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CFS- Please Help! Every Symptom, but not fatigued or tired?

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Chronic Fatigue Syndrome
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thintz
Regular Member
Joined : Jul 2011
Posts : 22
Posted 6/9/2012 11:19 PM (GMT -6)
I have EVERY symptom on CFS. I however am not fatigued or tired. I do sleep in later than I used to daily...but the rest of the day, my energy is just fine. DR. told me that I have every CFS symptom and according to my research, I must agree. I however...have fine energy once I get my butt out of bed. I stay up until 11:30pm at least every night. Physical Activity does hurt alot more than before, but it does not exhaust me. I walked Sea World on Friday for 3 hours. No pain or exhuastion while there. Pain the next morning though. My energy level is just fine? But...I do fit EVERY other criteria for CFS? I believe it all started with seeing the death of a family member, 5 months later my whole body started falling apart. Insomnia, bowels, twitching, rashes, muscle pain ( sometimes really bad )! Recurring infections, etc. etc. Also no STD's and have been tested 3 times. I have very few of the pressure points for Fibro and no skin sensitivity for Fibro. Dr, said MUST BE- CFS? I have lots of energy though? Help!
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Marrit
Regular Member
Joined : Jan 2012
Posts : 146
Posted 6/12/2012 5:52 PM (GMT -6)
Were you tested for other illnesses that share many of the same symptoms? Lyme is one that comes to mind. Thyroid, etc.
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thintz
Regular Member
Joined : Jul 2011
Posts : 22
Posted 6/12/2012 6:42 PM (GMT -6)
Yes...No Lyme or Thryriod problems- Been tested. I am not fatigued at all? Does that make any sense?
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Marrit
Regular Member
Joined : Jan 2012
Posts : 146
Posted 6/14/2012 4:21 PM (GMT -6)
Been tested for other co-infections if not Lyme?
Remember any kind of bite?
What about parasites like giardia?
Mine began with some type of gastro-intestinal infection that didn't resolve for a very long time. By that time it had become firmly lodged in my nervous system -- at least that is my current thinking.
What about ANA? Autoimmune disorders?
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thintz
Regular Member
Joined : Jul 2011
Posts : 22
Posted 6/14/2012 7:24 PM (GMT -6)
Yes..been tested for all the above. I do appear to have a nervous system dissorder though? I did have c-diff and guardia, have been re-tested and they say both is now gone.

Do you ever have pains below the waist? Mine are ALL pains in the pelvic/pubic region? ALL else is fine.

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thintz
Regular Member
Joined : Jul 2011
Posts : 22
Posted 6/17/2012 10:42 PM (GMT -6)
I had Giardia a while back and took meds. They only tested me once for the clearance though? Why do/did you mention Guardia? Does this cause muscle aches in the body?
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HoldingOutHope
Regular Member
Joined : Jun 2012
Posts : 44
Posted 6/19/2012 2:06 PM (GMT -6)
Visit the Lyme forum...it was suggested to me in the CFS chat room and I am surprised at what I've learned about the inaccuracy of the tests, etc.
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