Posted 6/1/2012 1:13 PM (GMT -7)
I am new to the forum and was hoping for some insight and advice. I have been sick for a year. My symptoms include chronic fatigue, headaches, sore throats, nasal allergies that I've never had in the past, weakness in my arms and legs, severe lightheadedness, trouble concentrating at work, intermittent nausea and inappetance, intermittent diarrhea, and an overall feeling of not being well.
I have had many tests and seen many specialists. Tests include but not limited to a brain MRI w/ and w/o contrast; multiple blood panels for organ function; STD screening; RA Factor, sed rate, stool tests, etc. It's really been a million dollar work-up. I've seen internal medicine specialists, infectious disease doctors, a neurologist, and others. I'm seeing a rheumatologist in the next few weeks as well.
My primary care physician told me that I have Chronic Fatigue Syndrome. She works with Dr. Montoya at Stanford and started my on a cource of Doxycycline and Acyclovir for the next six months to see if it helps.
The symptoms came on suddenly last year in June when I was working in Joplin, MO after the tornado. It took months to feel 80% better. In February, I did volunteer work on a small Carribean island and once again experienced full-force symptoms resulting in several weeks of being stuck in bed.
Prior to last year in June, I've been healthy and happy. Since last June, I feel like I've lost all sense of control in my work and personal life. I miss work more frequently, have to leave early, and am unable to fulfill all of my family obligations (thank God for my mom and dad!).
At any rate, I'm struggling with my CFS diagnosis for a few reasons. First, I'm having trouble accepting the fact that my life might be permanently changed and impacted by chronic disease. Second, because I work in veterinary medicine, I have a hard time with my diagnosis because there is not a test for CFS...and my past scientific training plagues me. :( And finally, I feel like if I accept that I have CFS, it means I stop looking for answers...and I could be missing a diagnosis of something that is treatable.
I am sorry to write out a dissertation, but I would really appreciate anyone's feedback, experiences, suggestions, etc. Thank you so much in advance for your support and understanding.