work giving me pressure about days off

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Snue
Regular Member


Date Joined Feb 2005
Total Posts : 194
   Posted 10/25/2012 7:23 PM (GMT -7)   
This is so frustrating. I applied and received family medical leave act so i can take off time when I don't feel good and whenI have to go to the doctor without getting in trouble, and they aren't even allowed to speak to me about a doctors note without going through human resources. So they gave HR all this pressure to ask me why i have to go to my appointments mid day and not in the afternoon after workin half a day. Why can't I "rest on sundays" instead of taking off an occassional monday when I don't feel well.

There is no support and no understanding of what I am going through and no caring about their struggling employee. I am very disappointed in them especially after I've been there for 13 years. Makes me nervous about my job and what I should be doing. I feel so drained and that I can't get to work. And i need my job for my health insurance. So i am not sure what i should be doing. So frustrating. UUUGGGHHH

So frustrating, as you all know.

ladybugdreams
Veteran Member


Date Joined Jun 2008
Total Posts : 726
   Posted 10/26/2012 1:16 AM (GMT -7)   
Snue, I know just how frustrating it is. I went through the same things. I wanted to be a good employee & I tried really hard to do my best but the days off due to illness, the days I could only make it half days & the times off for Doctors appointments was just too much. I finally realized after months of this that I was not doing my job well enough & decided I had to quit my job. When I did quit my employer thanked me. I know they were trying to keep me but were to the point they had to do something so my days were numbered anyway. I had been in my position for years & had been one of their better employees but none of us knew how to handle me with an illness. I was really upset at first but over the years have come to realize I am not employable. I am now on Social Security disability and have come to terms with the fact I can't work due to both CFS & Fibro.

Are you married & does your spouse have an income you can live on until you can find your way? If you have to work, just do your best, that's all you can do. I know for me I tried to get to work on time but I was always sleeping hours into when I should be at my desk, it was affecting everyone at work. I hope you can get your work schedule ironed out & you can stay on top of it. Take care & please come here & vent. Many soft hugs, Denise
Fibromyalgia-dx'd: 2006, ME/CFS-dx'd: 2006, Holt-Oram Syndrome dx'd 1975, reduced lung capacity dx'd 2009, nasal allergies, food allergies, depression (lifetime problem) IBS, neuropathy in hips

I have 4 children & 7 grandchildren.

As apples of gold in silver carvings is a word spoken at the right time for it. Prov. 25:11

Snue
Regular Member


Date Joined Feb 2005
Total Posts : 194
   Posted 10/26/2012 10:55 AM (GMT -7)   
Thanks Denise for the support and kind words.  I just feel so drained, my limbs feel so weak, and I'm just so tired.  It's really depressing (as you know).  My partner who i live with is a muscian.  He is SO supportive and loving and would do anything to help me.  He doesn't make tons and has no health insurance so I cant jump onto his plan or anything. I am the one with the steady income and insurance.  So that's an added pressure.
 
I am trying my best and that's all i can do.  Half the battle is in my head.  Telling myself these are real feelings and symptoms I am having and they are not all in my head. 
 
Thanks again for replying, it's nice to not be alone with this.
Susan
~~Susan~~
Dx 2002 Fibromyalgia
Also have RLS, UARS (like sleep apnea), hypoglycemia and arthritis (neck and knees).
Dx 2012 with Chronic Fatigue Syndrome.
Trying to stay positive and live one day at a time.

ladybugdreams
Veteran Member


Date Joined Jun 2008
Total Posts : 726
   Posted 10/26/2012 5:34 PM (GMT -7)   
Susan, it is so nice you have a supporting partner, a lot of people don't. My husband was very supportive of me until he died unexpectedly 3 years ago. When he died I had no insurance or income & lived for about a year with my daughter supporting me. It was hard until I got my Social Security disability & Social Security spousal support. We were totally unprepared to say the least.

Do you feel like you can really still work or is it wishful thinking? I spent a good 2 or so years thinking I was just being lazy & I could go back to work at any time. I thought I wasn't really ill. But one day it hit me I was ill & I had an illness. Some can work with CFS if they pace themselves & if it is the right job. You must work within your energy envelope, have you read the spoon theory? You can find it on the Fibro forum under the Fibro 101 thread. What you are feeling are real feelings & real symptoms. Depression is something we have to deal with too. It is the same with any illness because of the loss of our lives as we knew them. But you still have a life, you just have live it differently & at a different pace.

I am sorry you are going through this. It is so hard & overwhelming but you can and will get through it. Pace, pace, pace. Don't overdo anything because you will get a double whammy with both FM & CFS. Take care, Hugs, Denise
Fibromyalgia-dx'd: 2006, ME/CFS-dx'd: 2006, Holt-Oram Syndrome dx'd 1975, reduced lung capacity dx'd 2009, nasal allergies, food allergies, depression (lifetime problem) IBS, neuropathy in hips

I have 4 children & 7 grandchildren.

As apples of gold in silver carvings is a word spoken at the right time for it. Prov. 25:11

Snue
Regular Member


Date Joined Feb 2005
Total Posts : 194
   Posted 10/26/2012 8:55 PM (GMT -7)   
Thanks again Denise. I love having the support from this forum. Thank you so much for your kindness, it really means a lot to me. And thank you for your insights! Hugs back to you, Susan cool
~~Susan~~
Dx 2002 Fibromyalgia
Also have RLS, UARS (like sleep apnea), hypoglycemia and arthritis (neck and knees).
Dx 2012 with Chronic Fatigue Syndrome.
Trying to stay positive and live one day at a time.
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