CFS/FM could be hypothyroidism type 2

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New Member

Date Joined Dec 2011
Total Posts : 2
   Posted 4/7/2012 10:44 AM (GMT -6)   

One day in September of 2001, I went to bed feeling fine. The next morning I woke up feeling like I hadn't slept. I went to be early that day and tried to get 12+ hours of sleep. Same thing happened again and again. Days turned into weeks and weeks into months. For the next 9.5 years I suffered terribly.

I went to all kinds of doctors and specialists. I had every test done that the doctors or I could think of. All results were negative normal. I tried all kinds of treatments and therapies. All affected the symptoms but it never seemed like they got at the root cause. I was baffled and so were my doctors.

I have been searching the web ever since I got sick and I found this radio interview.
I apologize for the outside links. The interview starts five minutes in.

In the interview, Dr. Mark Starr says if you have a low basal/resting body temperature and some other symptom like fatigue and/or pain (i.e. CFS/fibromyalgia) you could be hypothyroid type 2 (HT2).

Hypothyroid type 1 is where your thyroid gland produces little or no hormone and this is easily detected by a blood test (which I had done several times). Hypothyroid type 2 is where your thyroid gland produces a "normal" amount of hormone but your body needs more. Dr. Starr's has a book "Hypothyroid Type 2." I bought a used copy online but it's pretty much the same info as in the radio interview but with more of the history of his research.

I followed his directions. I started taking iodine to build up my adrenals and then I started taking thyroid. Both available online for cheap by several different manufacturers without a prescription. I also supplemented with vitamin C and selenium.

It was like waking up from a nightmare. Within two days I was feeling better. Within a week I knew I had found a major piece of the puzzle. I realize now I was incorrectly diagnosed with CFS/Fibromyalgia. I am HT2. The sad part is that the symptoms were staring the doctors in the face all the time. My temperature has always been low. I was always cold even in the Summer. It's been over a year and I can go a whole day and I still have energy left over at the end of the day. I still need a nap usually but I am down to 8 hours of sleep a day and I do physical things (like mow my lawn again :)

I am not a medical practitioner so make sure you consult a physician and do the research before trying any medication or treatment.

Lord Ugh

Regular Member

Date Joined Mar 2012
Total Posts : 100
   Posted 4/13/2012 3:15 PM (GMT -6)   
I'm usually over at the Fibromyalgia topics but decided to check this one out today and I'm so glad I did! Wow, that's great information, LordUgh - I'm surprised you have not had any responses to your post. I have been diagnosed with Fibromyalgia and my doc says he has done not only the thyroid blood test but the hormone test as well, and that my test results came back "normal". So it sounds like he tested only for "Hypothyroid type 1". I will print your post and take it to my next doctor's appointment. Will also check out the online sources for Dr. Starr's book. Thank you!

You don't mention whether you have a weight issue or not, but I do, and every time I see the doctor he manages to squeeze in a sentence that I need to lose several pounds. Like I don't know that, sigh. I have tried and tried but can't seem to lose. I know that hypothyroidism can be the culprit preventing weight loss in some people, so I'm wondering whether you have experienced weight loss along with your other experiences?

blessings and peace

Regular Member

Date Joined Mar 2012
Total Posts : 151
   Posted 4/18/2012 2:47 AM (GMT -6)   
Thanks for the info :-)
I think a lot of my problems stem from hormones and thyroid problems. They always come back "normal" when checked, but only JUST normal.
That and I can be under two doonas in winter PJs with the electric blanket on in summer and still be cold... It never ceases to amaze me when doctors don't think that's weird.
I've also started getting FREEZING after workouts (only yoga at this stage), and I just discovered that can be from low thyroid function and low iron. Plus I feel like Superwoman when I'm on prednisone for my asthma... It all kind of points to a thyroid issue, but seeing as the tests are still JUST in the normal range, doctors seem to think it's all some kind of coincidence.
Pretty much all my blood tests when I first got sick came back showing a low thyroid function. But I kept getting told that that was only to be expected because I was tired. Honestly, it’s only now I’ve typed that that I’ve stopped to think “…but hang on, what if it’s WHY I’m tired?!”
(My last test came back normal for thyroid function, but low for the hormones that drive the thyroid… This makes zero sense to me, and I have yet to be bothered researching it, lol.)

I think doctors like their hard and fast rules a bit too much sometimes. I had a LOT of symptoms of low iron, but I had it checked and it came back normal. My hair was falling out, I was pale, my tongue was pale, I was even more exhausted than normal, and at the time I was getting 2 periods a month. But the doctor said the iron levels were fine, so I figured they must be.
Then I nearly fainted while talking to my boss. Like full on mid sentence “Hey why is it getting dark… oh… uh oh.”
(Sadly if I had have nearly fainted at home I would have kept on ignoring it… But frankly fainting in front of your boss is embarrassing.)

I went back to the doctor, and he grudgingly admitted that seeing as my iron levels where 0.1 from being classified as low, it probably wouldn’t do any harm to take a supplement.
Low and behold, once the supplements kicked in all the symptoms went away.

Your post has given me motivation to go pester him about my thyroid again :D

Regular Member

Date Joined Jan 2012
Total Posts : 146
   Posted 6/14/2012 5:47 PM (GMT -6)   
I'm guessing this is not mainstream thinking and good luck trying to find a doctor who will agree with much less treat for this. I've had my thyroid tested dozens of times and TSH and all other thyroid hormones are in normal range. Yet I do have many symptoms of thyroid dysfunction.
I took Iodine for awhile but didn't notice anything different.

Regular Member

Date Joined Jun 2012
Total Posts : 45
   Posted 6/29/2012 7:38 PM (GMT -6)   
I too have "normal" thyroid levels but tested positive for thyroglubulin AB antibodies, and I was told I have autoimmune thyroid disease and I need to have it checked again in 6 months.
Meanwhile I have crazy sore fatigue. I'm afraid to just try anything because I don't know which way my thryoid is headed and I don't want to cause further damage.
It seems like thryoid should be one of the things first tested when a patient complains of fatigue, unfortunately most doctors don't run a full panel and are missing most of the pieces to the puzzle.

New Member

Date Joined Jun 2014
Total Posts : 1
   Posted 6/2/2014 8:24 AM (GMT -6)   

Old thread but I wonder what medicine you took which is able to be ordered without a prescription?

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