i think i have cfs? please help!

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New Member

Date Joined Mar 2013
Total Posts : 1
   Posted 3/3/2013 5:23 PM (GMT -6)   
I do believe that I have CFS but have not been told by a healthcare provider. I am actually a medical assistant at doctor's office & I have seen patients that have been diagnosed, seem better off than I am. I mostly feel like nobody really believes me. First of all, I feel I could sleep all the time & don't really have any sleeping problems. I can go to bed at 9:30, sleep all night & be exhausted the next day. I have been having this problem for several years now. I am only 22. There are times that I can be standing up and just feel so weak I feel like I am going to collapse. This is especially scary, mostly when I'm in a room with a patient. I don't feel like that everyday. I am tired everyday but I have good days & bad days so sometimes are not as severe as others. I have random joint aches with no swelling & it can last anywhere from a few seconds to a few hours. I have had mono twice and believe this started around a year after I got it the first time. I have had blood work that has all been normal except I have a slightly low vitamin d level. This can make you tired, but the other symptoms? And again, it is only slightly suppressed. I really do feel lost when it comes to this, my husband even has a hard time understanding. I need someone to relate to. Thanks for taking time to read. Any help/advice is appreciated.

Regular Member

Date Joined Jul 2012
Total Posts : 335
   Posted 3/6/2013 6:18 PM (GMT -6)   
My first advice is to see a doctor and have a complete work-up done including thyroid and checking for the EBV which is the permanent form of mono. Hopefully you are taking Vit. D supplements as a deficiency can cause all those symptoms and more. Try to remember CFS is an umbrella diagnosis for several diseases/viruses/issues that the medial community does not yet have a firm grasp on and the hardest thing about it is usually finding a competent and willing doctor, something I have not yet found for me. I hope you discover the cause of this, I well remember the pain, fear and uncertainty of waiting for a diagnosis, keep your head up and Keep in Touch.
Crainiotomy Lg. Meningioma Dec.02, Bi-Polar 2004, SMI 06, Gluten/Wheat/Dairy Intolerance, IBS 06, Migraines w/pseudo-seizures 07, Dev. Septum Sur. Sept.07, 2nd Men./Tumor Gamma Knife Rad. Dec.08, Radical Hysterectomy Sept.09 w/instant Menopause, Fibromyalgia 09, Disability since 09, EBV/CFS 11,Vomiting/Multiple Ulcers, Vertigo 12, Chronic Fatigue Moderator 2013.No meds list I ran out of space.

Regular Member

Date Joined Jul 2013
Total Posts : 86
   Posted 7/23/2013 5:15 PM (GMT -6)   
Hi tired_again

Hoping you feel a little better by now, if you are still reading this. :-)

Make sure you get saliva cortisol and hormones testing done by a naturopath. It will identify a lot of fatigue related issues, as cortisol is essential. It can help show your adrenal function.

Thyroid tests are essential too. Remember most doctors wont run the full lot, and only a few thyroid tests. They will also interpret the reference ranges differently to what a good naturopath will.

Remember, a "normal reference range" may not be normal for each individual, as we all have different bodies functioning at different levels with different needs.

Vitamin D tests, the level needs to be at the upper end, so read up on vitamin d and the immune system and how important it is for our daily functioning.

Iron levels need to be tested.

Many CFS/ME patients and sufferers end up testing for lyme and many get positive results. So if all the above tests come back well or are being treated, then lyme is another avenue of testing. Usually expensive, so the above options are cheaper and easier to begin with.
Newly registered contributer/member, but long time lurker/reader.
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