Could this be chronic fatigue? Weird scary symptoms

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New Member

Date Joined Jul 2012
Total Posts : 7
   Posted 7/1/2012 7:01 AM (GMT -6)   
I'm a 20 year old male, and I've been having worsening symptoms over the last year. It started out a year ago with a tingling/numbness in one area on my back near my shoulder blade. This came and went and I figured it was just a pinched nerve. After a month or two it went away, and I haven't had tingling there since.

However, in January I started having weird symptoms. I'll describe the progression below:

January - March: Limbs would go numb occasionally when sitting indian style or leaning on my arm, etc for any period of time.
May - now:

-Cold water sensation down my legs when walking (worsens when walking in the heat)
-Rain drops sensations all over body
-Numbness and tingling in lower abdomen.
-Stomach pains, pain in lower left abdomen.
-Stools have many white/tan spots. Recently stools have been dark/blackish. They always look soft and are filled with the tiny whiteish globules.
-Pinky and ring fingers on both hands go numb and seem stiff when moved. Also pinky and ring toes on both feet feel weird and not quite there as well. Feels like my hands and feet are losing coordination. I can still move them but it just feels uncomfortable.
-Sharp pains that seem to shoot down my stomach all the way to my sphincter? Hard to describe but they're weird and hurt and feel like they travel from my stomach all the way to my lower intestine or something.
-Dry mouth, dry irritated eyes.
-Little mucus (for my whole life I've had to blow my nose every morning, I guess from allergies or from my family's cats. For some reason ever since all these symptoms started, I've been clearer than ever and have little to no mucus.)
-Little black floaters across my eyes frequently.
-Ringing in ears occasionally, also random ear popping and ear pressure.
-Acid reflux and heart burn.
-Weakness and aches all over, especially in limbs.
-Burning sensations in my heels occasionally.
-Occasional itching in random spots.
-I feel as if I have lost muscle mass, but I could be imagining that maybe. Either way I think I look skinnier than before and have less muscle tone, although I weigh the same (154 pounds).

^^^ most of these symptoms worsen at night, also. the two hours before I sleep and the 2 hours after I wake up are when I feel the weirdest.

I'm probably forgetting something but that's the jist of it. It feels awkward typing and playing guitar now, and semi difficult walking up stairs. I am very worried I will lose my ability to play music : ( playing guitar and piano feels awkward to my hands now.

Brain MRI came back normal. I then went to a neurologist, she ordered a Cervical and Thoracic spine MRI. Those were normal. She then ordered a bunch of blood tests that checked for Sjograns, sedimentation rate, HIV/AIDS, Hepatitis C, and a couple other things I don't remember, but all came back clear. CBC was good, B12 good, no anemia. Now my neurologist is saying Lyme disease test is the next step, although I don't have a rash and can't recall a tick bite anywhere.

Does anyone have any idea what this is? Could it be MS that didn't show up on the MRI's? : ( I'm so scared and feel like my body is falling apart. I don't want to lose my ability to play music and I just want some answers/help.

New Member

Date Joined Feb 2011
Total Posts : 8
   Posted 7/5/2012 9:43 AM (GMT -6)   
Tyler - You do not have the signs and symptoms of ME/CFS. This is good news because there is no cure for this severe neurological disease. Clearly your nervous system appears to be involved, but you do not experience the post exertional malaise upon minimal exertion lasting 24-hours or longer that is unrelieved by rest. Without this combined with memory and concentration problems as well as muscle aches and pains you probably don't have it - if you had PEM you would know it.

As for Lyme disease, you don't have to have had a bulls eye rash. Twenty percent or more Lyme patients never get one. The two tests most commonly used when checking for Lyme disease are the ELISA and the Western blot. These tests detect antibodies present in the patient’s blood that have been triggered by infection with the spirochete, B.burgdorferi. The biggest problem is that they do not tell the clinician whether or not the infection is persistent. As well, you can have Lyme and not have a positive test. Here is more about Lyme -

It also doesn't sound like MS.

Sounds like your neurologist is being conscientious and not blowing you off. That is very important in a doctor. Best of luck.
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