Do you remember what it's like to be well?

Do you clearly remember what it's like to feel healthy?
5
Yes - And I'm glad I do - 23.8%
1
No - And I'm glad I don't - 4.8%
2
Yes - And I wish I didn't - 9.5%
13
No - And I wish I did - 61.9%

 
New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

madisun
Regular Member


Date Joined Mar 2012
Total Posts : 151
   Posted 5/12/2012 6:35 AM (GMT -7)   
I was diagnosed with CFS in 1995. Fibro in 1999... And I've just realised that I can't remember what it's like to feel healthy and strong.
Part of me is endlessly depressed by this, the other is kinda happy about it because if I can't remember it, I can't miss it.
 
Do you remember what it's like to be properly healthy?

Minnesota
Regular Member


Date Joined Jan 2012
Total Posts : 136
   Posted 5/22/2012 7:37 AM (GMT -7)   
It has been 19 months for me dealing with ME/CFS, so the time when I was healthy is still vivid in my memory.  I am starting to accept that each morning I will awake with grogginess, and not refreshed by any means.  I never thought I would miss that feeling so much, that feeling of getting a decent nights sleep, and waking up to take on the day.  It is amazing what we take for granted until it is taken away.  I am 49 years old, and when I recall my healthy life it is good and bad.  I very much miss being healthy (who wouldn't) and get sad to see others taking part in what I did routinely.  The good is I know I did so much in those 47 years and experienced a lot, and have so many good memories.  I just wasn't ready to give them up quite yet.......

Marrit
Regular Member


Date Joined Jan 2012
Total Posts : 146
   Posted 6/14/2012 3:29 PM (GMT -7)   
Been sick for 15 years, lost myself somewhere along the way. I would not even know where to begin to reconstruct a life if I suddenly was healed.
I have only vague recollection of the person I used to be and of all I could do.

needsomehelp22
Regular Member


Date Joined Jan 2012
Total Posts : 24
   Posted 6/14/2012 8:38 PM (GMT -7)   
Been sick for about 6 months. I still remember what life was like to feel normal and not scared for my life every day. I did not know what I had then. Sometimes I go into shock and can't believe that it's all been stripped away from me, that this is all happening to me at a young age.

Minnesota
Regular Member


Date Joined Jan 2012
Total Posts : 136
   Posted 6/23/2012 11:10 AM (GMT -7)   
I too have those moments where you think that this can't be happening, a simple bout with the flu that never went away.  Why do others have this and then get better, and resume life as it was?  I just can't believe what some people get through (heart surgert, etc.) and eventually regain health. But not us.......like a bad dream except its reality. To think that I ran a marathon in my pre-illness state.....seems like that was not reality now, and a dream of some sort.  I guess I have gotten used to being tired all the time to varying degrees, but how nice it would be just to have a few hours every so often to have that boundless energy again.  WE can al hope I guess.

finisher
New Member


Date Joined Jul 2012
Total Posts : 3
   Posted 7/1/2012 7:27 AM (GMT -7)   
My problems began with what was finally diagnosed as IBS. This started around 1992 when I was 27. I'm not sure if it was the result of the impact of the IBS (D), but around 30 I noticed that I was very tired a lot of the time. This was never an issue with me as I had always played sports and worked out etc.
I visited every doctor and specialist you can name without any real diagnosis, so finally my GP started calling it CFS. As an avid hockey player I struggled with a lack of strength and energy. I lived on Imodium to get through each work day. I felt a numbness/tired feeling (like the mask of a racoon) around my eyes. I had dizzy spells and balance issues. Inner ear problems were supected, but negative results after checked by a specialist.
My life changing event occurred this past January. I did Dr. Alejandro Jungers 21 day cleanse to lose some weight and got more than I anticipated out of it. I started out at 193 lbs, and finished at 182 lbs. A week or so into it I was falling to sleep in minutes, and waking refreshed, I had got up feeling anything but lousy for 15 years. My blood pressure was 130/90, went down to 115/79 in two weeks. Black lines under my nails that my doctor could not do anything about, mostly disappeared. Black rings under eyes are reduced. My mother commented on the whites of my eyes looking less bloodshot. No Imodium or emergency bathroom breaks required. Had to nap after little phyical exertion, can go for hours doing projects around the house and cottage. Also had daily stomach/intestinal pains, all gone now. The list of improvements to my health and quality of life in general is long.
I believe the statement you are what you eat is more relevant today than ever. Too much processing and use of antibiotics make choosing meals a challenge. I suggest that anyone having CFS, IBS or any ailment give a clean diet a try, you have nothing to lose, and may get your life back.
 
 

Minnesota
Regular Member


Date Joined Jan 2012
Total Posts : 136
   Posted 7/1/2012 6:40 PM (GMT -7)   
Finisher-This intrigues me.  Give me some details on the diet you tried.  I have been thinking about getting a test for food sensitivities, one of the few tests I have yet to have.  At some point you are willing to try most anything to get some of the old life back.  So frustrating to see so many doctors.  My only area of suspicion is the hormones and adrenals.  Some supplements seem to be helping, but just a bit.  D ribose, DHEA and taurine are what I take now.  Reply if you can.  Thanks!

finisher
New Member


Date Joined Jul 2012
Total Posts : 3
   Posted 7/12/2012 8:17 PM (GMT -7)   
Minnesota - I followed the book "Clean" by Dr. Alejandro Junger. The cleanse/diet is based on smoothies, soups and eating organic foods. I still have a smoothie for breakfast each day. I still have plenty of energy and the CFS is history

AlliMuses
New Member


Date Joined Jul 2012
Total Posts : 11
   Posted 7/17/2012 11:22 AM (GMT -7)   
It's only been about 2 years of sickness for me so far, but sadly, I really don't remember what it's like to feel normal. Is that even a feeling? Idk. Anyway, but I'm really learning to appreciate the good days!

CFSchild
New Member


Date Joined Aug 2012
Total Posts : 1
   Posted 8/8/2012 2:49 AM (GMT -7)   
8 years, and sick since I was 10. I don't remember what it is like to be well, I was just a happy, little kid. I wish I did because it would give me hope for the future. There has been no life lived here. Just a childhood robbed. My life is numbed by medications and an unachievable amount of school work. I wonder what I will be left with once I graduate. I must appreciate the things for which I am lucky, even if those around me are much luckier.

Hopegirl
Veteran Member


Date Joined May 2008
Total Posts : 704
   Posted 8/15/2012 9:21 PM (GMT -7)   
I've been sick for about 9 plus years, but I still remember very vividly what it's like to be well.
I tell my hubby all the time......you know how some people wish things like...I wish I had a figure like that, or I wish I had a nice car like that....when you are chronically sick your mind (at least mine does) wonders things like...I wish I had energy and was well like that person is.....

I just always try to tell myself that for as bad as I feel or with all my sickness junk, I know that there are others out there that are much worse off than I am.



-Monica

ativan45
Regular Member


Date Joined Jun 2011
Total Posts : 162
   Posted 8/16/2012 5:45 PM (GMT -7)   
minnesota and others whome this may concern. now I dont know any of you but I believe when you guys are talking about feeling sick all the time your talking about cfs. my question well not question but I can bet most of you if not everyone here is taking a ppi. for those of you that dont know what a ppi is its a medication for acid reflux disease like prilosec, omeprazole, protonix, nexium, acifex.

madisun
Regular Member


Date Joined Mar 2012
Total Posts : 151
   Posted 8/18/2012 9:03 PM (GMT -7)   

hopegirl said...
I've been sick for about 9 plus years, but I still remember very vividly what it's like to be well.
I tell my hubby all the time......you know how some people wish things like...I wish I had a figure like that, or I wish I had a nice car like that....when you are chronically sick your mind (at least mine does) wonders things like...I wish I had energy and was well like that person is.....

I just always try to tell myself that for as bad as I feel or with all my sickness junk, I know that there are others out there that are much worse off than I am.

-Monica

 

 

For me the whole “wishing I was healthy” thing is a lot like wishing to win the lottery.

Other than the basics of being able to work normal hours, finish the study I’m struggling with, and actually having a clean house, and I honestly don’t know what I’d do.

I know that if I won the lottery I’d buy a house… But what kind of house? Where would I want it? Do I have the commitment to have a big garden, or do I want an appartment?

I just have this basic notion that if I was healthy my life would be so much easier, (I’m not going to say better, because if I was never sick I wouldn’t be where I am now, and I LIKE where I am now except the lack of health) but I can’t imagine the details.

New Topic Post Reply Printable Version
Forum Information
Currently it is Thursday, December 14, 2017 12:22 PM (GMT -7)
There are a total of 2,905,434 posts in 318,861 threads.
View Active Threads


Who's Online
This forum has 158218 registered members. Please welcome our newest member, Bob47.
325 Guest(s), 12 Registered Member(s) are currently online.  Details
NicHostetler, Italatin8, landcrab, Purrrsiankitty, eldonkey, Lady89, Scaredy Cat, Bull101, Bob47, OriolCarol, MacroMan, joee