
Total Posts : 2
   Posted 7/27/2011 12:38 PM (GMT -7)   
Also, if you go to the Lyme support group on www.mdjunction.com there is a whole thread on Samento :)

bucci
Veteran Member


Date Joined May 2006
Total Posts : 1477
   Posted 7/30/2011 8:19 PM (GMT -7)   
Wow. I was looking for chronic fatigue success stories and Lyme is the discussion.
There is a healing well Lyme forum. I usually post over there.

I too am a long time fatigue person with PAIN and depression.
I took some ivermectin today that I had extra from old prescription and I was
Able to walk around and sit up and be alert in the head.
I needed only one quarter of my pain meds which at this point I know is the addiction to them. But usually there are cycles when the pain is debilitating and I walk like all twisted and jerking.

Originally what led my team of doctors up in Seattle
To test for Lyme was they gave me a stool test from Metametrex
It came back with stringylides and hook worm and diaomebia
Fragiales.
The ivermectin worked instantly. I never have that bomb going
Off in my belly any more everytime i ate anything.
And I have flat stomach. No blow up.

Another very important thing to share is to get an ISAC panel for thick blood.
I have to do heparin shots twice a day.
But I never get those debilitating migraines anymore that felt like strokes.

There are chronic fatigue people who have thick blood and at least 30% of Lyme
Do too.
I would bet more have the parasite and blood problem because again it is a question of Right TESTING.
Also I complained about having to pay $300 or maybe more for that stool test but
They insisted I use the lab that doesn't take
Insurance.
Antibiotics will work much better if you get rid of parasites and thick blood.
I wish you all the best results in your search for wellness.
And I am so glad to see you all looking at what real story is with the Lyme

Post Edited (bucci) : 11/11/2011 6:15:55 AM (GMT-7)


bucci
Veteran Member


Date Joined May 2006
Total Posts : 1477
   Posted 7/30/2011 8:41 PM (GMT -7)   
Also if you can google hypothalamic pituitary adrenal innsuffiency.
and Lyme. There is a doctor who explains it and how this is an endocrine situation
That needs to get straightened out in order to get we. If you read this it wll hit home for chronic fatigue . Also Insights into Lyme. Is a book with 13 doctors.
20 yrs of doctors . DEC. 2009 tested positive for lyme, bartonella, ehrichiosis, HHPV6, chlamadyal pneumonia .
parasites :strongylides, diaoebia fragialis, hook worm.

Hep C ....fibro, rhumatoidal,depression,
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