Doc can't tell me why I'm always tired

jb2012

New Member

Joined : Sep 2012

Posts : 2

Posted 9/25/2012 5:59 PM (GMT -7)

Hey there,
Like many of you, I've been struggling with fatigue for awhile. Long story short, I was severely deficient in vitamin D and, around the beginning of the year, began a monthly regimen to get my counts back up.
It has helped and I'm no longer technically "deficient," but I am still almost always tired in spite of getting lots of rest. I went to a work conference nearly a month ago and haven't felt back to 100 percent since.
The other day, I was so tired, I just cried in my bed before breaking down and going to see my doctor for a second time.
I've been tested for all sorts of things - lyme disease, thyroid problems, etc, but he can't ever really find a reason for my fatigue.
How would I go about finding out if I have chronic fatigue? What are the criteria for a diagnosis?
A friend of mine who has fibro says a lot of my symptoms sound like hers began before she was diagnosed. But I don't have tender points or an overwhelming amount of pain.
I'm just tired of being tired.

Recoveryme2day

Regular Member

Joined : Jul 2012

Posts : 335

Posted 9/28/2012 6:53 AM (GMT -7)

I would have your doc test you for the Epstein Barr Virus and Mono, since he tested you for Lyme already, those are the other 2 blood tests for detecting CFS. if that doesn't work have him send you to an Endocrinologist for an Adrenal panel. You didn't say anything about a Thyroid problem but the Endo will check that too. Keep us posted.

Fibromyalgia, Chronic Fatigue Syndrome, Brain Tumor 2nd, crainiotomy 2002, radiation 2007, mild scoliosis, carpal tunnel, surgical menopause, 44yrs old and on disability since 2009.

lisab88

Regular Member

Joined : Sep 2012

Posts : 191

Posted 9/29/2012 5:25 PM (GMT -7)

I'm sorry to hear about what you are going through. I do have fibromayalgia and like you have been struggling lately with being tired every day. And like you it just came about one day, no real explanation why.I haven't been to my Dr yet about this new tiredness which at times can be pretty severe. I don't have health insurance and I get tired of people telling me that I just need more rest. I know when theres something going on that doesn't feel right as I'm sure you do as well. I wish you alot of luck and just wanted to write and tell you that your not alone

greatunclebill

Regular Member

Joined : Oct 2012

Posts : 144

Posted 10/10/2012 3:06 PM (GMT -7)

sleep apnea has many symptoms. some people have one or two or many, but the most common symptom to all patients is the fatigue. if you wake up more tired than when you went to bed you could have it. if you are sick and tired of being sick and tired you probably have it. forget all the stereotypes about snoring, overweight and age & get checked.

gout, sleep apnea, asthma, copd, high BP & cholesterol, Gerd, light headedness, muscle weakness.

~SimplyUs~

Regular Member

Joined : Aug 2012

Posts : 205

Posted 10/22/2012 11:49 PM (GMT -7)

no test diagnoses cfs. Google cfs diagnosis. You have to be fatigued to a point for a minimum amount of time. Maybe you should se a different dr...one that is profecient in cfs/fibro.

Hanging in there like a monkey on a vine, knowing that through this journey; there is something positive to find.

ladybugdreams

Veteran Member

Joined : Jun 2008

Posts : 732

Posted 10/23/2012 7:31 PM (GMT -7)

jb2012, welcome to the forum. I am sorry you are having such a time with fatigue and getting a diagnosis. CFS is an illness dx'd by exclusion. The symptoms can mimic so many other illnesses so your doctor has to do a lot of tests to rule them out. It sounds like your GP is doing just that. Were blood tests done to rule out auto-immune diseases? Criteria for CFS is unexplained fatigue for a duration of 6 months or more & at least 4 of the following symptoms. Memory/Concentration problems, sore throat, enlarged lymph nodes, headache, muscle pain, joint pain, unrefreshing sleep, extreme exhaustion lasting more then 24 hours after exertion. I hope this helps. Be patient because a dx can take awhile but you want you doctor to be thorough. Seeing a Rheumatologist is also a possibility, I was dx'd by a rheumy. Please ask questions & we will be happy to answer you. CFS is a very confusing illness. Many hugs, Denise

Fibromyalgia-dx'd: 2006, ME/CFS-dx'd: 2006, Holt-Oram Syndrome dx'd 1975, reduced lung capacity dx'd 2009, nasal allergies, food allergies, depression (lifetime problem) IBS, neuropathy in hips

I have 4 children & 7 grandchildren.

As apples of gold in silver carvings is a word spoken at the right time for it. Prov. 25:11

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