Posted 1/30/2013 1:08 AM (GMT -7)
BlueD, I want to welcome you to the forum. It is so sad that you have been dx'd with CFS. I am sorry. This is not a fun illness by any means but it is important to come to terms with it. It is very hard to deal with the fact that your life will not be the same as before & you need to live it within your means, within your energy envelope, so expect to grieve your old life. With pacing & really listening to your body you can have a life, definitely a different life from the old one. You will soon learn how much you can do on any given day. Some days I can do lots more then others, some days I am recouperating from what I did the day before but it is a trade off. Everyone is different with this illness & in having something work for them. I used to work, garden, make jewelry, loved to cook, I cleaned a four bedroom house, etc & never thought a thing of the energy I used. Now, I am on the computer, I crochet, I read, I visit & watch tv, I sleep 10 - 14 hours per night. Quite a difference but I am happy. I hope you can find your way.
For CFS, I use a muscle relaxer, Tizanidine & Trazadone for night pain & it helps me to go to sleep, stay asleep or go back to sleep if I wake up. I also, use Magnesium Malate for cognative problems & fog, I use 85% cocoa dark chocolate for alertness, energy & fog. I take a multivitimin & vit D3. I have just started the magnesium Malate & hope to see an improvement soon. My biggest problem is the fatigue, malaise & lack of energy. Please feel free to ask any questions you need to. Hugs, Denise
Fibromyalgia-dx'd: 2006, ME/CFS-dx'd: 2006, Holt-Oram Syndrome dx'd 1975, reduced lung capacity dx'd 2009, nasal allergies, food allergies, depression (lifetime problem) IBS, neuropathy in hips
I have 4 children & 7 grandchildren.
As apples of gold in silver carvings is a word spoken at the right time for it. Prov. 25:11