Soo Frustrated!

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BlueD
Regular Member


Date Joined Dec 2012
Total Posts : 28
   Posted 1/31/2013 1:05 PM (GMT -7)   
I am so frustrated and almost feel let down.

I used to be able to work full time!
I used to be able to go to the mall and walk around!
I used to be able to go to walmart and walk around!
I used to be able to clean my house, now I am lucky If I can clean the cat litter!

I feel so robbed! I want to be able to do those things again, but I am so completely exhausted that I can't get my energy levels back up!

Help!

ladybugdreams
Veteran Member


Date Joined Jun 2008
Total Posts : 726
   Posted 2/1/2013 12:28 AM (GMT -7)   
BlueD, I know how hard it is. What you are going through is a grieving process. We have to grieve our old lives & somehow come to terms with having an illness that has changed our lives completely. I remember being where you are, so angry that my life was different & I had lost control of it. Also, sad & afraid that I was always going to be this way. I then spent months trying to gain control again, pushing myself & being slapped down by this illness again & again. This is a hard process but let me tell you that you will get through it, you will find your way with being chronically ill. I just started reading a book called "Chronic Fatigue Syndrome, a treatment guide", I am learning so much I didn't know & feel empowered with what I figured out on my own. I would recommend it to you. I downloaded it for only 2.99 from Amazon.

Take it one day at a time & pace yourself. If I don't feel well when I get up, I usually do some light housework but spend most of the day on the couch resting. On good days I get myself cleaned up & go out for awhile, do my shopping, get my mail, pick up prescriptions, etc. I try to live on those days even though they are fewer then my bad days. I hope you are doing better, I saw you have other illnesses as well, so hang in there. Post as often as you need to & vent all that you want. Believe me we understand. Soft & gentle hugs, Denise
Fibromyalgia-dx'd: 2006, ME/CFS-dx'd: 2006, Holt-Oram Syndrome dx'd 1975, reduced lung capacity dx'd 2009, nasal allergies, food allergies, depression (lifetime problem) IBS, neuropathy in hips

I have 4 children & 7 grandchildren.

As apples of gold in silver carvings is a word spoken at the right time for it. Prov. 25:11

BlueD
Regular Member


Date Joined Dec 2012
Total Posts : 28
   Posted 2/1/2013 1:13 PM (GMT -7)   
Thanks so much! I am going to purchase the book you mentioned. Today I am completely exhausted. and it is still frustrating. However a plus side is last night I was able to do some walking around the store. I think that is where some of my tiredness is coming from today.
I have: Fibromyalgia, Chronic Fatigue, Endometriosis, Myofascial Pain Syndrome, Irritable Bowel Syndrome, Chronic Pain Syndrome, Anxiety, Depression and Dissociative Identity Disorder.
I am currently on : Dilauded 2mg, 4 times a day, Oxycodone 1-2 every 6 hours, Tramadol, 1-2 every 8 hours, Valium 2mg 4 times a day, and Lyrica 50mg three times a day.

ladybugdreams
Veteran Member


Date Joined Jun 2008
Total Posts : 726
   Posted 2/1/2013 9:38 PM (GMT -7)   
Good for you for getting out & doing something. It is a trade off, balancing energy with fatigue. It is very frustrating to have to do this but it is what it is now. Coming to terms with this illness is actually such a relief. It is not giving in to the illness, it is coming to the understanding that our bodies have limitations. Please keep posting & let us know how you are doing. I have found talking to others helps me so much with my illness, seeing that I am not alone when I feel alone helps. Many hugs, Denise
Fibromyalgia-dx'd: 2006, ME/CFS-dx'd: 2006, Holt-Oram Syndrome dx'd 1975, reduced lung capacity dx'd 2009, nasal allergies, food allergies, depression (lifetime problem) IBS, neuropathy in hips

I have 4 children & 7 grandchildren.

As apples of gold in silver carvings is a word spoken at the right time for it. Prov. 25:11

My Lovely
Regular Member


Date Joined Feb 2012
Total Posts : 54
   Posted 2/4/2013 2:52 AM (GMT -7)   
I am exactly the same! no life, havent been able to work for 2 years, cant see my freinds, cant go out, its all so hard, and nobody understands, so so sad, depressed! Life is no more a life

All i can say is pace pace pace, which you prob already know.

Ive just had 5 ish months of hell, Im so depressed it unreal.

But im slowly trying to drag myself out of this by taking just 5 mins off my alarm clock each am, to try and slowly get my up earlier without making me feeling too ill

then each day im getting dresses, as making sure i get up. trying to do something tiny, like do the washing, walk around the garden, do some drawing, just anything really, so i can then build on each tiny activity each week, its hard, as keep getting knock backs. But slowly slowy thats all we can do. Ive started swimming once a week too now, someone takes me so i dont have to use my energy to drive etc.

I find coming to terms with all this is the hardest thing of all :-(

Lots love to you hope u feel better soon! hope we all do

ps im also reading a good book: chronic fatigue syndrome - the facts
My lovely - Chronic Daily Migraine with Visual Disturbance/Vertigo
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