I joined these forums for a reason unrelated to CFS, but I just wanted to reiterate the 'don't give up'. I used to have CFS and was bed bound for 3 years, (ill for 5), paralysed at times and unable to take in any sensory information. It was such a nightmare I barely remember it.
I have now been working full time for 2 years and am completely healthy (I am here because of acid reflux! Such a little problem in comparison :))
I noticed when I was at my worst that not many people who recovered came back to tell the tale, so I always promised myself I would make sure people know it does happen.
Definitely don't give up.