CFS- Please Help! Every Symptom, but not fatigued or tired?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

thintz
Regular Member


Date Joined Jul 2011
Total Posts : 22
   Posted 6/9/2012 10:19 PM (GMT -7)   
I have EVERY symptom on CFS. I however am not fatigued or tired. I do sleep in later than I used to daily...but the rest of the day, my energy is just fine. DR. told me that I have every CFS symptom and according to my research, I must agree. I however...have fine energy once I get my butt out of bed. I stay up until 11:30pm at least every night. Physical Activity does hurt alot more than before, but it does not exhaust me. I walked Sea World on Friday for 3 hours. No pain or exhuastion while there. Pain the next morning though. My energy level is just fine? But...I do fit EVERY other criteria for CFS? I believe it all started with seeing the death of a family member, 5 months later my whole body started falling apart. Insomnia, bowels, twitching, rashes, muscle pain ( sometimes really bad )! Recurring infections, etc. etc. Also no STD's and have been tested 3 times. I have very few of the pressure points for Fibro and no skin sensitivity for Fibro. Dr, said MUST BE- CFS? I have lots of energy though? Help!

Marrit
Regular Member


Date Joined Jan 2012
Total Posts : 146
   Posted 6/12/2012 4:52 PM (GMT -7)   
Were you tested for other illnesses that share many of the same symptoms? Lyme is one that comes to mind. Thyroid, etc.

thintz
Regular Member


Date Joined Jul 2011
Total Posts : 22
   Posted 6/12/2012 5:42 PM (GMT -7)   
Yes...No Lyme or Thryriod problems- Been tested. I am not fatigued at all? Does that make any sense?

Marrit
Regular Member


Date Joined Jan 2012
Total Posts : 146
   Posted 6/14/2012 3:21 PM (GMT -7)   
Been tested for other co-infections if not Lyme?
Remember any kind of bite?
What about parasites like giardia?
Mine began with some type of gastro-intestinal infection that didn't resolve for a very long time. By that time it had become firmly lodged in my nervous system -- at least that is my current thinking.
What about ANA? Autoimmune disorders?

thintz
Regular Member


Date Joined Jul 2011
Total Posts : 22
   Posted 6/14/2012 6:24 PM (GMT -7)   
Yes..been tested for all the above. I do appear to have a nervous system dissorder though? I did have c-diff and guardia, have been re-tested and they say both is now gone.
Do you ever have pains below the waist? Mine are ALL pains in the pelvic/pubic region? ALL else is fine.

thintz
Regular Member


Date Joined Jul 2011
Total Posts : 22
   Posted 6/17/2012 9:42 PM (GMT -7)   
I had Giardia a while back and took meds. They only tested me once for the clearance though? Why do/did you mention Guardia? Does this cause muscle aches in the body?

HoldingOutHope
Regular Member


Date Joined Jun 2012
Total Posts : 44
   Posted 6/19/2012 1:06 PM (GMT -7)   
Visit the Lyme forum...it was suggested to me in the CFS chat room and I am surprised at what I've learned about the inaccuracy of the tests, etc.
New Topic Post Reply Printable Version
Forum Information
Currently it is Monday, December 18, 2017 3:17 PM (GMT -7)
There are a total of 2,906,838 posts in 319,001 threads.
View Active Threads


Who's Online
This forum has 158345 registered members. Please welcome our newest member, Twinsdog.
402 Guest(s), 9 Registered Member(s) are currently online.  Details
PeppermintTea, Spring, Smara, Lymess, confused132, Pratoman, gabybee, dbwilco, OriolCarol