Hi! I'm not usually in this forum but heard about your question. Have you had other illnesses ruled out? Things like lupus and Lyme? I am a mod on the fibromyalgia forum and we have many of the same symtoms. We do have pain and fatigue...that's the hallmark of the illness.
The second thread on the fibromyalgia forum is called Fibro 101. There are good links about fibro and you can see if this possibly could be what is going on. Good starting links would be Symptoms, What Else Could It Be, and A Thorough Explanation of Fibromyalgia. Who know? You just might see yourself there.
We have a very active and friendly forum and we sure understand chronic fatigue! So why don't you hop over to it and maybe some of the members can give you a hand. It is so depressing having chronic illnesses but we can still have an enjoyable life in spite of it. Maybe we can give you a hand!
Sherrine