Chronic fatigue and malaise - I need help.

I am 39 years old. I contracted mononucleosis when I was 35 yrs old. It was a horrible experience of intense fatigue. Just when the symptoms began to subside, I was misdiagnosed with endometriosis and given a 3 month treatment of Lupron. Lupron causes you to experience early menopause in an effort to get rid of the endometriosis. Shortly after the end of the treatment I began to feel as though the mono had returned. It started one night when I was drinking wine and suddenly felt ill – sweaty, cold and clammy. After this point alcohol began to make me feel severely intoxicated (nowadays I cannot tolerate alcohol at all). My GI laughed it off and said this would help me save money. My stomach was solid my whole life but now I cannot eat anything without burping or bloating. Then my hair started to fall off and I developed this chronic skin thing on my right eyelid that itched horribly (thanks to these forums I figured out the eyelid thing was due to yeast even though every doctor swore it was an allergy). Next, I began to experience these intense 2-3 week periods of fatigue and malaise that are indescribable. Then the chronic static noise in my ears and pressure in my head set in but it finally stopped. I sometimes had a good week but not anymore. I am lucky if I have a good day. I keep suffering from UTIs and yeast infections. My body is plagued with Candida. I feel like I have the flu all the time. I am thin and work out but it’s getting harder to work out. I feel horribly exhausted when I over exert myself. Doctors don't want to hear me out. They prescribe anti-depressants and medications for fibromyalgia (the medicines make me feel worse due to my stomach problems and weird inability to tolerate them). Although my life changed drastically, I was not depressed but now it is starting to take a toll. At this point I am starting to lose interest in things and feel like I am at the end of my rope. All my physicals come back normal. I don't have HIV or hepatitis. I asked my PCP about my liver and she said it was fine according to the blood test. I was fearful of lupus but the test was not positive. I feel so ill sometimes that I feel as though the life is leaving my body. When the sick feeling gets really intense I think to myself this might be it but nothing happens – at least nothing that would make anyone take notice. This is hell. If you have experienced anything like this, please share anything you may have done to alleviate some of these symptoms. Any help would be appreciated.

Hi tricia,

Have you looked into Lyme disease? A lot of your symptoms match up. The tests are in accurate, so can mess up diagnosis.

In any case, I do hope you will keep looking for answers. There is definitely something going on with your health.

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Co-Moderator Lyme Disease Forum

Keep the faith, Tricia. I have been there, and it can change. Don't lose hope!

x

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Living with Chronic Fatigue, with a happy heart and a clear mind (mostly!!).

'Although my body is unwell, my mind will be well - Thus you should train yourselves.' - Buddha

Hello Tricia, I am so sorry to hear that you are so bad at this early age. I know now that I had fibromyalgia at 40 and the fatigue didnt hit me so bad until about 10 years ago. I am 61 now and I feel I will never make 70. My mom is 81 and is just now going down hill very quickly. She has RA and sjogrens really bad. It is causing all of her internal organs to start drying out. She has neuropathy in her rectum and is in constant pain. At my age she was still a go getter. I have aged 10 years in the past 3 years. I am so exhausted I can barely walk, so I have a wheel chair. I have neuropathy in my feet and hands, but with fibro and the CFS I really dont know what to do. I live in my recliner or my bed. Just recently diagnosed with diabetes is just to much to handle. CFS is like the rotten cherry on top of a $h1t flavored ice cream sunday. Finding a doctor who respects a patient with CFS is rare, especially if they dont believe in fibromyalgia. Keep hunting dear, dont give up. Somehow find the strength. We are all here to help if we can. I exercise in swimming pool as often as I can. I shoot for twice a day. I can only go in when my husband is here tho. I can barely get out of pool alone. I have to make myself exercise. I am so so sorry you are so exhausted. Even if I didnt have severe pain, and just had the exhaustion, it would still be terrible. Maybe someday they will find help for fibro and CFS. Bless you and hope u can sleep tonight...Welcome to this forum, its a safe place to fall when u need it most....regards...Cathy

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I am 61 years young. I have neuropathy in both feet and hands. I have spinal stenosis and arthritis in my back. I am bipolar and with panic attacks. I cannot walk. I choose to stay home all the time. I love living in the country. Its very peaceful.