Could I have CFS?

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surfnode
Regular Member


Date Joined Apr 2005
Total Posts : 29
   Posted 8/1/2012 7:03 AM (GMT -7)   
Hi,

I have pondered about this over the last few years whether I could have something such as CFS??

I find that I am severely constantly tired regardless of whether I've had plenty of sleep or not? When I wake up Im tired and always tired throughout the day - getting up is a struggle and a half and I often find that I only leave myself less that 30 minutes to get out of bed and get ready to get myself to work on time. I am constantly physically and emotionally tired and dont know what to do about this? I do not feel refreshed at all!

I do not feel motivated to do anything, I just feel very lazy and that I cant help being in that way.

I seem to struggle with headaches quite often and find that I have general aches and pains the majority of the time.

I also have problems with IBS, dieting, keeping fit and generally find life very difficult - especially work.

I have been off sick quite a few times in my current job in the past couple of years where it got to the point of having to see an occupational health doctor last year.

I always seem to be catching cold, flu, stomach bugs etc. you name it, I catch it!! Its quite embarrassing and I find when Im ill, I just cant cope with work - Im concerned they wont want to hold onto me for much longer.

I am feeling quite depressed at the moment and to top this off I have over the past 12 months been experiencing pain on the left of my chest which usually tends to last for around 10-15 minutes before subsiding. During this, I have to sit down as otherwise get dizzy and often short of breath and find it difficult to talk.

I find it hard to concentrate on things for a long length of time and also feel that I dont listen to people properly, just take it in and then forget a moment or two later.

If I do any intense exercise I will find that I will need to rest a couple days afterwards and this puts me off doing too much at the weekends.

I feel anxious a lot and find that my body deals with this through indigestion/heart burn and diarrhea.

I am currently feeling extremely exhausted and have been crying lots today and only made it into work for 2.5 hours :(

I have doctors appointment booked this evening to discuss my chest pain however I will most likely mention feeling depressed as well.

Recoveryme2day
Regular Member


Date Joined Jul 2012
Total Posts : 335
   Posted 8/1/2012 11:53 AM (GMT -7)   
It is certainly possible that you have CFS, just remember its a disease of elimination. They will diagnose it when they run out of diseases to test you for. It helps if you have/had mono, Lyme disease or any major viral infection, this seems to be the precurser to CFS. And they can only treat the symptoms, just like Fibro and back issues and they are gonna want to stick you on narcotic pain meds, don't go there until you've tried everything else. I have acid reflux which causes IBS etc. I take Dexilant, it actually heals the erosions in the esophogus. I take 150MG of Trammodol 2X a day and suppliment with IBU, I also take Pristiq 50MG, its part anti-depressant and part nor-epanephrine(natural pain killer). I'm, also on thyroid meds and Lithium cause living like this isn't fun, and ALOT of vitamins etc. Good luck, keep us posted, its better just knowing were not alone. smilewinkgrin
Fibromyalgia, Chronic Fatigue Syndrome, Brain Tumor 2nd, crainiotomy 2002, radiation 2007, mild scoliosis, carpal tunnel, surgical menopause, 44yrs old and on disability since 2009.

surfnode
Regular Member


Date Joined Apr 2005
Total Posts : 29
   Posted 8/1/2012 12:14 PM (GMT -7)   
I have been to see doctor and he is referring me for an ECG.

Also I have been signed off for 10 days with Chronic Depression - I was offered anti-depressants however I said no as have previously had ill-effects with these where I had felt worse for about 6 weeks.

accurateinfo
New Member


Date Joined Feb 2011
Total Posts : 8
   Posted 8/6/2012 1:52 PM (GMT -7)   
Hi Christian,

Many patients with severe health issues experience very normal depression - you'd be a bit abnormal if you didn't. But, depression isn't a symptom of any disease and both doctors and patients often mistake the symptoms of disease for depression.

Myalgic encephalomyelitis, sometimes called chronic fatigue syndrome, has nothing to do with laziness or motivation or burnout. All of those are curable - ME and CFS are not.

The IACFSME.org has a primer that you can print out to give your physician if they are unfamiliar with ME and CFS. The $15 donation is worth it to have accurate information that your doctor will find legitimate because it comes from researchers and clinicians who are experts in this disease.

As for determining whether you have ME and CFS here is the criteria commonly used by clinicians:


The 2003 Canadian Clinical Case Definition is summarized as follows and symptoms from all of the categories are required for a clinical diagnosis of CFS.

1. POST-EXERTIONAL EXHAUSTION: There is a loss of physical and mental stamina, rapid muscular and cognitive fatigability, post-exertional fatigue, malaise and/or pain, and a tendency for other symptoms to worsen. A pathologically slow recovery period (it takes more than 24 hours to recover). Symptoms exacerbated by stress of any kind. Patient must have a marked degree of new onset, unexplained, persistent, or recurrent physical and mental fatigue that substantially reduces activity level.

2. SLEEP DISORDER: Unrefreshing sleep or poor sleep quality; rhythm disturbance.

3. PAIN: Arthralgia and/or myalgia without clinical evidence of inflammatory responses of joint swelling or redness. Pain can be experienced in the muscles, joints, or neck and is sometimes migratory in nature. Often, there are significant headaches of new type, pattern, or severity. Neuropathic pain is also a common symptom

4. NEUROLOGICAL/COGNITIVE MANIFESTATIONS: Two or more of the following difficulties should be present: Confusion, impairment of concentration and short-term memory consolidation, difficulty with information processing, categorizing, and word retrieval, intermittent dyslexia, perceptual/sensory disturbances, disorientation, and ataxia. There may be overload phenomena: Informational, cognitive, and sensory overload -- e.g., photophobia and hypersensitivity to noise -- and/or emotional overload which may lead to relapses and/or anxiety.

5. AT LEAST ONE SYMPTOM OUT OF TWO OF THE FOLLOWING CATEGORIES:

A. AUTONOMIC MANIFESTATIONS: Orthostatic Intolerance: E.g., neurally mediated hypotension (NMH), postural orthostatic tachycardia syndrome (POTS), delayed postural hypotension, vertigo, light-headedness, extreme pallor, intestinal or bladder disturbances with or without irritable bowel syndrome (IBS) or bladder dysfunction, palpitations with or without cardiac arrhythmia, vasomotor instability, and respiratory irregularities.

B. NEUROENDOCRINE MANIFESTATIONS: Loss of thermostatic stability, heat/cold intolerance, anorexia or abnormal appetite, marked weight change, hypoglycemia, loss of adaptability and tolerance for stress, worsening of symptoms with stress and slow recovery, and emotional lability.

C. IMMUNE MANIFESTATIONS: Tender lymph nodes, sore throat, flu-like symptoms, general malaise, development of new allergies or changes in status of old ones, and hypersensitivity to medications and/or chemicals.

6. The illness persists for at least 6 months. It usually has an acute onset, but onset also may be gradual. Preliminary diagnosis may be possible earlier. The disturbances generally form symptom clusters that are often unique to a particular patient. The manifestations may fluctuate and change over time. Symptoms exacerbate with exertion or stress.

Carruthers BM, Jain AK, De Meirleir KL, Peterson DL, Klimas NG, Lerner AM, Bested AC, Flor-Henry P, Joshi P, Powles ACP, Sherkey JA, van de Sande MI. Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Clinical Working Case Definition, Diagnostic and Treatment Protocols. J CFS 2002;11(1):7 – 116

Many of these same authors were involved in the 2011 criteria as well.
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