Posted 10/5/2012 6:41 PM (GMT -7)
Hi Edamommy, nice to meet you. I am a 60 yr old woman with 4 grown kids and 7 grandchildren. I was dx'd with CFS and Fibro in 2006 but I had both of them longer then that. It took me several years of looking & going through every test my Dr's could think of to finally settle on the dx of Fibro first & then within a few months CFS was added. CFS is my primary illness & keeps me very disabled, I receive SSD for both the Fibro & the CFS, I have a few other things going on as well but these to me are the worst. I believe I ended up with FM & CFS due to overwhelming stress over 3 to 4 years. My grandson was born with a bad heart & over the 3 or so years it was an up & down ride with us always waiting for the other shoe to drop. Every time we though he was on the mend the bottom would fall out of my little bubble I lived in & then the Dr's would come through with something & save his life. He is doing great now & we are very blessed. It was during this time that I became very ill & just could barely push myself out of bed or go to work. Fortunately, I had a Dr who believed in both of my illnesses & I have been able to keep my pain under control & I do get lots of sleep at night because of the meds I take. The GP I have now does not seem to be sure if they even exist so I may have to look around for a new one soon, he has continued with the meds my first GP gave me so that's good.
I hope you will find a good Dr soon, I wish there was a pill we could take to feel better. We pretty much have to be our own advocate & find ways to help ourselves feel better. I have found, for me, that caffeine helps give me a boost when I need it. Also, I take vitamin D3 & a multiple vitamin each day. I have tried B 12 sublingual but it didn't really help me at all. I am going to try coQ10 & magnesium because I have heard they can help with energy some. I sleep 10 to 12 hrs each night with a muscle relaxer & Trazadone but I still wake with no energy. How I want my old life back. Take care of yourself & keep posting. Hugs, Denise