can somebody please help me! please

please help!!!!
1
ebv - 100.0%
0
I dont know - 0.0%

 
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iwantmyhealthback
Regular Member


Date Joined Oct 2012
Total Posts : 83
   Posted 10/1/2012 12:50 PM (GMT -7)   
hi. im new in here, and I would like to get some advice. I've been feeling sick for a month now, my main complaint is fatigue, body aches, all over, tremors, racing thoughts, just the feeling that im not myself. I went to see a internal medicine doctor and she ran some blood work. she called me and said it was a virus, just that.  after a week of feeling exhausted and feeling like I was going crazy , I called and asked her what kind of virus I tested positive for, she said epstein barr virus. I developed sinus and crazy allergies, besides my body still aches. I went to see a allergy and sinus specialist and when she saw the results of my blood work that i brought with me from the internal medicine doctor, she said that it look like I HAD the virus before but not current. so I dont know what to belive. Im a 30 year od female, mom of two young kids, and it breaks my heart that my babies see me like this. I dont know who to talk to, Im scared my husband might be getting tired of me talking about it. I developed anxiety from this. in the end, the allergy doctor prescribed predinsone 20 mg ( which I did my research online I found the reason why i havent been able to sleep for the last 3 nights) for 7 days and levofloxacin which has help me a lot, cause the sinus and allergies are gone. here are my blood work results. is there anybody can help me read them and see if the ebv is current or if i had it in the past, or what is going on....I dont know what to do anymore. I know my body, and i know there's something going on with my thinking, cause Im a happy person, and now its seems like im always tired and very sad. I am the rock of this family and i feel like Im falling apart. thank you in advance
EBV VCA IgG 141.0 (SEE BELOW U/ML) H
EBV VCA IgM <10.0 (SEE BELOW U/ML)
EBV EARLY AG IgG 14.1 (SEE BELOW U/ML) H
EBV NUCLEAR ANTIGEN IgG 15.2 (SEE BELOW U/ML)
 

Recoveryme2day
Regular Member


Date Joined Jul 2012
Total Posts : 335
   Posted 10/4/2012 2:43 PM (GMT -7)   
Welcome to Chronic Fatigue Syndrome, unfortunately thats what that diagnosis means. EBV is one of the viruses they've detected that causes it and since they can only treat the symptoms, the disease has no treatment, that is what you Dr. did. If you are the main breadwinner or something like that, get help NOW, cause that is over! This is a lifetime illness and Dr. will act like you're a Leper because they don't have a clue and their arrogant jerks! I'm sorry but that's the cold, hard truth, start researching herbal supplements, some of us have found mild releif with Magnesium, learn to be your own advocate and keep in touch, your not alone.
Fibromyalgia, Chronic Fatigue Syndrome, Brain Tumor 2nd, crainiotomy 2002, radiation 2007, mild scoliosis, carpal tunnel, surgical menopause, 44yrs old and on disability since 2009.

ladybugdreams
Veteran Member


Date Joined Jun 2008
Total Posts : 726
   Posted 10/5/2012 1:19 AM (GMT -7)   
Welcome Iwantmyhealthback, to the forum. I am sorry I can"t help you with your question about your EBV blood work results, I do not have EBV. I think I would go back to the internal medicine Dr and ask what her opinion is, is it an active illness. Or ask your GP to rerun the test to see if it is currently active. If it was in the past it could be that you now have CFS. If it is Epstein Barr Virus there could be treatments for you to try. I always hope it is something like this that can be treated & not CFS. Your symptoms are applicable to both and CFS is dx'd by excluding anything else. No matter what, you must get to the bottom of your health issues so go back to your other Dr's or find a new one but be proactive, it is your health & your body. I hope you find your answers & please keep us posted. My soft & gentle hugs, Denise
Fibromyalgia-dx'd: 2006, ME/CFS-dx'd: 2006, Holt-Oram Syndrome dx'd 1975, reduced lung capacity dx'd 2009, nasal allergies, food allergies, depression (lifetime problem) IBS, neuropathy in hips

I have 4 children & 7 grandchildren.

As apples of gold in silver carvings is a word spoken at the right time for it. Prov. 25:11

Recoveryme2day
Regular Member


Date Joined Jul 2012
Total Posts : 335
   Posted 10/6/2012 1:49 AM (GMT -7)   
EBV is CFS or one of the few ways it can be detected and there is no treatment, symptoms can be treated if you find a Dr. who deosn't treat you like a Leper(I haven't yet) and its permanent. Apparently Dr.'s say it goes into remission but timeframes are from 6weeks to 9months, I'm still waiting, its been over a year.
Fibromyalgia, Chronic Fatigue Syndrome, Brain Tumor 2nd, crainiotomy 2002, radiation 2007, mild scoliosis, carpal tunnel, surgical menopause, 44yrs old and on disability since 2009.

T34flygirl
New Member


Date Joined Sep 2012
Total Posts : 10
   Posted 10/7/2012 4:39 PM (GMT -7)   
Hi iwaantmyhealthback...over a year ago, I almost settled for the dx of having CFS, but symptoms were getting worse and no PCP could tell me what it was. Finally was told to go to a rheumatologist, he said I had Fibromyalgia and then after running several tests discovered I had lupus. Now if I had stopped at believing it was only CFS, i would be one sick puppy. But thats not the end....after about six months of being on meds for the lupus i started getting different kinds of symptoms thinking it was just the lupus, but i know my brain and i wasnt feeling right and the rheumy was puzzled. So a friend suggested i get tested for lyme disease...so off i went to a lyme specialist, called a LLMD, lyme literate md. She ran so many tests and found that I have EBV, mycoplasma, yersinia, anaplasma and candida and that a lot of hormone levels, etc...are way off...sp she is treating me appropriately. I'm telling you all of this because, maybe...just maybe you have something else going on inside. One thing is for sure, most doctors dont takd CFS seriously at all, i even had an old geezer rheumatologist tell me that its not real. What!? I never went back to him. Dont stop looking until you find some answers. And about your hubby...men generally want to help their women when they are sick so let him and keep him informed when you learn new things along the way.

Hugs,

Tracy

iwantmyhealthback
Regular Member


Date Joined Oct 2012
Total Posts : 83
   Posted 10/10/2012 8:06 PM (GMT -7)   
thank you so much for the reply. Im going back to the allergies doctor friday., I will let you guys know what she said,. I've been waking up in the middle of the night covered in sweat, (gross), I have no idea why is this happening. I know for a fact I NEED better medical care, like a GOOD doctor. I called the internal medicine doctor the other day to tell her I was having stomach pain and she never called me back :( which makes me really frustrated because I feel that somehow I dont have a doctor that can actually talk to me and make me feel better by telling me and explain to me why all this other things are happening right now. Im doing my own research, taking multivitamins, also b12 and some calcium magnesium I found at the whole foods store. Im taking advantage of some benefits we get thru my husband job, they offer 5 free counseling sessions with a therapist for whenever life gets very stressful to employees or family member (and now it seems to be the right time for me to use it)and I already went to my first visit, it wasgreat. Im going back friday. I've been feeling better though, I have more energy but Im still in pain during the day, did i mention that the internal medicine doctor said that if I come back in two months (which it was a month ago already) with the same symptoms, she will diagnose me with fibro?? i just dont get it, how did I go from super healthy to fibro in 3 months? does it makes sense? not to me. Im fighting with everything I have, my heart, my mind, my soul. and most of all, my love for my two kids that keep me alive and a relationship with God that is giving me strenght. I really appreciate everybody for responing. I belive there should be more awareness about this, and more doctors that people can go to with this situations. In order to feel better, I started looking for a new doctor, I found doctor Patricia Salvato here in houston (anybody knows anything about her????) but they said they will call me back within 48 hrs in order to make an app. Im still waiting. But like I said, Im not giving up, besides taking vitamins, going to therapist ,Im going to start yoga, I actually went today but the schedule was messed up and instead of yoga they had kickboxing cardio, hahaha, well, I tried, but im exhausted. i will stick to yoga. thank you guys for reading my story. it meant a lot to see I had replies. and I want you to know, that WE are not alone. We can always talk to each other, we just need to reach out for help. thank you so much.
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