Post-viral fatigue/CFS and nausea/digestive problems

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lindsay0891
Regular Member


Date Joined Jul 2012
Total Posts : 302
   Posted 11/16/2012 3:50 PM (GMT -7)   
To make a long story short, I came down with a virus in April and have not felt well since. There were some clues before I got sick like short spells of fatigue and nausea, but for the most part I felt good until April. The virus I had consisted of low-grade fever, fatigue, dizziness, lightheadedness, aches and pains in my ribs and back, no appetite, and some nausea and vomiting. The main part lasted a little over a week, then came back in the middle of May and then it has just been off and on. For a while I woke up with severe nausea every morning and would vomit most of the time, thankfully that has gone away. My fatigue hasn't been too bad but every now and then I will get hit with a wave of extreme fatigue, and I need a lot of sleep to feel normal. I also feel much better late at night, which has caused me to stay up until 3 or 4AM every day and sleep until 1 or 2PM. Now the digestive symptoms are terrible gas, sometimes with severe pain, and also nausea that comes and goes. I also feel lightheaded a lot, but not the typical lightheadedness, more like my brain's about to just shut down. I get some heart palpitations too; my doctor said this is normal in women but I didn't really get them until I was sick.

I have good days and bad days, and I'm convinced that nothing really serious is wrong with me because it's not getting worse. The only thing doctors have been able to find is the Epstein Barr virus in my blood, which is not active. I do have a swollen lymph node in my neck though, and it's been there for at least 5-6 months.

I know the fatigue and other issues can be post-viral but how about the digestive problems? Has anyone else gone through something similar?

ladybugdreams
Veteran Member


Date Joined Jun 2008
Total Posts : 726
   Posted 11/16/2012 7:27 PM (GMT -7)   
Hi Lindsay, has your doctor mentioned CFS to you? Is this something they are looking into? You certainly have some symptoms that could be CFS like your fatigue, lightheadedness, dizziness, swollen lymph nodes. etc. I get slight nausea from CFS but not to the extent that you do so I can't help you much with that. I went to the Mayo Clinic site to check but could find nothing on nausea & vomiting. I did have some issues with nausea when I first was sick but I was able to find out I have an allergy to soy. I, also, had gas, pain & bloating from it. You might check into some kind of allergy. Are you lactose intolerant? Just throwing some things out here.

I know what you mean about sleep, I go to bed at about 3 AM & wake up between 2-3PM. LOL I need a lot of sleep with this illness. But I take a muscle relaxer & Trazadone to help me sleep & I think that is part of the reason I sleep so much. But because I sleep so much better now I can function better each day. I have good days & bad days.

I hope you get all of the testing you need to rule out anything else, the symptoms you have could apply to many different illnesses. Keep at it & get a diagnosis. My prayers & hopes go out to you. Hugs, Denise
Fibromyalgia-dx'd: 2006, ME/CFS-dx'd: 2006, Holt-Oram Syndrome dx'd 1975, reduced lung capacity dx'd 2009, nasal allergies, food allergies, depression (lifetime problem) IBS, neuropathy in hips

I have 4 children & 7 grandchildren.

As apples of gold in silver carvings is a word spoken at the right time for it. Prov. 25:11

lindsay0891
Regular Member


Date Joined Jul 2012
Total Posts : 302
   Posted 11/16/2012 8:13 PM (GMT -7)   
Well most of my doctors seem to think it's still from having mono and that led me to research post-viral syndrome and CFS. One doctor did mention CFS but I only saw him once (it was a walk-in clinic) so I couldn't get a definite diagnosis. My doctor now pretty much says it's from mono, it'll go away, and I'm perfectly healthy otherwise. But after 7 months I'm not so sure it'll go away. She did suggest lactose intolerance but I don't notice any major trouble with milk products, and actually I haven't had any dairy today but my stomach's still a mess. It's funny you mention soy though, I had soy milk on cereal earlier and felt really sick afterwards, but I've eaten it before with no problems. I've also been tested for gluten intolerance which was all negative.

Recoveryme2day
Regular Member


Date Joined Jul 2012
Total Posts : 335
   Posted 11/17/2012 3:48 PM (GMT -7)   
I have EBV version of CFS although I didn't know they could tell it was active or not other than by symptoms. Of course my docs all act like I have the plague or something the doc who diagnosed me wouldn't even tell me what it was, I had to come here to find out it was some strain of mono(which I never had) and my current and aslo temp doc told me "its not treatable, except for the symptoms, and I leave that up to your specialists." Is there a specialist for EBV/CFS? I doubt it, I've had the entire gamut of symptoms including naseau, diarhea, constipation, vomiting and now vertigo which no one will touch. I literaly vomited for a months, I couldn't keep water, chicken broth or my medications down on and off, one day stuff would stay down the next, not. I ended up in the ER for dehydration and pain, lost 12lbs and my pcp docs contribution was a script for zopham(it worked once or twice)and a ref. to a gastro who freaked out on me told me I needed to go back to the hospital but wouldn't schedule me an endoscopy? I've seen an ENT who didn't have an opinion either except that I needed to see my neuro doc. So my DX so far is food allergies, I've had gluten, wheat and lactose intolerance for about 7yrs. Those tests are wrong about 70% of the time and the only way to really be sure is to stop eating whatever you think its for 2weeks and then add it back in and see what happens. Oh and check out the Celiac link, thats where I get all my info. I apologize for ranting on your post but I just started getting dizzy, naseau vomiting again yesterday, hopefully because I ate a hamburger with bun, I've been good for almost a month otherwise and I have felt somewhat better.
Fibromyalgia, Chronic Fatigue Syndrome, Brain Tumor 2nd, crainiotomy 2002, radiation 2007, mild scoliosis, carpal tunnel, surgical menopause, 44yrs old and on disability since 2009.

lindsay0891
Regular Member


Date Joined Jul 2012
Total Posts : 302
   Posted 11/17/2012 4:28 PM (GMT -7)   
Wow, with all that nausea and vomiting it sounds like you've got it worse than I do. I vomited most mornings for about two months, then it was an occasional thing for a while, and now it's disappeared *knocks on wood*. I haven't thrown up since late September.

I have been tested for celiac disease and I don't notice any trouble when I eat wheat so I don't think that would be my problem. I think lactose intolerance and soy intolerance are possible though.

ladybugdreams
Veteran Member


Date Joined Jun 2008
Total Posts : 726
   Posted 11/17/2012 9:50 PM (GMT -7)   
My heart goes out to you two, I wish I had some kind of pill or supplement for you to take & suddenly you are all right. I can't even imagine having such nausea & vomiting every day. I am so sorry.

When I first got sick, I decided it must be something I was eating so I quit pretty much everything. I chose oatmeal with raisins as my only food. I have no idea why I chose that but I did. After I started to feel somewhat better (about 3 days) I added one type of food (such as dairy) & ate it for 3 or 4 days before adding another. I was doing well until I ate soy & bam that was it. The only other thing I had left to try was wheat so after I went off the soy I waited 3 days & I ate wheat which caused me no problems. Without soy I no longer was nauseous but still sick so I finally was dx'd with Fibro & CFS also.

I really do hope you get your illnesses under control & are able to get doctors to listen to you. It is no fun to have illnesses that others don't take seriously. Soft & gentle hugs, Denise
Fibromyalgia-dx'd: 2006, ME/CFS-dx'd: 2006, Holt-Oram Syndrome dx'd 1975, reduced lung capacity dx'd 2009, nasal allergies, food allergies, depression (lifetime problem) IBS, neuropathy in hips

I have 4 children & 7 grandchildren.

As apples of gold in silver carvings is a word spoken at the right time for it. Prov. 25:11

lindsay0891
Regular Member


Date Joined Jul 2012
Total Posts : 302
   Posted 11/18/2012 12:51 PM (GMT -7)   
Thanks. :)
I'm almost certain I have an issue with soy but I don't eat it very often so it's not too big of a deal to give up. My nausea isn't too bad now and wasn't yesterday except in the morning, my main issues now are fatigue and heart palpitations, which I might be able to blame on my period.

Armelle123
New Member


Date Joined Nov 2012
Total Posts : 7
   Posted 11/20/2012 1:08 AM (GMT -7)   
Call me stupid but I want to reply to Lyndsay and I don't seem to be able to do it. Someone else wrote to me and my answer will go to that person. Help

lindsay0891
Regular Member


Date Joined Jul 2012
Total Posts : 302
   Posted 11/20/2012 2:15 PM (GMT -7)   
Do you not have the "quick reply" box at the bottom of the page? That's what I use.

lindsay0891
Regular Member


Date Joined Jul 2012
Total Posts : 302
   Posted 11/20/2012 4:24 PM (GMT -7)   
Or if you want, feel free to email me (click the envelope under my username and it should go to my email). It sounds like we have a lot in common with our symptoms.

Minnesota
Regular Member


Date Joined Jan 2012
Total Posts : 136
   Posted 11/24/2012 7:12 AM (GMT -7)   
Lindsay-Greetings. My ordeal all started with a virus just about 2 years ago.  I would have never guessed the journey I was about to take given that this was relatively mild as well.  I lapsed into most of the symptoms you mentioned.  Even the nausea.....about a year ago I dealt with divertculitis, which is some eroding of the intestine wall. I had a colonoscopy to find this (fun stuff).  This thankfully abated after an anti biotic.  However, the fatigue and brain fog/lightheadedness have persisted to this day.  My only test result that has some back suspect is an anti body that attacks the thyroid.  I just discovered this, and my doc is coming up with a treatment plan.  With a viral onset, you should have tests performed that see if your immune system is in overdrive. One theory being that this was activated when the intial virus hit, and then it never regulated itself to shut off. When that happens, fatigue and cloudy thinking result.  See ifyour doctor can do this....it may reveal something!

lindsay0891
Regular Member


Date Joined Jul 2012
Total Posts : 302
   Posted 11/24/2012 2:06 PM (GMT -7)   
Thanks. I've had ANA antibodies tests, is that what you had or was it something else?
Do you have any metabolic issues like getting lightheaded if you haven't eaten for a while and getting extremely tired after a big meal? I have to eat every two hours now and it's pretty annoying.

Megan_644
New Member


Date Joined Mar 2013
Total Posts : 7
   Posted 3/21/2013 12:51 PM (GMT -7)   
Lindsay, I also have bad sickness, I don't vomit but I am sick every day. I have tried many tablets but none work, I am to looking for something to help. A friend of mine has cfs to and has acupuncture which helps them a lot, hope this helps you. Megan :)

ShanDev
New Member


Date Joined Apr 2013
Total Posts : 4
   Posted 9/26/2013 8:12 PM (GMT -7)   
Has anyone here been tested/spoken with a specialist about (Viral) Vestibular Neuritis?

http://en.wikipedia.org/wiki/Vestibular_neuronitis
http://vestibular.org/labyrinthitis-and-vestibular-neuritis

And regarding the extreme fatigue, please see the motion-sickness related items above, as related to the below explanation of how motion sickness can sometimes manifest as extreme exhaustion, fatigue and mood changes, absent of nausea, called Sopite syndrome.
http://en.wikipedia.org/wiki/Sopite_syndrome

I hope this information helps some out there who may be affected.
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