Chronic EBV

Hi everyone,

I'm a veteran of the UC forum – thankfully been in remission for years, but I still try to lurk and help out over there – but I'm new to the CFS section.

I've been feeling lousy for months. A gradual onset makes it hard to track exactly when this started, but I know it at least dates back to summer 2012. Blood tests revealed what I guess would be called chronic EBV. My GP said they tested for EBV antibodies and anything over "11" was a positive infection and mine was 140!

I've read several books, done the online research and I'm still at a loss. It looks to me like CFS is just a generic term doctors use for a multitude of problems. I had a bad bout of mono when I was in college (YEARS ago) that caused me to drop out of school for a semester. I understand EBV can be reactivated, but I've been given no clue what to do to get it back under control. I know with mono, I was told to rest, rest, rest, but that doesn't seem to be helping now.

I'm trying to get back to a clean diet, cut out sugar. I'm taking D-Ribose. I'm doing mild weight training and yoga, trying to get as much sleep as possible. Can't really tell that anything is helping.

Would love to hear suggestions from others fighting EBV.

Thanks!

---

Diagnosed with ulcerative colitis spring 1999. Have been in remission for years with only a few minor blips. Last scope showed no inflammation at all.

Maintenance dose sulfasalazine. Probiotics, vitamin D, fiber supplement and fish oil caps. George's aloe vera juice and l-glutamine for gut healing. Mostly grain-free and dairy-free low carb diet.

Hello,

I am a new member and I was diagnosed with chronic EBV and CFS in 2003.  I had a friend in remission and I asked her how she did it.  My friend said to drink 5 cups of green tea a day.  Within 2 weeks of drinking the tea, I felt so much better, I had quit falling and the flu symptoms stopped.  So whenever I feel like the symptoms are coming back, I start loading up on green tea and I get better.  The main thing I have not been able to change is the amount of sleep I need, which is 12 to 13 hours which I can only do on Friday night for Sat.  During the week, I only average 6 to 7 hrs of sleep a night.  It is very hard to work barely can make it each day because of being so tired, not the other symptoms.

Try the green tea, what's it going to hurt?  Very good for you in all respects because it stops the free radicals trying to take over in our bodies.  Free radicals are what makes humans sick.

Falco

Questions to Falco and Princesa:

Falco - is it plain green tea? I will do whatever I can to make it through work. Some days the fatigue is mainly in the mornings but sometimes it lasts the entire day. I try to get my sleep during the weekends but I am so tired during the workweek I am just trying to get through it. Taking the green tea to work tomorrow.

Princesa- the paleo diet seems to be very similar to an anti inflammation diet. I have started only eating anti-inflammatory foods and no proceesed foods but I am thinking about doing the Paleo diet b/c it seems similar.