Posted 9/14/2012 12:46 PM (GMT -6)
I wondered if anyone could help me?
I am currently suffering so much pain....I have a very sketchy (everyone disagrees with each other) Luke diagnosis (please see my other Lyme posts for full story) with the following test results:
Western Blot: IGM : 23-25, 31,39 IND 41+++
' IGG : 31,39 IND 41++ 58+
LTT MELISA 2010: Moderately positive
LTT MELISA 2012: Positive
Regular Lyme test: negative
An LLMD. I saw here in UK seemed 'reasonably' positive it could be Lyme but wasn't too convincing....
I have been suffering for so long with chronic intractable migraine, body pain, muscle twitching, gut problems (started up again after 2 shorycourses of antibiotics and roaccutane: rest of my story on previous posts(
I began a detox with lots of vitamins and adrenal support last year and my pain and nervousness went through the roof so I came off it.
Since then not only do I have my original chronic pain, but I started having cluster migraines, eczema and facial rashes, ankle swelling, weight gain, hypertension,blue feet, tinnitus and noises/music/voices in head increased ten fold, put on.7lb and this gets worse every time I try a medication for my pain, migraine through the roof, extremely dry skin and acne...etc etc all classic signs of arsenal dysfunction.
I am at my wits end as NO pain medication works anymore and I am close to ending my life: the head/eye/neck pain is intense
My doctor says that my immune system/adrenals has gone into overdrive since I came off the detox and needs regulating (all my new symptoms are indicative of this) and wants me to start steroids to regulate these extra horrible arsenal symptoms.
I am just so so worried about going onto them, as I had 3 months worth for Bells Palsy when I was 21 (I am now 39) and although I had no problems it, it was 2 years later that I developed my really chronic neurological pain, which I am now worried could have been Lyme (never proven- again my previousposts detail my symptoms)
I live with my partner and don't even go outside anymore as my body pain and migraine/twitching go through the roof.:-((
Please help me make a decision on the steroids: the nurse at my 'alternative' doctor says they will do the same job as adrenal glandulars, will help regulate my system and I would only be on them a short time...
are there less harsh alternatives to hydrocortisone, albeit a physiological dose of 20mg?
I have had blood test last week and my Potassium level was reasonably normal, my sodium was quite high (ref. range 135-145, mine was 143) and my sodium/potassium ratio was quite high (ref range 26-38, mine 35)
Also my eosinaphil and basonophil counts were low, which can usually indicates I am producing too much cortisol...
my thyroid function shot up from 11.2 to 14.4 on the detox (I was given adrenal glandulars on the detox which caused my pain, nervousness, migraine etc to go through the roof!)
aaaggh! Can it be that my cortisone levels have increased because of all the stress I am under in my chronic pain, and that hydrocortisone would still help me? Or would it just through me into more problems?
I also have high metals/mercury that I am supposed to be starting phospholipid exchange therapy for next week.
( I also bought cats claw and Japanese knotweed in case I feel certain that I have chronic long term neuro Lyme!)
I am in SUCH a mess physically, facially and emotionally. Please help if you can!