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Veteran Member

Date Joined Mar 2007
Total Posts : 672
   Posted 9/13/2012 7:32 PM (GMT -6)   
My doctor referred me to a neurologist because Ihave trouble with sentences and spelling words......It is on September 24....
I had a Mri in August on my head and was perfect.
So it leads me to have CFS............
hugs. Caren.
Ps-has anyone gone to a Neurologist............and talked about CFS?

New Member

Date Joined Sep 2012
Total Posts : 11
   Posted 9/14/2012 2:28 PM (GMT -6)   
Yes, I went to a neurologist referred by my PCP and he did nothing to help. He didn't even acknowledge CFS. I ended up two different times in the E.R. and they took MRIs CTScans extensive blood work and nothing came out wrong. The goes to show everyone that they don't know what to look for yet for CFS. Let's pray they find it soon so we can at least get an official diagnosis. I found a rheumatologist who diagnosed me with Fibromyalgia. At least now the government recognizes it and is starting to give people Social Security Disability to those who apply if they cannot work anymore. I'm hoping & praying they'll recognize CFS the same way some day soon! When I went to the E.R. my head felt like it was 100 times bigger and it had lots of pain, and still they saw nothing on those test. I also have trouble with talking when I have full-blown bouts of CFS. Thankfully it goes away and doesn't flare up again until my body gets so badly overworked, so the trick is to take it slow. I can't travel like I used to. Does your PCP recognize the CFS and is willing to send you to other specialists? I recommend asking for a rheumatologist to get diagnosed for least you'll know if you have it or not. All the best.

Regular Member

Date Joined Jul 2012
Total Posts : 335
   Posted 9/28/2012 8:29 AM (GMT -6)   
I had a Neurologist but that was before the CFS, he was the one treating me for the Fibro though after my rheumy gave up. I have to get a new one, mine is too far away now and we had an issue with missed appts. before I was diagnosed with the CFS. It all depends on how informed and open-minded they are and there's always another one if this one's a jerk.
Fibromyalgia, Chronic Fatigue Syndrome, Brain Tumor 2nd, crainiotomy 2002, radiation 2007, mild scoliosis, carpal tunnel, surgical menopause, 44yrs old and on disability since 2009.

Veteran Member

Date Joined Mar 2007
Total Posts : 672
   Posted 9/28/2012 9:08 AM (GMT -6)   
I had to cancel my appointment because I woke with a bladder infection. but I have a new appointment  on October 9th
  Does any one ever get a lot of bladder  infections because of CFS?
Every 6 months  I get one.
hugs, Caren  
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