Hello. I am new to this forum. I am looking to get more information about rickettsia infection/exposure. I have been sick for 8 years...been to many rheumatologists, neurologists, endocrinologists, and physiatrists. I have been diagnosed with premature arthritis, fibromyalgia, connective tissue disorder (non-specific)....and all these diagnoses don't ever seem quite right in my mind. I recently tested positive for rickettsia (SMRF). There isn't a lot of information online about chronic symptoms of rickettsia. All I found was this connection with CFS. That diagnosis doesn't quite match my symptoms exactly either. I do get fatigued but more so I have random muscle and joint pain, brain fog, memory problems, neck pain, sleep issues, anxiety, agitation.....
I have had to go on disability because of my condition. I seem to be getting worse each year.
Any help, words of comfort, information would be greatly appeciated.