PLEASE HELP: NEW TO CFS: Does this sound like Chronic Fatigue ??? ADVICE NEEDED :-)

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My Lovely
Regular Member

Date Joined Feb 2012
Total Posts : 54
   Posted 3/19/2012 2:51 PM (GMT -6)   
I suffer with chronic DAILY migraines with visual disturbance and have done for a year now, this is extemely disabilitating-im stuck in my house all day everyday in pain, i cant work, drive, struggle with day to life etc. read my other posts if you are interested as I have recently posted detailed info in the migraine section, i have no idea if im right section but thought its worth posting in here too as my doctor has just said she thinks I may have chronic fatigue or fibro alonglise my chronic daily migraines. Please take the time to read about my symptoms and please advice if you think this is chronic fatigue or not?

WELL.... ever since I can remember, since I guess the age of 14-15 approx I’ve always needed lots of sleep to make sure I can feel motivated/alive/full of energy, the next morning. At this age if I didn’t get enough sleep if I got up too early or went to bed too late id feel sluggish, very tired etc. All my life I’ve never ever been a morning person. I know your probably thinking that’s like anyone who doesn’t get enough sleep, but I honestly know this isn’t right, I kind of thought at the time what’s up with me but at this age you just get on with life and you don’t realise what’s happening, I thought everybody was feeling like I was, but they apparently weren’t. Don’t get me wrong it wasn’t bothering me at this point in my life, or making me too poorly or anything at all, it’s just what I’ve now noticed now growing up/looking back. Well as the years have gone on its gradually got worse and worse. I’d say around the time I was out partying/drinking/nights out on the town well I was the one after the event I would suffer for a day after, at this stage I’m 18, my friends could go out for a night out and drink alcohol and then the next day would be full of energy and maybe go out shopping into town, id feel like I was dying and have to stay at home recouping my energy! From having alcoholic drinks I get the worst hangovers ever!!!!!! I’m known in my group of friends for this, it’s insane how ill I am after I’ve been out partying in my town with a few girly friends. So that’s age 18.

Well as the years have gone on age 22 a night out, I’m starting to notice now if I have even 3 alcoholic drinks I get a full blown hangover the next day! I feel like I’ve drank a a few bottles of vodka the nect day not just a handful of drinks!

Age 24: Evan if i have a late night e.g. stay out with friends until 12am and go to bed late and have no alcohol, the next morning I feel like I’ve been out on the town drinking alcohol and sufer from the most awful severe like 'hangover'! Also starting to notice if I get up too early this also makes me feel unwell thoughout the day, i get this hangover feeling the next day, No matter what i do it doesnt go.

26, NOW: well this is what’s really really worrying me, I am getting this 'hangover' feeling more or less all the time, at least weekly, ive had it for 4 days so far this week, every time I do something it flairs it up, all i did was have a friend over for a hour and its made me soooooooo ill!

I am basically house bound at present due to my chronic daily migraines so i dont ever really go out, i cant to normal things like drive, food shopping etc. I managed to see a friend for an 2 hours the other week, I purposely made sure I was home early so I was in bed to get a good night’s sleep as I know how ill it makes me so ill if i dont get enough sleep, I was in bed at 9.30pm, and I’ve now had this 'hangover' feeling for 3 days in a row, this is happending all the time since ive been diagnosed with chronic migaines, I have noticed that it tends to last between 1-3 days to recover from this 'hangover feeling'. I get it if I haven’t had enough sleep, but I seem to be now getting it if I do something, just something little! I just don’t know why???

I seem to be falling apart. A few nights ago i was in bed early but i was woken up at midnight, and today again i have this hangover feeling. it always seems to be due to lack of sleep or if my sleep is disturbed alonglise if i do nything. Also its always the next day i get these sypmtoms, never on the day im doing the thing.

The word Hangover, is the only and best way to describe this, as it does feel like an actual drinking related hangover, I dont actually drink now lol. The other thing is, My mum is also very very poorly, she has many health problems, such as Degenerative Disc Disease, Myofascial Pain Syndrome, Fibromyalgia, Non Restorative sleep, chronic back, migraines, pain in the whole of her body basically, arthritis, etc etc the list could go on I’m afraid, but she also gets this, we both describe almost the exact same thing!

The times I tend not to get this ‘hangover feeling’ is if I get a good night’s sleep, an early night and not get up too early in the morning and now if I haven’t don’t too much activity wise or seen any of my friends or anything and nobody wakes me sleeping in the middle of the night.

Ive posted in this forum as i just wanted to hear from people who suffer with Chronic fatigue to see if this rings any bells. as my doctor thinks it may be this or fibro.

This is what I feel like when I say 'hangover' feeling, I get these symptoms ever single time:

Eyes feel sore
Can hardly keep eyes open
Hot skin
Dry mouth
Dry throat
Stuffy/dry dose
Feel very dehydrated
Need to sleep
Feel sick
The taste of water makes me feel sick/worse
Not even sleeping or anything i do can get rid of this feeling when i have it
sleep being disturbed can make me have this feeling the next day
doing something can make me have this feeling the next day
a late night
getting up too early
generally the worst part of it will last for 3 days after a flair up

Any info/advise/guidance greatly appreciate, not only for myself but also for my mum as we both have this and have no idea what it is, or even if you think I should post this in another forum? Thanks, evan if you just right a one word answer. yes it does, or no it doesnt. If you dont have time to write something back to me.

So sorry for the essay
My lovely - Chronic Daily Migraine with Visual Disturbance/Vertigo

My Lovely
Regular Member

Date Joined Feb 2012
Total Posts : 54
   Posted 3/21/2012 4:26 AM (GMT -6)   
My lovely - Chronic Daily Migraine with Visual Disturbance/Vertigo

Veteran Member

Date Joined Nov 2009
Total Posts : 3266
   Posted 3/21/2012 3:12 PM (GMT -6)   
Hello MyLovely,

So sorry you have not been feeling well for so very long -- and at a time of your life when you should be having a ball with all your friends, burning the candle at both ends.

Of course, I am not a doctor and cannot not diagnose you -- heck, I can't even see you from here! And I am not sure what having a diagnosis of Chronic Fatigue or Fibromyalgia would do for you. You want to get better, don't you.

You don't mention if you have done anything like make positive changes in your diet, tested for allergies, or looked into exercise programs. When you can't get a clear diagnosis for any disease, it is often very helpful to make these changes.

Do you think some of your problems could be associated with an environmental problem like mold or heavy metal exposure?

Some people find going to a nutritionist or a natural healer can get them back to health where mainstream doctors do not provide the needed help.

I would definitely encourage you to keep looking for a way to get better. What you describe is not a good way to live!
Co-Moderator Lyme Disease Forum

Regular Member

Date Joined Jan 2012
Total Posts : 146
   Posted 7/21/2012 7:13 PM (GMT -6)   
I realize your post is 4 months old, and hopefully you've gotten some answers by now. I have a lot of the symptoms you mentioned and many more. Since your mother has fibromyalgia and shares your symptoms I think it's safe to say you are predisposed to it also. CFIDS/ME/Fibro might be different faces of the same illness. I used to have many more dominant fibromyalgia symptoms but over the years the CFIDS symptoms became more dominant. Some people have both CFIDS and fibromyalgia, which I do.
Try a strict gluten free diet. That helped me the most initially and I cannot eat a speck of gluten to this day 15 years later.
There's a lot more I could say, but you've no doubt gotten more info by now.
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